New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/13/2008 2:58 PM (GMT -7)   
My doctor would like to start me on Imuran come September and I wanted to know, for those of you who have been or are on it, what your experience has been. I'm a little bit nervous about starting it because of the possible side effects and what it may do while I am attending school so any information/personal experiences would be greatly appreciated!!
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


LynnRN
Regular Member


Date Joined Oct 2007
Total Posts : 289
   Posted 8/13/2008 3:12 PM (GMT -7)   

Hello,I have been on Imuran for about three years now,and it has been a God send!! Trust me,I fought my GI tooth and nail to start it because I was SO nervous,but I'm so glad I did.Before Imuran EVERY morning,I would be nauseated and gag ,shortly after starting it,I have not done that since (knock on wood) It also caused my inflammation to go down.

 

Good luck wink


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/13/2008 3:14 PM (GMT -7)   
I know that it's an immunosuppresant....have you had any more difficult fighting off regular colds or anything? That's great to hear it's worked well for you!! I hope I have the same results :)
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


Shynz
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 8/13/2008 3:19 PM (GMT -7)   
Hello, I have been on Imuran for about a year now and the side effects that I have dealt with have been my joints stiffening, fatigue and also the fact that Imuran is a immune suppressant so I was getting sick with colds easily. I took probiotics to help my immune system. Well good luck, wish you the best:)
19 - diagnosed for 5 years with Crohn's and trying to find a way to be pain free.


jenngrl81
Regular Member


Date Joined Oct 2007
Total Posts : 208
   Posted 8/13/2008 3:33 PM (GMT -7)   
The only side-effect I've had is fatigue but that could very well be from the disease itself. I just had my second Remicade infusion so I'm hoping that the combo works better than just the Imuran. Good Luck-and it really isn't as scary as it sounds.
Pentasa- 1000mg/2x 1/08; Percocet
Ultram ER 200mg; Prilosec 40mg; Xanax-ANXIETY; Cymbalta 60mg
Entocort 9mg
Probiotic
Ferrous Sulfate 325mg/daily for anemia
Azathioprine 150mg
Currently on a Low-residue diet as of 11/26

I'm so tired, when will this get better?


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 8/13/2008 7:48 PM (GMT -7)   
I had slight nausea when I first started it for a couple of weeks. I usually take mine a night before bed. Sometimes it would give me a migraine, however, I am prone to various kinds of those anyway. Because of these side effects for me is why I take it at night so I sleep through it. Otherwise it has been a GODSEND!
Took about 4 months to get in my system good and the GI says if I EVER miss my bloodwork, she'll snatch me off it in a heartbeat!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 8/13/2008 10:24 PM (GMT -7)   
I had severe nausea for 2 months with it. lost a lot of weight (which i was actually glad for). but now it's mellowed out and I'm glad I'm on it. Oh, and it also made a lot of my hair fall out. For a while I was brushing out big handfuls. i don't think it's a miracle drug for me, but it has definitely kept me out of the hospital. I guess I can't ask for much more!

cheers
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous


PK_AM
New Member


Date Joined Aug 2008
Total Posts : 5
   Posted 8/14/2008 3:31 AM (GMT -7)   
I have been on imuran for approx.6 years.I didn t want to take it initially but my doctors wouldnt give me the remicade that I needed when my fistulas opened unless I took imuran again.To tell you the truth my fistulas kept opening up when I was just on imuran and I believed then as I do now that it was only the remicade that would help close them.So I am still on imuran 150mg a day(my doctors wanted to take it to 200mg which I did but dropped back to 150).I don t think I have any side affects and surprisingly as you said being an immunosuppressant I am amazed that I don t get flu s and colds that easy even when the whole family around me has a bug.



Male:48-diagnosed with crohn s in march 2002(had symptoms since 1979)Had 3 surgeries in a space of 4 weeks,first one on may 20th 2002.Had a large section of ileum removed.Have had ileostomy since 3rd operation.Fistulas (from intestine to skin)were formed after surgery and have opened and closed 5 or 6 times.Medication Imuran(150mg)daily and used infliximab to close up fistulas.

Post Edited (PK_AM) : 8/14/2008 4:36:14 AM (GMT-6)


CrohnsDaddy
Regular Member


Date Joined Oct 2007
Total Posts : 235
   Posted 8/14/2008 8:31 AM (GMT -7)   
I've been on Azasan (Imuran) since the end of February. about the time it felt like it was making a difference, I missed five days in a row (I ran out while on a trip. Stupid, stupid, stupid). So now I'm wondering if it's going to take another four months to start helping again. :(

Anyway, I have had the exact opposite reaction of being on so many immunosuppressants: I used to get an upper respiratory infection just about every month during the winter, and about every six weeks during the summer. I haven't had an URI since March. That's a record for me. I'm 41, and have *never* gone that long without a sore throat. I'm still taking everything in my sig, with the addition of 25 mg/day of pred, and I'm still not getting sick.
Just trying to be a "Regular Member".
 
Entocort 9 mg/day, Prednisone 20 mg/day, Pentasa 4 gm/day, started Humira 1/22/08, started 100 mg of Azasan (Imuran) 2/20/08. I'm convinced that Prednisone is the root of all evil, and primarily responsible for global warming.


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13466
   Posted 8/14/2008 12:29 PM (GMT -7)   
I have been on it 6 yrs. I think I did have a headache for the first week and that went away. Also, it can cause nausea, therefore, my gi said to take it at bedtime and I have not once had any nausea from it. Susie


apalaura
Regular Member


Date Joined Jul 2007
Total Posts : 53
   Posted 8/14/2008 2:30 PM (GMT -7)   
side effects for me: I can eat almost anything, no D, no C, rarely any gut pain, hair fell out (came back mostly), sometimes my hands and feet swell. It has given me my life back.
Dx'd 5/07, azasan, florastor, caltrate, fish oil, cod liver oil


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 8/14/2008 2:46 PM (GMT -7)   
I have been on Azathioprine for several years now at 150mg/day. It has kept me going now for all that time. I'm afraid I would be in very bad condition without it. I've not had side effects. there are many, some deadly, but all in all, so is Crohn's!

kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 8/14/2008 3:01 PM (GMT -7)   
I have been on it for about 1 month now and feel like a new person. That being said, I am totally paranoid about cold and flu season this year.
KAM

35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Immodium, Zoloft, Wellbutrin, Seroquel

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 5:41 AM (GMT -7)
There are a total of 2,734,006 posts in 301,165 threads.
View Active Threads


Who's Online
This forum has 151301 registered members. Please welcome our newest member, BrisaMeadows.
278 Guest(s), 11 Registered Member(s) are currently online.  Details
THE HAPPY TURTLE, Joan M, Albannach, AngelsmamaDorseysdaughter, Smeadley, Jay79, Bobby Mac, SharonZ, bellavita, TiredOfIssues, straydog


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer