First Remicade

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NewToCD
Regular Member


Date Joined Jul 2008
Total Posts : 57
   Posted 8/18/2008 11:38 AM (GMT -7)   
So, I just scheduled my first ever Remicade appointment for next Thursday.
I am excited by the thought that I could start feeling really better soon but scared at the same time.

How long did it take most of you to start feeling better? did it take more then one treatment (i think my second treatment is 2 weeks after the 1st)
did u feel 100% nornal, like how you felt before this DD when the med was working?

Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 8/18/2008 1:02 PM (GMT -7)   
It took about 3 treatments (the loading doses, which is 6 weeks) before I felt a difference. Remicade has been my miracle drug so far, but every person is different.

GOODLUCK!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 8/18/2008 1:11 PM (GMT -7)   
Hi, it should take up to 3 infusions for you to notice anything. I have been on Remicade for 5 years. it is a miracle drug for me.
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


NewToCD
Regular Member


Date Joined Jul 2008
Total Posts : 57
   Posted 8/18/2008 1:19 PM (GMT -7)   
Thanks - Its great to hear that this has done the trick for you guys - I hope it works as well for me...:)

do u feel like as good as you did before being sick?

pr glo
Regular Member


Date Joined May 2008
Total Posts : 78
   Posted 8/18/2008 1:24 PM (GMT -7)   
I don't want to discourage you. But I will be having my 5th Infussion of Remicade in September I also take Methotrexate 5 pills weekly and Prednisone 5mg daily and I am still very inflamed and swollen everywhere and in excruciating pain I also have gotten different side effects soars in the inside of my cheeks, fevers, flu like symptoms achy bosy, sinus headches, swollen glands, soar throat, chest pain almost feels like upper respiratory infection keep an eye for any of these as if you get them call your Rheumatologist ASAP. I was alo told I would feel better after 2nd Infussion but everyone is different I hope you feel better right away. I am still battling this pain and swelling my rheumatologist says some people take time and I also have spoke to other people on Remicade and they tell me it took them 1 to 2 years to feel better. Good Luck and keep me posted on how you are doing. PR Glo  

NewToCD
Regular Member


Date Joined Jul 2008
Total Posts : 57
   Posted 8/18/2008 1:47 PM (GMT -7)   
Im sorry you are not doing well on the remicaid pr glo. Hopefully it will turn around soon as it seems a lot of people really swear by this drug.
Im going to keep my fingers crossed for now - hope for the best, prepare for the worst!

Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 8/18/2008 2:03 PM (GMT -7)   
For the most part I would say I am as normal as I can hope to be with this disease. I went 10+ years sick and undiagnosed so I had A LOT of damage that couldn't be undone. I did have a bowel resection July 07 and that combined with the remicade let's me live a fairly normal life. I am pregnant right now so I have other things going on with my body, but I mostly eat what I want and can do all my normal activities. I still have "d" but I only go 3-5 times on a BAD day..on a normal day maybe only once or twice. I have little to no pain 99% of the time. There are complications that can arise from taking a med such as remicade. I am sure that your GI gave you literature on it or you have done some research yourself. It sounds scary and can be in rare cases, but FOR ME it was worth it. Obviously because of the way it affects your body/immune system you have to be MORE careful about getting sick, ect. I have gotten almost flu like symptoms after every infusion, it lasts about 3 days then I get back to normal. I feel like that's a small price to pay considering the relief I have gotten.

I hope it works as well for you as it has for me, but there is no guarantee with any meds. Be optomistic, watch for signs of problems and stay on top of it, give it time to work without assuming failure and most of all - try to stay positive. I know it's hard with this disease and sometimes it's overwhelming, but as you can tell from reading here...there is almost always someone who has it a little worse than you at that moment.

GOODLUCK!!!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks

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