23 years of Crohns, stumbled onto this site

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New Member

Date Joined Aug 2008
Total Posts : 11
   Posted 8/13/2008 10:58 PM (GMT -6)   
Crohns for oh, 23 years.
36 now and one resection at 19 years old (about 4 feet, two different sections)
Been on 6MP since surgery and remicade for over ten years, actually going next week for another dose. The stuff works, period.
Honestly, its a liveable disease, what does not kill you makes you stronger. My wife has MS and to be honest, this is a joke compared to what she goes through. Not trying to downplay what anyone goes through, I have been doing it a long long time, but there could be much worse options in the disease book of life.
Anyway hi and stuff. Looks like there is a LOT of information to be had here and I hope I can add some when its not 12 at night and should get some sleep before work. Anyone has any questions and/or hesitations about starting/trying Remicade, email me. I am the posterboy for it and after talking to me you will be running to get your first dose.

Regular Member

Date Joined Jan 2006
Total Posts : 355
   Posted 8/14/2008 1:06 AM (GMT -6)   
Just wanted to say hello and welcome to this great place. You will certainly find lots to read and perhaps to learn about. So glad Remicade is working for you.

Veteran Member

Date Joined Jan 2003
Total Posts : 6044
   Posted 8/14/2008 1:18 AM (GMT -6)   
johnnyred,, stumbled is not the right word, more like fell into a pile of it! welcome.



Veteran Member

Date Joined Oct 2007
Total Posts : 1184
   Posted 8/14/2008 1:58 AM (GMT -6)   
Johnny are you from England?

Diagnosis Oct 07 and then Aug 08: Patchy Ulcerative Pancolitis or Chrohn's Colitis to be confirmed after biopsy.
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate) for 30 days

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 8/14/2008 7:17 AM (GMT -6)   
Hi Johnnyred,
Welcome to healingwell.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Veteran Member

Date Joined Mar 2007
Total Posts : 4527
   Posted 8/14/2008 3:38 PM (GMT -6)   
Hi and Welcome to HW we are glad to have you and it's great the Rem. worked so long for you. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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