I have been recently diagnosed with Crohn's Disease within the past year. Have tried several medications including Prednisone, Flagyl, and Entocort. My gastro doc has now had me on Humira for about 5 months now. Even though it has relieved most of my "Crohn's" symptoms, I immediately started getting severe numbness throughout both of my arms. I had asked my doc about any correlation between the numbness and the Humira and he told me there was no relation and referred me to my primary care doc. Since then, after talking with several pharmacists from my specialty pharmacy, they have told me that no one has reported these symptoms. I have now been treated like a guinea pig. They have done an MRI of my spine, my brain, and an EMG. I have just today seen a neurologist and he told me he's 90% sure my "MS like" symptoms are directly related from my Humira. This is the first i've heard of it. I'm in Shock!!!!! And confused!!!! I have another MRI of my cervical spine next week with the contrast dye to check for lesions on my spine!!!! I can't believe this is the first time i've heard of the relationship between the two!!!! Any suggestions from anyone?????
I have been taking Humira for approximately 4 years and just recently was diagnosed with MS and Lupus. I am curious to know whether anyone else has been diagnosed with this problem. The rheumatologist had no idea that this could be one of the side effects, and I have numbing on my left side which I went to my family doctor for. Thank god she ordered an MRI which suggested MS. I was then referred to a neurologist and after more tests and another MRI (2hours) it was confirmed that I do indeed have MS. Also vitamin D levels are down so I have to take a supplement for that. I had numbing 2 years ago which everyone said was nothing and no tests were ordered, even though I asked for them and told them the family history of MS. They stated that this did NOT run in families and I would be fine. Apparently not. The neurologist said that any TNF blocking agents could cause MS. Why did the rheumatologist not know this? I am seriously upset that the doctors do not listen to patients when they have concerns then try to cover their butts. Anyone with further information would be greatly appreciated. Now I can hardly move because there is nothing else to take for the arthritis and the drug that he wants to put me on is not covered by insurance. Now I have pay for the MS meds and get the third degree by the office staff about being in pain and needing them to do something about it.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…
so true MMMNAVY. couldnt have said it better myself