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Crohnie08
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 8/14/2008 11:52 AM (GMT -7)   
Hi all - I was wondering if anyone has seen or is currently seeing a Nutritionist for any help with Crohn's syptoms? If you did, was there any relief?
 
I'm 23 and was diagnosed just this year and I guess I am still going through my first "flare." This has been going on for about 5 months now. Eating has been a real problem and when I try to incorporate some of the foods I used to eat into my diet, I end up even worse.
 
I've read about some of the strict diets that some people are on - and I'm not sure if I'm ready to alter my eating habits that drastically just yet.
 
I am also not sure if a Nutritionist would be covered by insurance?
 
If anyone has any stoires of their own when going down this road I would love to hear about it...and any results!!
 
Thanks.

23 year old Female Diagnosed 4/07 with Crohn's
Currently on Entocort and Asacol


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/14/2008 12:00 PM (GMT -7)   
I just saw one and she said the following as a starter for Chrohn's.

1. Do not eat bread or wheat products.
2. Do not eat dairy products.
3. Drink filtered water.
4. Chew food 50 times before swallowing.
5. Drink before and after food not with food.
6. Drink 2 litres of water a day.
7. Eat juicy food not too dry.
8. No soda or fizzy drinks.
9. Take a probiotic daily. Try Aloe Vera Gel. But don't over do it with too many supplements.
10. Take regular excercise to get rid of toxins and stress.
11. Avoid too much sugar.


Diagnosis Oct 07 and then Aug 08: Patchy Ulcerative Pancolitis or Chrohn's Colitis to be confirmed after biopsy.
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate) for 30 days

Post Edited (LondonRed) : 8/14/2008 1:05:28 PM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/14/2008 12:07 PM (GMT -7)   
Yes I do.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 13451
   Posted 8/14/2008 12:19 PM (GMT -7)   
I saw one too and London covered most of it. I also am on a low fat diet created by me and she said good, because had I not done so, she would have recommended it. Stay away from corn, anything with seeds, popcorn which most of us love, its a killer though, watch out for skins on fruits too. Susie


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/14/2008 2:39 PM (GMT -7)   
London - I have seen suggestions that aloe vera can be quite irritating unless it has been processed to remove one component (forget what). If you are trying that, watch for symptoms of irritation in your gut. Some people will probably be all right, but it is something to watch out for.
C88 - avoiding wheat alone may not be enough. I started out avoiding wheat and that sort of worked. But it was not until I cut out most common starches that I got real benefits.

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/14/2008 3:29 PM (GMT -7)   
I was thinking of seeing one to find out what is triggering the bloat.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Crohnie08
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 8/14/2008 5:19 PM (GMT -7)   
thanks everyone. I really appreciate the advice!
23 year old Female Diagnosed 4/07 with Crohn's
Currently on Entocort and Asacol


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 8/14/2008 6:42 PM (GMT -7)   
I'm a little late here, but most of my diet follows London's advice with the exception of breads. While I don't eat wheat or oats anymore, I do use alot of rice & quinoa based starches. I do occasionally cheat with Bisquicks non-fat mix using non-fat powdered milk as a substitute in any recipes. Not drinking with food is something I figured out naturally on my own. Less liquid with the food going down = less gas for me! I drink Boost for a meal supplement if I don't feel like eating anything. I also have added the new Elations drink instead of taking Glucosamine & Chondroitin supplesments. This helps my joints by order of the Rheumy and it's better than swallowing all those horse pills! Also take a B12 inject monthly and a daily multi-vitamin.
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 8/14/2008 9:09 PM (GMT -7)   
I would love to find a good nutritionist here in the Portland, Oregon area (if any one knows of one, please let me know!). The one time that I saw one she literally pulled out a book and made me copies of "the "Crohn's Diet" section. I'm knowledgable enough to know they typical do's and do not's. I'd love someone to create a nutrition program for the individual. So needless to say, Crohnie88, I went once and didn't go back.
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 8/14/2008 9:09 PM (GMT -7)   
i am my own nutritionist.

imho, the best thing to do is eat low glycemic and whole foods and stay away from processed/refined foods and sugars. drink plenty of water between meals. cook with low temperature.

i would argue that fat is good for you. of course it must the right kind of fat. saturated fat is not bad for you. the majority of artery plaque is from vegetable oil. do the research. stay away from trans fat. research shows that the non/low fat diets/food do not help you lose weight. if you eat properly, you dont need to watch your intake of fat or calories cos the body will normalize.

i have found that limiting my grain intake helps a bunch. first choice is sprouted grain, then gluten free. but i minimize the portion, having most if not all in the morning. a normal portion for me would be say 1/2 cup of cereal or two slices of toast - with butter cos fat helps in the metabolism of grains and with cinnamon to lower the glycemic affect of the grain.

food for thought.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/14/2008 10:45 PM (GMT -7)   
Hmmm... cinnamon - I didn't think it was commonly known that you can use cinnamon to augment insulin. I don't think that you should ask your doctor about that unless he is one in a million and reads the literature.

CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 8/15/2008 6:25 AM (GMT -7)   
that is why i am my own nutritionist. i read voraciously for over a year. i still read as much as i can on this subject. i've found that one should do the opposite of what we're told in order to be healthy. kinda unnerving...
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07

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