no one seems to care

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yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 8/15/2008 12:41 PM (GMT -7)   
Sorry for whining but I'm so disappointed with my family. I had been symptom free of Crohn's for almost 17 years. I was always upbeat and happy and usually the team cheerleader when things went wrong in my close family. In the last couple of weeks my Crohn's has reared it's ugly head and left me emotionally devastated. I don't show it too much but inside I'm a wreck. My family is aware of my flair up but rarely calls to see how I'm doing. Now more than ever I need a confidant to express my concerns but it's like they don't want to talk about it. Ive mentioned that I'm depressed over this flair up and they just move the conversation on to whatever as if I said I had an itch. I'm feeling very alone right now and it just makes things worse.

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 8/15/2008 1:07 PM (GMT -7)   
Many families feel uncomfortable dealing with a chronic illness. They feel powerless to help, so they avoid it. Why not turn to a friend or even drop into the chat room here and visit with people who understand?

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/15/2008 1:17 PM (GMT -7)   
I'm so sorry for what you're going through right now...I'm sure that it's not that they don't care, so much as they likely feel so helpless that it hurts them to see you suffering...you will get through this and you should know there are plenty who care about what you're going through.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/15/2008 1:19 PM (GMT -7)   
I care! Whine away!
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/15/2008 1:29 PM (GMT -7)   
I am with FitzyK23 here, I CARE!! Whine, cry, vent whatever, we all understand what you are going thru. Probably me and a couple others on here even more, because we also enjoyed long remissions. I myself enjoyed a 20 year remission. It was nice while it lasted. Hope the doc gets you feeling better soon, and don't be afraid to come to us for support, we all can relate in some way.

God Bless,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 8/15/2008 1:38 PM (GMT -7)   

WE CARE!!! And we understand.

My family is the same way and so are friends, they just don't understand it but everyone here does understand!

Take care and I hope you beat this flare soon.

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam 

 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/15/2008 2:24 PM (GMT -7)   
We care and understand, feel free to vent away anytime.
TC,
Navy
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...-?
All suggestions/options/opinions are caveated with please consult with your local health care provider...


yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 8/15/2008 2:49 PM (GMT -7)   

Hey All,

  Your replies mean more to me than you know. Even though I've been worse when I had active Crohn's years ago, I think after so long without symptoms I started believing it was gone for good. Now that I know it's not, I can't seem to quiet the pity party going on in my heart and head. I'm a fighter, I always have been and I know I'll get through this but at the moment and for the last week or too I just feel the need to crawl in a safe place and cry. Thanks again for your support. Tony


lightningbug
Regular Member


Date Joined Jun 2008
Total Posts : 28
   Posted 8/15/2008 4:16 PM (GMT -7)   
Hey Yellow! I care! :)

I've only been blogging on this site for a couple of months now, but it doesn't cease to amaze me how many life circumstances so many of us seem to share. I would have to echo MikeB's comment and say that people are stymied as to how to respond, so they gloss over it as we tend to do with so many things we're unfamiliar with. Most of the hurt and frustration I've felt over the years has been due to what I thought was apathy from my loved ones over what I was going thru. The older I get (and the stronger/wiser I like to think :), the more I realize that those people just don't know how to react and I haven't given them much feedback as to what I need. Just as CD has been a journey of unexpected turns for ME, supporting someone with CD has been just as mysterious for THEM. I've found that with all of my friends and most of my family, when I tell them what I need from them, they're happy to give it. In fact, they're relieved that I gave them some guidance as to how they could help me. Most of them feel helpless and frustrated because there's nothing they can really do to make my body feel better, but once they realize what they can do to make my heart feel better, they step up and give me all kinds of love and support. I was angry with so many people for so long because I thought they didn't care, and I thought they should know better to treat me the way I needed them to. I started telling them what I needed, and things have only improved since then.

Do your best, then to hell with it.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/15/2008 6:17 PM (GMT -7)   
Hi We are all in this together here and that's the way family responds but at least here we are not alone. It gives a person strength to know that. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 8/15/2008 6:29 PM (GMT -7)   
boy, anytime i have anything related to my disease the first people i think to turn to is my online crohnie friends! i have no idea what i would do without my online support group. just to vent, get advice, read what others are going through and can relate to. no matter what hour of the day or night, someone is here to listen :)

are you taking anything for your flare? best wishes to feeling better real soon.
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

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