For the most part I would say I am as normal as I can hope to be with this disease. I went 10+ years sick and undiagnosed so I had A LOT of damage that couldn't be undone. I did have a bowel resection July 07 and that combined with the remicade let's me live a fairly normal life. I am pregnant right now so I have other things going on with my body, but I mostly eat what I want and can do all my normal activities. I still have "d" but I only go 3-5 times on a BAD day..on a normal day maybe only once or twice. I have little to no pain 99% of the time. There are complications that can arise from taking a med such as remicade. I am sure that your GI gave you literature on it or you have done some research yourself. It sounds scary and can be in rare cases, but FOR ME it was worth it. Obviously because of the way it affects your body/immune system you have to be MORE careful about
getting sick, ect. I have gotten almost flu like symptoms after every infusion, it lasts about
3 days then I get back to normal. I feel like that's a small price to pay considering the relief I have gotten.
I hope it works as well for you as it has for me, but there is no guarantee with any meds. Be optomistic, watch for signs of problems and stay on top of it, give it time to work without assuming failure and most of all - try to stay positive. I know it's hard with this disease and sometimes it's overwhelming, but as you can tell from reading here...there is almost always someone who has it a little worse than you at that moment.
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks