sbft results/vent/update/advice needed

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dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 8/15/2008 4:28 PM (GMT -7)   
hello all. i hope this post finds you well!

as some of you know, i have strictures that my gi have been keeping an eye on. i went for a small bowel follow through yesterday to see how the 6mp has been working on taking down inflammation and see whats left from scar tissue. well, after being on 6mp since october there has been ZERO affect on my strictures! my gi said i literally look just like the day i went in for an xray when all this stuff started. gee, THANKS! i guess he still needs to sit down with the radiologist to get the full results back but that's what they see so far. it was a weird sbft. did anyone ever have to get xrays done on 2 different machines? they also used this ladle looking thing to press on my stomach to move my intestines around and get better pictures. then i had to flip onto my stomach will sandwiched in the machine and they put a paddle under my stomach and it inflated like a balloon and they took more pictures. so weird! anyways, my gi is talking about increasing my 6mp to 100mgs. i think that is too much for a person that weighs 106, don't you?? i mean, if it hasn't touched my strictured area after 10 months do you really think an increase is going to do anything?!?! he even said it himself, if it's all scar tissue, there is no medication that will fix that. surgery is the only way to fix the strictures. now, i have an appointment with him next friday. i really think it's time for surgery. i can't live off narcotics on almost a daily basis for the rest of my life. i can't deal with the urgent d all the time. some bouts are pretty bad lately. i feel it's just time to take the next step and get those bad guts out. what do you guys think? so far i haven't had a blockage and i know i cheat on my low residue diet. i can't stay away from raw fruit and veg. i chew it like crazy but it's something i miss so much that i just can't help it. i am so frustrated and feeling pretty down about this. i am also afraid to take that much 6mp! it seems like an awful high dose.

anyways, some advice would be most appreciated. i honestly don't what i would do if i didn't have my online crohnies to talk to. this is too much for me to deal with alone :/
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


LMills
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Date Joined Apr 2008
Total Posts : 1753
   Posted 8/15/2008 4:52 PM (GMT -7)   
It sounds like you really do need the surgery. I was talking to my aunt who has been practicing medicine for at least thirty years, and she's said in her experiences with other people that if the question of surgery comes up in this light(yours specifically) that it's the best way to go. I know it isn't a permanent solution, but I've heard from many others that it made a HUGE difference in quality of life. I wish you the best of luck in your decisions and I hope you get to feeling better soon! I'm so sorry you're going through this...
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 8/15/2008 5:12 PM (GMT -7)   
thanks so much. i've talked to quite a few people on here who have enjoyed many years in remission after their resections. i am ready to take that step albeit a tad scared but more hopeful for some relief. well wishes to you as well!
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


beave
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Date Joined Mar 2007
Total Posts : 1091
   Posted 8/15/2008 5:34 PM (GMT -7)   

You're faced with a difficult choice and you have my empathy.  I have a few comments and suggestions.  If you want to try *everything* before giving in to surgery, there are still more things to try. 

Has your gastro done a colonoscopy and tried to see for himself what the stricture looks like inside?  Can he get to it?  I'd guess you've already done this, but if not, it's worth doing.  He might be able to see for himself how much is scarring vs. how much is inflammation.

Secondly, while 6mp is a good med for lots of people, it doesn't always work for everybody.  And it doesn't always reverse damage that's been done (you might say it's better at preventing than reversing damage). 

But it's possible a different medication could improve the stricture.  Have you been on prednisone before?  If so, did the stricture improve while on it?  Or, since your stricture is in the terminal ileum, you could try Entocort (since it's most effective there).  You could even try Remicade or Humira and see how the stricture reacts to those.

Those are just a couple of suggestions if you really want to put off surgery longer and give meds every chance to work first.  I'm not saying surgery is something terrible and to put it off at all costs, just that once you remove a section of bowel, there's no putting it back in; so it's generally recommended to try meds as much as possible before doing surgery.



dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 8/15/2008 5:47 PM (GMT -7)   
hi beave, thanks for the response :)

for some reason, my gi is against me going on humira or remicade. he thinks the side effects are too risky.

during my scope last year he had to pretty much, pop the scope through the strictured area thus leading to me crying out in pain. he wasn't able to tell how much was inflammation and how much was scar tissue. glad he decided to go with the sbft than the scope for a follow up!

prednisone worked well for the d but the side effects were so awful i won't go back on it. i shook like crazy, couldn't sleep, i was a train wreck! i also tried entocort for a short stint with no improvement.

surgery is always a last resort and i think i've reached my limit with this and willing to take that step. it is a bot scary but i am willing to try it. my gi keeps telling me how much better i will be after surgery because it is inevitable for me. i just wish he would get on with it all ready!!

thanks again for your suggestions and advice :)
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


gachrons
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Date Joined Mar 2007
Total Posts : 4527
   Posted 8/15/2008 6:06 PM (GMT -7)   
Hi Stephanie I know my bowels are better since surgery and if you think it;s time then at least you should get things going better I let mine go for awhile and have I been happy that I got it done. The GI I seen said it was time so no getting out of it for me. Hope the best for you . lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 8/15/2008 6:20 PM (GMT -7)   
thanks gail. i think that's what i did before, let it go too long. the pains i had for so long that i thought would go away on their own probably caused more damage than i would have ever imagined. at least i know what i have now and know what to watch for and take care of myself. i feel like it's going to be a fresh start and i can finally move forward. i have felt like my life has been on hold for a year and a half now. how have you been? i haven't been on so much since i started working again :/
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/16/2008 9:19 AM (GMT -7)   
So do I understand you right your strictures are from scar tissue, not inflammation? If that is the case, no medication is going to fix that. And things like Remicade or Humira would just make it worse. I was told if you have scar tissue strictures and use those meds, it will cause the strictures to get worse.

Before my second resection, what helped me to make up my mind on whether to have surgery or not, was the quality of life I was living with. Basically the quality of life sucked. That is something you should bring up to your doc. Tell him you have "no quality of life" and you want to discuss a resection with him.

I hope whatever decision you make, you get to feeling better soon.

Good luck,
Gail *Nanners*
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/17/2008 11:31 AM (GMT -7)   
Hi Stephanie After getting my resection in Jan. I have been good bowel wise no pain which is a big relief. I do have more body pain now though. I can go places now without so much worry about D grant you it's not perfect but alot better. I have spent most of my summer painting things in my home ,alot of things I got caught up on. Hoping the best for you as always. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 8/17/2008 11:57 AM (GMT -7)   
nanners, that is a GREAT way to put it to my gi, my quality of life well, SUCKS! i think that the inflammation is at least down if not non existent after being on 6mp for 10 months. i mean, i would think? my pains aren't as bad as they were before diagnosis though i still take percocet when i do get level 6 pains. i am fairly certain it's all scar tissue now. i guess the only way to really make sure is to do a scope again, right? it was so painful last time i hope it doesn't come down to that but i suppose i should get used to the idea that scopes will be in my future. i had no idea about the effects of humira or remicade on strictures. how scary. i am tired of it all. i think i will also tell my gi that. i feel it's time. the kicker is he always tells me how much better i am going to feel after surgery! well, let's get on with the show then shall we!??! crimminy!

gail, that's great to hear! the more successful resections i hear about, the better it makes me feel :) sounds like you are having a great summer. mines been so-so. it is an awful feeling having d haunt you everywhere you go. things like going to the beach or walks in the woods are just too risky :(
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 8/17/2008 8:47 PM (GMT -7)   
Hi Stephanie. I had surgery in April. It's a difficult decision but I can honestly say, 4 months after my surgery, I feel better than I did before the surgery. It took the past four months to feel that way though. I felt pretty well the first few days after surgery. It was the next couple months that were difficult. I don't know what's typical, but my body had (and continues to have) a hard time adjusting to its missing parts (10 inches of TI, 2 inches of colon, ileo-cecal valve, appendix). I went back to work full time at 6 weeks and that was probably 1-2 weeks too early. Four months out, and my quality of life has definitely improved. It's wonderful to be able to sleep through the night without waking up in severe pain. It's fun to be able to eat all kinds of things I couldn't before the surgery (but not everything). Good luck with your decision and feel well!
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08.


Jen77
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Date Joined Mar 2006
Total Posts : 2687
   Posted 8/17/2008 11:32 PM (GMT -7)   
If it's from scar tissue, I'd had to consider the surgery. If it's imflammation, I'd probably do whatever I could first, in hopes of avoiding surgery. We've only got so much guts in there, and since it isn't a cure, surgery would be my last resort. But I think having strictures from scare tissue might be one of those last resort measures.

Good luck in your decision!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Just finished tapering off Prednisone *YEAH*, Asacol, Questran, Toprol XL (for high blood pressure).


dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 8/18/2008 6:21 PM (GMT -7)   
ski bum - gosh that is scary! i guess, if and when i talk to a surgeon i will see if i can wait till i make my 6 month mark at work so i can take advantage of the short term disability they offer. which if only 55% of your pay but if i get laid up like you did i will be thankful i did! thanks for the heads up, really. i am glad you are getting better though :) i look forward to the day i can say the same!!

jen - this is what i am thinking. scar tissue, get it out before i end up with a blockage! why risk putting me in such a high dose of 6mp when it's probably not going to do anything but make more tired than i am?? i will ask him that question when i see him friday. i mean, there is NO CHANGE and i have been on 6mp since october. what gives!? thanks for the reply :)
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


beave
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Date Joined Mar 2007
Total Posts : 1091
   Posted 8/18/2008 10:07 PM (GMT -7)   

Stephanie,

As I stated before, it's a tough call for you and I feel for you as you struggle with this dilemma.  I have a couple more comments and thoughts.

One, as I mentioned before, some people just never get a response to 6MP, no matter how much or how long they take it.  Does the fact that you got no improvement mean your stricture is all scar tissue?  Probably, but maybe not.  Maybe you're just a non-responder to 6MP.  So, again, you're back at square one: Is it inflammation or scar tissue?

You said your doctor believes Remicade or Humira are too risky?  But he's recommending surgery?  Uhm, to be blunt, that's crazy talk. :-)

How can Remicade/Humira be more risky than putting you under anesthesia, cutting you open, and removing however many inches of intestine, then closing it all back up....

I would venture to say a great majority of docs would disagree with your doctor's position on this one.  Surgery is almost always considered more risky than these meds.

Having said that, I'm not trying to scare you out of surgery, and I think its risks aren't very high.  But they are definitely there (I had a sinus surgery go terribly wrong, a surgery that was supposed to be "routine" endoscopic surgery, so I'm a bit biased here, admittedly.)  What did somebody say about surgery?  "The only minor surgery is the one done on somebody else.  Any surgery done on you is MAJOR surgery!" :-)

I would advise you to reconsider trying those meds.  I'm not saying "do it"; I'm just saying consider it more.  If it turns out that your stricturing is from scar tissue and these meds make it worse, well, you'll have surgery, which you're heading towards anyway, so no net harm done (yeah, I know, easy for me to say!)

One other possible thing to consider, which would not be fun to try at all, is an extended period of time (weeks? months?) on basically a liquid diet.  Some people get a good response from that.  But, yeah, that might be really tough to do.

Good luck whatever you choose to do.

dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 8/19/2008 8:40 AM (GMT -7)   
beave, thanks so much for your added input, it's much appreciated! i need to hear the good and the bad on going through with a decision to have surgery or not. on one hand, my gi tells me i am more than likely going to need surgery and tells me how much better i will feel after surgery but keeps putting it off. nanners also got me thinking about humira and remicade, it can actually cause my strictures to worsen if it is all scar tissue so i will definitely speak with him on that. we'll see how fridays appointment goes. honestly, he's new to his practice and i question that sometimes. i would like to know what a surgeon has to say about my xrays. i might go for a second opinion. so much is up in the air. i had to come home sick today cause i threw up twice after eating a banana? i have no idea. and i've had several bleeding episodes since my sbft. blah! i am starting to ramble here! thanks again for the advice :)
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/19/2008 9:47 AM (GMT -7)   
Stephanie-- I totally understand your predicament. I was in the same situation. Thankfully for me 6mp took down a tiny bit of inflammation, so I could have a good quality of life with major strictures and avoid surgery. I also hate raw veggies, so I can stick to the low residue diet. If I were still feeling bad 10mos out, had no quality of life and couldn't easily adjust to the lowres diet I'd be making the same decision you are. I know resection is scary and there is that high risk of recurrence, so it is a hard choice. But like Nanners and others have said, if you are miserable now, it might be worth those risks. The truth is some people feel amazing for years after a resection. Feeling crappy forever versus potentially feeling great for even a few years kind of puts the decision in perspective. Good luck on your choice what ever you decide.

Beave-- my GI has given me the same warning as Nanners'. Remicade/Humira cause rapid healing. Healing always leave some kind of additional scar tissue. For those of us with severe scarring already, we just cannot afford that additional layer-- it might just close the whole thing up.
Currently in remission!


beave
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Date Joined Mar 2007
Total Posts : 1091
   Posted 8/19/2008 11:34 AM (GMT -7)   
inflamed, I hear what you're saying about healing too quickly, but my point is, if you're likely going to have surgery anyway, why not give it a try? If it helps, you avoid/put off surgery. If it makes it worse (heal it too quickly and lead to more problems), then, hey, the decision is made all that much easier -- surgery time!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/19/2008 12:01 PM (GMT -7)   
It is easier to do a planned surgery vs an emergency surgery. I had my first resection as an emergency and what a horrible ride that was. The second one was planned and things went much smoother.

Dustspeck one thing that I think will help you alot right now (while waiting a decision) is to go on a strict low residue diet (if you aren't yet). That has been a real lifesaver for me. In early 2007 I had three obstructive episodes in one month and was hospitalized for about 3 weeks. No one told me about the diet, I actually figured it out myself. I cut out red meat (hard even for the normal digestive tract to digest), raw veggies, nuts, seeds. You can eat veggies if they are cooked to mush, and you can eat fruit, just no peels. If you google it you will get some great ideas on what to eat. I have been able to stop those obstructive episodes on this diet. Just a thought.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 8/19/2008 1:11 PM (GMT -7)   
inflamed, thanks for the reply. it really is a tough decision to make, on my behalf and on my gi's half apparently. i just wish i knew WHAT the right thing to do here is. is it just time? i am not giving the meds enough time? is after a year and half of suffering not long enough? i don't really know. i don't know if it's my patience wearing thin. i do know i am sick of going out and fearing i won't find a bathroom. i do know i am sick of urgent d even after eating what i am supposed to. i do know i am sick of taking pills (including narcotics) all time. is that enough? i just don't know :( i know WAHHH!

nanners, i have found even on a strict low residue diet, which i stuck to 100%, i still have pain and d. something that agrees with me one day won't the next. i don't get it. i am afraid of an obstruction. when i do eat raw vegetable of any kind (though i am scared to eat them again after fridays findings!!) i chew the heck out of it. i have a lot to talk to my gi about this friday. luckily, i like red meat but don't eat much of it. maybe once a month? definitely no nuts or seeds though. including my long lost friend, popcorn :(
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/19/2008 1:21 PM (GMT -7)   
Dustspeck also remember one other thing, even if you have surgery, afterwards you should ALWAYS take some kind of maintenance medication. Crohns is a chronic and incurable disease. So maybe the 6mp might be a good option afterwards. I say this because you said you are sick of taking pills. Pills will be a part of your life forever, sorry:)
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/19/2008 1:43 PM (GMT -7)   
Stephanie-- how is your doc determining the theraputic dose of your 6mp? Mine always did it by blood tests and I felt the improvement within a few months. If you are in the right range and you have the same amount of narrowing after this much time, it wouldn't seem like 6mp could do much more. Then maybe what is left is just scar tissue (unfortunately).

The only other way I could think of to get more information to make your decision is to do a scope (not sure it would be worth the ordeal). I was able to confirm that my entire current stricture is scar tissue after a colonoscopy. 6mp put me in remission and the biopsy during the scope confirmed there was no inflammation. So, we knew that the remaining stricture was all scar tissue. It isn't pretty, but the pen tip opening I still have has been enough for me.

Sorry the low res diet isn't working for you. It's my permanent diet and keeps me going. The only safer diet with strictures would be to go all liquid. Drinking only enteric (?) drinks can promote healing and move easily through the strictures. The bad thing a liquid diet doesn't make for a long term solution. I've done it for weeks or even a month or so, but it would seem impossible to comply with it forever.

I'm so sorry you are forced to make this decision. I'm sure it's one that will be facing me in the future. It sounds like your doctor is being cautious and wants to make sure you have all of the information. I'd prefer that to one who jumps straight to surgery. That way, if you make the choice for a resection you will be able to feel better knowing that you were informed and thought it out. No matter what, I hope you find something that will work to give you a better quality of life. We all deserve that.

hj
Currently in remission!


dustspeck
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Date Joined Sep 2007
Total Posts : 565
   Posted 8/19/2008 2:02 PM (GMT -7)   
hj- thanks a million. i have had two tmpt tests done. at 50mgs i wasn't in the therapeutic level yet. 75mgs i am just in the therapeutic level but on the low side. that was about a month or so after my increase. i think that was back in march-ish? i am sure he will add that to my blood work friday :/ most likely will be a 6 vial vein tapping episode. fun! i see that you are currently in remission even with some nasty strictures. do you have bad d days or bad days with pain at all? i am curious of this elusive remission i keep hearing about. hope you don't mind me asking!!
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/19/2008 2:23 PM (GMT -7)   
I don't mind at all. I've actually been pretty lucky. Since the 6mp started working for me I am pretty much a normal person other than diet. I don't eat the healthiest diet, but I am STRICT about the low res diet. I never touch nuts, seeds, popcorn, raw veggies or even fruits/berries that have tiny seeds. I drink fruit smoothies instead or juice.

My symptoms are rare and temporary when they appear. I don't have lasting d or pain (the pain tends to be more sharp twinges or shooting pains that don't last). I feel these at most a day or two every few months or less. Any symptoms I do have seem to go away on their own before I get worried enough to do anything about it.

This remission has lasted for over 4 years. 3.5 of that was maintained by 6mp and pentasa. I am currently past 9mos pregnant (baby was due last week) and have been on only pentasa during that time. Even with the preggo hormones I still have been healthy. The thing is, I don't know how long it will last or what if anything will end this magical run I seem to be having. I pretty much know that the next flare and layer of scar tissue will turn my strictures into full blown obstructions (before my obstructions were mostly partial and could clear up after a couple days in the hosp followed by a liquid diet). Then I will be in the same boat as you. My GI and the surgeon I consulted in the past agree that surgery is in my future. We are just seeing how long I can keep going as is. Right now I am hoping that the hormone let down from this preg won't trigger it and that I can be like others around here who've had decades long remissions.

As for the 6mp, 75 tended to be my magic dose too. They had me at 100 for a while (I weighed about 120 then). I hear you on the blood draw, at least they can do it with just one stick. Make sure the vampires give you some juice after.
Currently in remission!


dustspeck
Veteran Member


Date Joined Sep 2007
Total Posts : 565
   Posted 8/19/2008 2:41 PM (GMT -7)   
WOW! best wishes that baby comes out soon :) how exciting!

i honestly don't have a clue on how tight my strictures are. i guess my gi was going to sit down with radiologist and have an extensive review of my guts. i am VERY curious to see what is going on in there. i do get twinges in my right side that are sharp. mostly annoying. but i still get stabbing, continuous pains in my upper abdomen. those pains i take percocet for. the side ones seem to come and go rather quickly.

well, best wishes for a smooth (and soon!!!) delivery :D
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits


kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 8/19/2008 6:29 PM (GMT -7)   
Stephanie -

I was in the same situation 4 years ago - scar tissue turned into a stricture. I had surgery and have absolutely no regrets. It is a personal decision, but like many of the other folks on here, I looked at my quality of life. Also, I figured that scar tissue does not go away and what were my other options? Keep eating mushy food until I could not stand it any longer? To me, surgery was unavoidable - it was just a matter of time. Maybe my decision was easier cause I live in a major city with the top colorectal surgeon in the region and I had 150% confidence in his ability. Either way, good luck in whatever you decide :-)
KAM

35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Immodium, Zoloft, Wellbutrin, Seroquel

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