Leaving well enough alone?

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snappy
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Date Joined Sep 2005
Total Posts : 675
   Posted 8/18/2008 9:27 AM (GMT -7)   
I have rectal issues. Every time I go #2 it hurts, from just a little bit to about a level 4 out of 10. This is down from the level 25 pain it was before Remicade when I had a fissure/fistula (jury still out on that one). Other than the immedaite pain I go on about my life and am very active. However, the pain is enough that I get up early enough so that I can sit in the bath for awhile. Plus, if I ever needed to go poop during the day at work I'd hold it because the discomfort would be tough to live with at work.
 
I don't have the fissure anymore.I think I have some inflammation that is up and down depending on whatever I ate.
 
My question is, since I'm dealing with the pain and it's nothing like what it once was, I'm being treated with Remicade, should I just leave well enough alone? My options are getting many more painful probes and probably being given the choice for upping my dosage or some macabre surgery.
 
My GI says never compare my pain with someone else, but I kind of feel like since I'm nowhere near as bad off as a lot of y'all that I should just chill, be thankful and just keep dealing with it as I have. But that little voice keeps telling me I'm so darned close to normal, what could be done to make me 100 percent?
 
Your ideas? Thanks.
Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!


chroniemomx2
Veteran Member


Date Joined Apr 2005
Total Posts : 2346
   Posted 8/18/2008 9:36 AM (GMT -7)   
If you think that you have some rectal imflammation, I would try some rectal meds or flagyl.  Flagyl works well for me for that.   The rectal meds may be all you need as a tweak to the remicade, and may start you on the road to pain free living!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/18/2008 9:42 AM (GMT -7)   
I think rectal meds would be a good option, my favorite is cortifoam, flagyl never helped me, but it does for many others...either way, rectal meds is what I'd probably try...you should talk with your doc about this, don't leave it if it's causing you grief.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Stef17
Veteran Member


Date Joined Feb 2003
Total Posts : 1811
   Posted 8/18/2008 10:34 AM (GMT -7)   
I was having the same problem every time after a #2, and I actually found that 2 extra strength tylenol did wonders for me. I couldn't believe it was such an easy fix and that I had suffered so long needlessly. Maybe tylenol will help?

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 8/18/2008 2:24 PM (GMT -7)   
If pain is affecting your daily life it should be discussed with your doctor and treated-I agree with the others that rectal meds are probably your best option.
Sj

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/18/2008 4:47 PM (GMT -7)   
I would discuss it with your Doc. He/she may have an easy fix for it. Like maybe taking stool softeners or eating more fiber. But don't do any of these until you talk to your Doc.
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  No other symptoms.
Allergic to Remicade and Humira.  Currently on 6MP.
 


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/18/2008 10:50 PM (GMT -7)   
Pain says to me that you have either a continuing infection from the fistula/fissure or a stricture. One possible thing you could try is a suppository containing propolis. It is used in healing burns and is known for its antibiotic action and its ability to minimize scars. It is also used in suppositories, but I can't find any online except from Europe - Russia, Germany, Roumania. You could try a cream containing propolis, but I don't know how far up the origin of the pain is. It is a fairly harmless idea and it would cost less than most medical intervention.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/18/2008 11:22 PM (GMT -7)   
I actually take bee propolis caps everyday for the last 5 yrs now and it's done amazing things for my CD, my GI was thrilled when I told him and he encouraged me to continue taking it daily and indefinitely since it's 100% non-toxic and he said even if it hadn't helped with my symptoms as much as it does that it's an excellent dietary supplement for IBD since we don't necessarily get all the nutrients via diet alone.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 8/19/2008 3:02 AM (GMT -7)   
Have you tried Hydrocortisone suppositories/creams? (Prescription strength.)
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 8/19/2008 4:45 AM (GMT -7)   
Wow! Thank you everyone! Got some good ideas here.

Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/19/2008 9:58 AM (GMT -7)   
When I woke up this morning (kind of musical...) I remembered seeing a product advertised on Jini Patel Thompson's web page called Fissure Heal. It is found here: http://www.imixnaturals.com/
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