joint pain!!!!

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grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 8/19/2008 3:49 PM (GMT -7)   
It's been a long time since I have been on but I sure could use some help. I was dx 4 years ago with crohns and since then I have been having a lot of joint pain in my fingers, the joints have gotten very large, I can not get my rings over my joints. I have had a bone scan a year ago with no sign of any arthritis. I have a slight positive ana but they have done the RA testing with that being neg. It is everyone of my fingers. I was also dx with breast cancer 4 yrs. ago and take something called armidex and I know this can cause joint pain but says nothing about the joints getting larger. So can there be the joint pain but not show arthritis on a bone scan, this is not in my head the pain is there. We have been trying to figure out if its the armidex or is it the crohns? I can not stop taking the armidex.
Thanks for any help you can give. My best to you all.
donna
 

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/19/2008 8:06 PM (GMT -7)   
Crohn's can cause RA, but it is recognizable as RA. I would guess that it is the arimidex. Sorry that I can't be more help...

chrissy27
Regular Member


Date Joined Oct 2007
Total Posts : 67
   Posted 8/20/2008 6:14 AM (GMT -7)   
I am having the same problem with my finger joints, wrists, and toes. My doc said it is just joint pain with the CD. No one has said anything about testing for RA. I'm just taking EXstrength tylenol and dealing with it b/c i don't have insurance (which is an issue in it's self.) I would say it could be a combo of the arimidex and CD. But I am feeling your pain...i will be praying for you...i know how you feel.

God Bless,
christina
28 yr old female, diagnosed with crohn's colitis with stricture of the colon april 2007, first fistula- october 07 :(  
joint pain and swelling
anxiety, depression
 
 
current medications:  Imuran 50 MG, Lialda 1.2g, , remicade every 8wks, Lexapro
 
 
But He said to me, "My grace is enough for you.  When you are weak, my power is made perfect in you." So I am very happy to brag about my weaknesses.  Then Christ's power can live in me.  For this reason I am happy when I have weaknesses, insults, hard times, sufferings, and all kinds of troubles for Christ.  Because when I am weak, then I am truly strong. 
2 Corinthians 12:9-10


grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 8/20/2008 7:33 AM (GMT -7)   

Chrisy and Keeper,

Thanks for the help, so the pain can be there without any of the medical back-up? I use tylenol and was given script for Ultram which does nothing. I get more out of the tylenol then the ultram. I guess there is a few more things they want to check. With fall getting close the cooler weather does not help much.

Thanks again for all the help.

donna


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 8/20/2008 9:14 AM (GMT -7)   
Donna, Crohn's causes what is called Crohn's associated arthritis. This is the exact same os Osteoarthrits or even RA, but there is no degeneration of the joints, and will not be found in bloodwork. I have it in my sacroiliitis, and my fingers. My fingers swell just like yours, and the pain can be excruciating. The sacroiliitis can get so bad I have to climb up the stairs on my hands and butt, thankfully not in a long time!

You can get osteo., which I also have. But you probably have the Crohn's assoc. arthritis. There's not alot you can do, because chronies can't take NSAID's. I have found a pair of arthirtis gloves that are near to miraculous though. They are Thermoskin Arthritis Gloves. You can wear them anytime, but I wear them at night while I sleep and they have taken most of the pain out of my fingers, because they cover over the top knuckle, which is where mine hurt the most. I highly recommend them!
150mg Azathioprine
Lomotil
Iron
Nexium 2/day
Fentanyl patch
Oxycodone
Baclofin
 
Crohn's, Fibromyalgia, Several bad discs, bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Stricture
2 resections
 
Stephanie
 
When I am weak, then am I strong


grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 8/20/2008 11:30 AM (GMT -7)   
Stephanie,
Thank you so much for the help. I will find these gloves and give them a try. Sometimes it hard to find the spots that don't hurt so I am more then willing to give these a try. I will let you know how they work out and thank you again.
donna

d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 8/20/2008 12:26 PM (GMT -7)   
You are more than welcome. Try Ebay first. You might save a couple a dollars!
150mg Azathioprine
Lomotil
Iron
Nexium 2/day
Fentanyl patch
Oxycodone
Baclofin
 
Crohn's, Fibromyalgia, Several bad discs, bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Stricture
2 resections
 
Stephanie
 
When I am weak, then am I strong


grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 8/21/2008 11:45 AM (GMT -7)   
Stephanie,
Thanks for the help! I found the gloves yesterday and tryed them last night. My hands were very stiff this morning and a few joints that hurt quite a bit but there was a few that didn't hurt so maybe? I will keep wearing them and see how it goes.
Hope you have a good day.
donna

d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 8/21/2008 11:54 AM (GMT -7)   
I'm so glad you got them! It will take a few days to see a real difference. I so hope they work as well for you as they have for me!
150mg Azathioprine
Lomotil
Iron
Nexium 2/day
Fentanyl patch
Oxycodone
Baclofin
 
Crohn's, Fibromyalgia, Several bad discs, bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Stricture
2 resections
 
Stephanie
 
When I am weak, then am I strong


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/21/2008 2:20 PM (GMT -7)   
This suggestion depends on whether you have bleeding or not (also prospective surgery). If you don't have that problem, you might want to try vitamin E. It might help depending on the cause of the problem. If it is the same mechanism as the Crohn's RA, vitamin E has been shown to reduce the production of one of the inflammation triggers. It might help, or it might not. If you don't have bleeding, it is a cheap and fairly safe option.

grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 8/21/2008 5:21 PM (GMT -7)   

keeper,

Thanks I will give it a try, do you know how much I should take, I have taken it in the past for cramping in the cafes of my legs. I am more then willing to try. Thanks for the help. Hope you have a good night.

donna


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 8/21/2008 5:49 PM (GMT -7)   
Its just another present from the disease that keeps on giving! Yeah, I have CD arthritis and Osteo too. IBD arthritis seldom shows damage like RA or Osteo, though. It tends also, to move around..

Sincerely,
Matthew

Linn
Regular Member


Date Joined Jul 2008
Total Posts : 118
   Posted 8/21/2008 5:59 PM (GMT -7)   
i had joint pain that was bringing me to tears, in my knees and my ankles...and it would move...we found it was associated with my prednisone taper. going a little too fast for what i think my body had in mind.

with this knowledge, i know now that on a really bad day, since tylenol doesn't really help (nor does the tramadol), at least prednisone can bring me some relief...
24-year old Crohny, dx'd at 16.
Deferred medical school till January 09 because of most recent flare

Currently take:
Tysabri
Pred 60 mg
Nifrex


grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 8/22/2008 4:37 AM (GMT -7)   
Linn,
Thanks for your reply, I'm sorry you were in so much pain. I hope and pray it is better for you. One more wonderful gift from this disease. My best to you all.
donna

Kittikatt
Regular Member


Date Joined Jul 2004
Total Posts : 422
   Posted 8/22/2008 8:25 AM (GMT -7)   
I've had swelling/pain in my ankles due to my Crohn's. I, too, am negative for RA.

I recently went to see a Rheumy and she said it's possible my swelling ankles fall in the family of Spondylitis. She said Spondylitis can affect any joint in the body and the pain can often occur because the tendon that is attached to the joint is inflamed causing the swelling and pain of the joint. There's a blood test for ankylosing spondylitis...HLA-B27.

Just thought I'd pass along that information I just recently learned about.
Diagnosed in October, 2004 at age 33.
36/F/SC
Current Rx's: Colazal (generic), Nexium (generic), Ferrous Sulfate, Librax, One-A-Day multivitamin, Align Probiotic, Omega-3 Fish Oil, Vitamin D, Vitamin A, Calcium-Magnesium-Zinc, Cranberry pills
Secondary conditions: mouth ulcers, joint pain, swelling ankles, extreme fatigue
Previous/occasional Rx's: 20mg Prednisone taper, Flagyl, Levaquin
No surgeries to date


yellowroseoftexas
Regular Member


Date Joined Jun 2007
Total Posts : 45
   Posted 8/22/2008 2:30 PM (GMT -7)   
I have the same problem. I have the blood test scheduled for r/a and thyroid, but will take some time to get the results.

My nutrionist told me to eat pig gelatin. It is found in horrible chewy sweets, but i have about 10 a day and have noticed a difference! Don't ask me, but it does seem to be helping. She said that it is highly asorpable in this form for people who have malabsorption problems.

I have managed to find some without any artificial sweetners, colors and the like.

Hope this helps.

Amy

Post Edited By Moderator (ivy6) : 8/22/2008 5:54:11 PM (GMT-6)


grammy
Regular Member


Date Joined Mar 2004
Total Posts : 340
   Posted 8/22/2008 6:05 PM (GMT -7)   
matthew, kittikatt, and Amy,
Thank you all for your input. I do have an appt. with a rheumy at the end of Oct. I don't know what good this will do if there is nothing that can be done. But I will go and see what she has to say.
Amy I have not heard of pig gelatin and I really am not sure I could take it:) I will check into it. I need to try whatever I can to help with the pain. My joints are all huge I can't even wear my rings but if I could at least take care of the pain I would be happy.
Thanks again for everyone help.
donna

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/23/2008 2:13 PM (GMT -7)   
Grammy - the vitamin E should probably not be more than 400 to 600 IU a day. The paper I saw that referred to the inhibition of IgE did not describe doses at all, so those numbers are just based on the safe doses that are usually taken. Even those doses will cause a bit of thinning of the blood, so bleeding does not stop as easily.
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