this is new to me

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New Member

Date Joined Aug 2008
Total Posts : 1
   Posted 8/16/2008 1:36 PM (GMT -6)   
So I was told Tuesday that I have UC and probably Crohns.  I'm searching the web for info because it sounds so scary. I'm 29 and being set up for a colonoscopy.  I hurt all the time and haven't been able to go to the bathroom in a couple days.  I don't know what to expect either. I've been reading some posts and how people have been dealing with this for a couple years or more and I don't think I can do that. Like I told my dr, I don't have time for this. I'm not one to get sick or to be able to take time off from my life to be sick.  I guess I'm just wondering what comes next?  My dr said that i will be treated with medicine. (currently on Asacol). Why bother with the colonoscopy then?  Thanks for listening!  I feel pretty alone right now.

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 8/16/2008 2:17 PM (GMT -6)   
Sorry that you have UC/CD. First of all, you aren't alone, there are hundreds of thousands of us in north america alone, though I'm not sure where you're from. You're doing the right thing by researching this disease on the internet, you are going to have to take charge of your health from now on.

Unfortunately we don't deal with this for just a couple years, there is no cure for IBD, so barring a breakthrough we will have to deal with this disease for our entire lives. You are going to have to make time to deal with this - and you will - because you don't have a choice. Thankfully, this is the best time in history to have IBD because there are more treatments coming on-line every year.

You need a colonoscopy because the extent of your disease needs to be determined before treatment can be fine tuned. The prep for the scope will cure your constipation, temporarily.

All the best
Dx'ed in 1999. No surgeries.

Current meds: 75 mg 6MP. 3mg prednisone (trying to taper). Udo's Choice Probiotics (30 billion).

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 8/16/2008 2:20 PM (GMT -6)   
Sorry to hear about your news. The initial shock is always the hardest part but it will get better. So you told your doctor you don't have time for this. I gotta tell you, there is probably not one person on here that hasn't had to change how they live in some way because of this. Everyone has different symtoms, different treatments, different lifestyles, etc, that's why you let the doctor do as many of his tests no matter how useless they seem. You will get the right combo eventually, don't let it get to you too bad :)
SCD since 01, remission since 01, occasional Arby's breaks :)

Regular Member

Date Joined Jul 2008
Total Posts : 471
   Posted 8/16/2008 2:53 PM (GMT -6)   
sorry to hear you're going through all this. I felt the same way after reading posts on here about how long people have been going through all this. I just didn't feel like I could handle going through all this for so long...and I'm still not sure I can. don't really have a choice though. keep us updated. *hugs*
27 female
Bipolar, panic disorder, PTSD, PCOS, hashimoto's disease/hypothyroidism, acid reflux, and in the process of being diagnosed with either crohns, colitis, or even lupus...who knows really! the docs sure don't lol. Now possibly even celiacs disease!Lots of tests coming up so hopefully I'll know more soon. Too many meds to list!

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