I have rectal issues. Every time I go #2 it hurts, from just a little bit to about a level 4 out of 10. This is down from the level 25 pain it was before Remicade when I had a fissure/fistula (jury still out on that one). Other than the immedaite pain I go on about my life and am very active. However, the pain is enough that I get up early enough so that I can sit in the bath for awhile. Plus, if I ever needed to go poop during the day at work I'd hold it because the discomfort would be tough to live with at work.
I don't have the fissure anymore.I think I have some inflammation that is up and down depending on whatever I ate.
My question is, since I'm dealing with the pain and it's nothing like what it once was, I'm being treated with Remicade, should I just leave well enough alone? My options are getting many more painful probes and probably being given the choice for upping my dosage or some macabre surgery.
My GI says never compare my pain with someone else, but I kind of feel like since I'm nowhere near as bad off as a lot of y'all that I should just chill, be thankful and just keep dealing with it as I have. But that little voice keeps telling me I'm so darned close to normal, what could be done to make me 100 percent?
Your ideas? Thanks.
Bad fissure Feb 2005, still have it January 2006. On Pentasa and Imuran 100mg. Some slight swelling and ulceration of terminal ileum. No other symptoms. Now on Remicade!