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LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/13/2008 3:05 PM (GMT -7)   
I'm just curious to know how all of you know what you can and cannot eat?

I'm still in a flare at the moment but things are improving slightly every day. My main concern right now is getting the proper foods in without exacerbating my Crohn's. I am apparently 97 pounds as of two days ago and I really would like to gain weight and build strength. I just am having a difficult time determining what is safe to eat because, as I said, I am in the middle of a flare so distinguishing between the natural symptoms and a bad reaction to a particular food is hard.

Also! I want to begin trying new foods soon, but I was curious to know which ones you absolutely have to avoid. I realize that each person's diet is different, but I feel like there are certain foods most of us can similarly avoid. I wanted to try spaghetti again for example or a hamburger for the iron and protein, but I'm extremely afraid to cause more inflammation and lose the progress I've made.

Having been diagnosed only this past May I'm still new to the experience of coping and recovery so ANY advice and anecdotes would be really appreciated!! I'm over being weak and hungry!

In all honesty, I don't even know what it's like to experience remission. Can you eat whatever you like or do you have to stay perpetually on a bland diet? If you eat something that DOES make you ill does this mean your remission is gone and you have to start all over again because say, you ate pizza just one time?
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


petittarte
Veteran Member


Date Joined Apr 2006
Total Posts : 686
   Posted 8/13/2008 5:51 PM (GMT -7)   
I eat and drink whatever I like. Once in a while yogurt and BBQ will make me hurl, but otherwise anything goes.
Jodi

Remicade and 6MP


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/13/2008 6:00 PM (GMT -7)   
Regardless of things like fat/sugar/dairy/etc. content? Are you in remission right now?
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/13/2008 11:12 PM (GMT -7)   
Well, if you don't mind being on immune suppressing drugs for the rest of your life, you can eat anything you want - at least until the side effects take over. Otherwise, you can try logging your diet and looking for reactions (slow and hard to sort out what you're reacting to). Or you can try one of the diets that have helped others. For info on one of them, have a look at: http://www.scdiet.org/ for more. I can't believe the number of people that would rather take what are extremely risky drugs rather than alter their diet. Of course, the doctors don't even consider that option, so I guess that is largely to blame. That and the fact that no drug company makes millions on a diet.

ddr030505
Regular Member


Date Joined Nov 2007
Total Posts : 68
   Posted 8/14/2008 7:43 AM (GMT -7)   
Well. I avoid nuts, really spicy foods, fried foods, pork, non-organic dairy products, and beer.. [occasional a martini doesnt hurt :)]
What i do when i am cramping is cut up fresh ginger into thin slices and put about 1/8 of a cup worth(soemtimes less) in the bottom of a hot tea (green tea is my favorite so far) I usually just drink that in the morning no matter what.. also eating a little cottage cheese with fruit in it(no more then a half a cup worth of each) is helpful to my bowels.. other then that im just careful.. if you want speghetti dont put a lot of tomato sauce on it.. just enough where you can get a taste.. and the burger, everone is different but if i broil mine in the oven it seems to be beter on my tummy then grilling it on the bbq...

Good luck!
23 year old married female Diagnosed Sept '03 still fighting for remission
longest break 9mths; meds: Asacol 6-400mg tabs aday, Iron 40mg; just stopped Humira due to a CMV virus which cause liver elevation
Live Laugh Love, Live by this and you can fight anything!!
There are moments in your life that makes you and sets the course of who you're going to be. Sometimes there little, subtle moments. Sometimes, they're big moments you never saw coming. No one ask for their life to change, but it does. It's what you do afterwards that counts. That's when you find out who you are.
 

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