Strange eye issue.

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Jen77
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Date Joined Mar 2006
Total Posts : 2691
   Posted 8/19/2008 1:54 PM (GMT -7)   
I know this isn't crohn's related, even though eye problems can be. The worrying certainly doesn't help my Crohn's!
 
Wondering if anyone else has this. So far just my 10 year old son is the only one that says he does.
 
For a long long time I've noticed when I look off to the side real hard, the eye looking towards my nose will see a round dark spot. Both eyes do it. I always thought it was just as far as my eyes will go and it was no big deal. It reminds me of when you rub your eyes and see light circles and stuff? I can even see them when my eyes are closed, but it's more of a light circle then. Anyone else get this? I have my eye appointment next Thursday (doc was on a three week vacation, I've been waiting over a month for this appointment). I'm hoping more people see this, would certainly let me worry less!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Just finished tapering off Prednisone *YEAH*, Asacol, Questran, Toprol XL (for high blood pressure).


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 8/19/2008 2:10 PM (GMT -7)   
Well, I've just tried looking hard L/R and I don't get a 'spot', though my nose does seem to obstruct my view a bit.

Something odd I've noticed when driving and fatigued, I tend to tip my head to the left a little bit. If I try to keep my head straight and look forward, I see double. If I tip my head to the left just a bit, and keep my eyes forward (basically looking a little to the right), I see just fine with no double vision.

I also would get (in times of extreme fatigue, from lack of sleep/rest) 'halos' or "Cs" of distorted vision in both eyes. Sort of like the precursors some people get with migraines, but I wouldn't get a headache, just that funky vision. If I laid down and closed my eyes for 10-20min, it would go away.

ALSO, I noticed with prednisone use, my vision has deteriorated to where I need (NEED) reading glasses to read the print in books and magazines. When I brought this up to my GI Dr, she said it was because I was approaching 40, not the steroid use. Well, when we tapered off the 'roids and I'd been off them for a bit, I happened to pick up a magazine and start reading an article, before I realized I was doing so without my reading glasses!

So, I do feel our condition and medications can play a big part in our vision. Bring it up with your Eye Dr, though I wonder if you and your son share this symptom if it isn't just a genetic trait?
I have an Eye Dr. appt next month and I'll share what he says if it is pertinent. Let us know what your Eye Dr says, too.
Heidi
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 8/19/2008 2:16 PM (GMT -7)   
Thanks 78SilvAnniv. I'm also prone to ocular migraines. I get zig zags and crazy stuff like that, it lasts usually 10 minutes or so. I typically don't get a headache with those either. I have brought those up to my doctor in the past, and said that's all that was.

I tend to wonder if this is some genetic thing my son and I have. Strange that he has it. My husband doesn't see it either, and I've had a poor friend of mine checking. She didn't find it either. Just hope it's nothing serious.

I'll be sure to share what my eye doc says!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Just finished tapering off Prednisone *YEAH*, Asacol, Questran, Toprol XL (for high blood pressure).


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 8/19/2008 2:34 PM (GMT -7)   
I dont see the spot. Let us know what the doc says. However, if I look real hard at politicians, I have a tendency to see red. Like the little boy on 6th sense,,,,," I see stupid people,,,and they all work in government. "
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/19/2008 4:29 PM (GMT -7)   
I don't see a spot if I do that..although I have been experiencing really blurry vision lately. Not sure why. Probably the medication and dehydration. Let us know what your doctor says..I'd be really interested to know.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2691
   Posted 8/19/2008 4:41 PM (GMT -7)   
Scary to me that no one else has it. Here I always thought it was just from making your eye go too far over. :( Wonder what could cause it? You'd think since it's in both eyes it wouldn't be something like retinal tears. Especially since it's been like that for sooooo long. Maybe it's just the way my eyes are?

All I know is it's gonna be a looooong week till I see him next Thursday.
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Just finished tapering off Prednisone *YEAH*, Asacol, Questran, Toprol XL (for high blood pressure).

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