News on Rash,,,RRRRRRRRR

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Sniper
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Date Joined Feb 2004
Total Posts : 6518
   Posted 8/18/2008 9:11 PM (GMT -7)   
 Saw my regulor doc today and he looked over the rash, pulled some reference books and showed me pictures that look alot like what I have. He thinks its crohns related. This could explain why nothing gets rid of it. So it looks like crohns is not satisfied with eating up my insides,nooooooo, it has to chew up the outsides too. Just stinking lovely...One good thing though . Next time some idiot tells me I dont look sick , I can say see these arms you B hole,,,do they look healthy?????
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/18/2008 10:12 PM (GMT -7)   
If it is Crohn's related, you may be able to slow it down using vitamin E. I saw somewhere that vitamin E inhibits IgE which is the circulating immune globulin that triggers allergy-like symptoms in mast cells. Just add a 400 iu tablet to your vitamin intake.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/19/2008 5:16 AM (GMT -7)   
That really stinks, Sniper!!! But now that the Doc thinks its CD, did he have ideas about how to treat it???
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  No other symptoms.
Allergic to Remicade and Humira.  Currently on 6MP.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/19/2008 6:34 AM (GMT -7)   
I agree that sucks! I am curious about how your doc is going to treat it now too. Keep us posted.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 8/19/2008 9:27 AM (GMT -7)   

Sniper...I am really interested in what you are going to do for this now.  Did the doc give you a name for the condition so I can look up pics too?  I have been shown pics of pityasis, fifth disease and severla other conditions that match my skin issues.  I would love to have a name to throw out there when it happens again.

 

Take care


Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/19/2008 9:32 AM (GMT -7)   
Habs, what about hiddradinous supertiva in the early stages?????
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 8/19/2008 12:35 PM (GMT -7)   
Its just another CD curveball, James. Throw it back!
Sorry to hear it man.. Get better soon.


Matthew

mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 8/19/2008 1:01 PM (GMT -7)   
I wonder if you couldn't try rubbing some virgin coconut oil on it? My stepmom swears by the stuff for all sorts of skin issues for herself and our dogs. I would obviously try a small patch first to make sure there's no adverse reaction to it smilewinkgrin
Bad flare May '06 resulted in CD diagnosis-symptoms for 10 yrs prior.
Asacol: 2400 mg/day
6mp: 100mg/day
Prednisone: 10 mg/day
Entocort: 9mg/day


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/19/2008 2:20 PM (GMT -7)   
MJ8, in the world today, where would I find a virgin coconut??? Sorry guys so far I have only been told to use Sarna anti itch lotion , cold compress when it really itches, and stay away from hot water. Hes going to look at it again in two months and also will have done a little more research by then. Didn't really have a name just crohns related rashs. I will keep you up to date. May have to change my name to hound dog..
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 8/19/2008 9:03 PM (GMT -7)   
maybe YOU need the chicken foot!!
randynoguts 



     http://www.geocities.com/randynogutsweb/


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/20/2008 6:30 AM (GMT -7)   
Its called chicken Gumbo , without the feet,,Randy
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


vietvet
Veteran Member


Date Joined Jan 2005
Total Posts : 1510
   Posted 8/20/2008 9:58 PM (GMT -7)   
hey, try some rogaine on it! (looks like the preparation H tanked, huh?) maybe it's just hair tryin' to grow, you animal! smhair

vv

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/21/2008 11:53 AM (GMT -7)   
Hey VV, the rash is on my arms and legs,,,,,not my head. The nice thing about being folliclely challenged though is how fast I can get ready in the morning. I use to wash my face and comb my hair. Now I wash my head and comb my face. Odd how beards dont get thin. Maybe I need a face lift. Can they put my face on top of my head ? Probably not, but if they could,,,,things would be looking up...I could catch grapes tossed in the air better...hmmmm. Draw backs would be no way to wear a hat, sun glare, and worse of all,,,,,Birds.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Tj1
Regular Member


Date Joined Jul 2008
Total Posts : 71
   Posted 8/21/2008 4:31 PM (GMT -7)   
ya'll are just way too funny, Thanks I needed this. LOL
 DX'd with UC 2000.
 DX'd with CD 8-9-08
 
 allergic to Asacol
 Colazal made it worse
 Prednisone 20mg X2 daily   
 Flagyl 500mg X2 daily
 First Remicade infusion 8-9-08
 
 Toprol XL --  Hypertension
 Insulin   --   Diabetes 


vietvet
Veteran Member


Date Joined Jan 2005
Total Posts : 1510
   Posted 8/21/2008 6:38 PM (GMT -7)   
yeah, but a hat would certainly be an improvement!

vv

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/21/2008 9:34 PM (GMT -7)   
Now now VV, I have seen those old knobby knees of yours in pics.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

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