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Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/20/2008 10:53 AM (GMT -7)   
One of the guys I work with just came in with an article for "me" how peppermint oil can help alleviate my IBS!!!  I have given this guy articles you name it about IBD/Crohns.  I told him, I do not have IBS, I have Crohns Disease, two very different conditions.  Explained one is a functional disorder and the other one which is what I have is a chronic, uncurable bowel disease. 
 
This is the same guy who gave me "a great article" on The Raw Food Diet.  Yeah sure, right!!  Like I could eat that.  You just gotta laugh at people sometimes.  No matter how much you try to explain there are just people who won't get it.
 
 
 
 
 
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


sweetiowachick
Regular Member


Date Joined May 2007
Total Posts : 87
   Posted 8/20/2008 11:11 AM (GMT -7)   
Ha, raw food diet and Crohn's NO WAY! LOL. Thanks for posting that guy sounds like a total idiot.
*21 year old female
*Diagnosted with Crohn's Disease May 22nd,2007
*8 inches of small,3of large intestens & apendex taken out 5/22/07
*Another surgery to have infection/absess drained 6/13/07
*Hospitalized a total of 16 days withen one month
 


inflamed
Veteran Member


Date Joined Nov 2005
Total Posts : 1340
   Posted 8/20/2008 11:11 AM (GMT -7)   
Wow Nanners. That must get annoying. Another reason I wish they'd just rename IBS. People don't realize the huge difference in that one letter IBD to IBS. And the raw diet-- OUCH.
Currently in remission!


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/20/2008 11:20 AM (GMT -7)   
When most people bring you an article though it is because they care, not because they think you are a big baby. But I agree that it can get annoying when people think the solution is so simple.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


kam#7
Regular Member


Date Joined Jun 2008
Total Posts : 125
   Posted 8/20/2008 11:40 AM (GMT -7)   
Yes - very annoying. It is kind of like when people feel compelled to ask you detailed questions about your diet or they tell you that "Such and such food bothers me" or "I have a sensitive tummy too"

Of course, most of them care, but it is hard not to get aggravated. I just keep telling myself that people are just trying to relate and be kind, cause they don't know what else to say.
KAM

35 year old female - Diagnosed w/Crohn's 2002 - Surgery 2004

Currently taking: Pentasa, Entocort, Imuran, Immodium, Zoloft, Wellbutrin, Seroquel


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 8/20/2008 11:42 AM (GMT -7)   
Yes, this can get very annoying. I usually just chalk it up that the person cares and is trying to help me..... but, it gets very frustrating trying to explain the difference over and over again.....
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2690
   Posted 8/20/2008 11:49 AM (GMT -7)   
My MIL is like that. I think she means well, but it drives me nuts!!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Just finished tapering off Prednisone *YEAH*, Asacol, Questran, Toprol XL (for high blood pressure).


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/20/2008 11:50 AM (GMT -7)   
Yeah its funny with this guy. One of our posters had posted an article he wrote that was put on Newsweek.com about what his life and diet were like with Crohns awhile back. It talked about his life with Crohns and how we want to eat healthy, but sometimes the best we can get down is some plain rice or pasta, things like that, not healthy, but at least it sustains us some. Two days later after I had given a copy of that article to this guy, he gives me the Raw Food Diet handout. I was like did you not read what I just gave you. Hello????? Anybody in there? I know he means well, but it really is frustrating no matter how you try to educate people, they just don't get it.

I too wish they would rename IBS. Argh!!!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


karendee
Veteran Member


Date Joined Mar 2007
Total Posts : 1642
   Posted 8/20/2008 12:19 PM (GMT -7)   

The article would annoy me too... sounds like you really tried to let this guy know what CD is all about and he does not get it. Many people don't get it.

I do think the IBS vs. IBD is to similar and cane confuse some.

A wife of a cousin of my Hubby's has IBS. I am waiting till I hear some crap from them. I will educate them politely but in m mind want to hit them. I doubt many IBS people give themselves a shot every 2 weeks or poop blood or have more frequent colonoscopies. I don't know much about IBS though. I do know one difference the last letter, ours stands for disease. Big difference in my mind.

 

Karen


 ...

Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam 

 


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/20/2008 12:58 PM (GMT -7)   
That does sound rather irritating. I have different people in my family who still think poor diet is how you get Crohn's. That wouldn't really explain me then considering I ate really healthy food. Oh well.
I wouldn't take IBS lightly though. My step-grandfather was diagnosed with it after getting down to 87 pounds as POW in Korea. He has absolutely no normal BM days. He's either really constipated or he has horrible diarrhea in addition to a lovely laundry list of other digestive problems. Just one from the other and no variation as well as having to take a lot of medications much like those of us with IBD. IBS is not any more fun to live with, and it doesn't simply disappear with medication...it's very horrible..who can say which is worse? Although it seems pointless to even try. It's just sad that anyone has to have either of them :( I hate these things..
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 8/20/2008 12:59 PM (GMT -7)   
My boss has IBS and thinks she can understand what crohns is like. Not to denegrate someone with IBS, but they just aren't the same to live with.

The next time this guy has an article, I would refuse to accept it saying "I'm sorry but you only provide me with information on a completely different disease than the one I have. I only read artivles about my disease not that syndrome"
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 8/20/2008 1:15 PM (GMT -7)   
One letter, & no one can tell them apart. Same old same old. I try to refrain from using IBD when discussing this..

Matthew

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/20/2008 1:18 PM (GMT -7)   
I agree with you Matthew. I always say Crohns Disease because I don't want anyone to confuse the two, but still they don't get it. What I miss work just because I have a simple tummyache???? I only wish it was that simple. Heavy sigh!!
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 8/20/2008 1:26 PM (GMT -7)   
Nanners, next time hand him an article on erectile dysfunction . . . in front of the whole office . . . and tell him you hope it helps him.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/20/2008 1:40 PM (GMT -7)   
Hahahaha!!! That's a great idea MikeB.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/20/2008 2:34 PM (GMT -7)   
ya, caring people can be annoying at times.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


bentwistle
Regular Member


Date Joined Jul 2006
Total Posts : 330
   Posted 8/20/2008 2:59 PM (GMT -7)   
I was explaining to a co-worker my condition, and I used the IBD term. She immediatly told me she suffers from IBS too and wouldn't stop talking long enough while she described her symptoms for me to say I don't have that. I tried to correct her - but she wasn't listening. She's probably told other co-workers that my problem is IBS!!! I agree with you that it's annoying! I've also heard every home remedy there is out there from concerned people...but they don't understand the disease.

FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 8/20/2008 4:05 PM (GMT -7)   
Just hand the article back to him and say "that looks like a good article for someone who has IBS. Do you know someone who has IBS?" Maybe that will jar his brain so he can listen to you better.
Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  No other symptoms.
Allergic to Remicade and Humira.  Currently on 6MP.
 


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10392
   Posted 8/20/2008 4:38 PM (GMT -7)   

I usually post on the UC forum, but who can resist a comment on this topic?

I usually explain the difference nicely once. The second time, or if people don't pay attention the first time and keep nattering on, I smile very sweetly and say something like "Oh, but IBS causes cramping and irregularity. UC causes chronic bloody diarrhea."

Something about that phrase - bloody diarrhea - seems to back all sorts of meddlers off.  devil


Judy - Southern US 
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/20/2008 4:44 PM (GMT -7)   
lol Judy...so true...also projectile vomiting is useful too
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


LuckyStar01
Regular Member


Date Joined Mar 2008
Total Posts : 54
   Posted 8/20/2008 8:56 PM (GMT -7)   
Yes annoying: Anyways everything I have read about any of the mint extracts are not good
for any digestive issues Crohns, IBD or IBS. In fact it worsens them. They try to help.

I had a co-worker say once " I think my son is being diagnosed with what you have what is that
you have?" I turned and walked away.

I love the post because I am learning and am guilty of screwing up IBS and IBD myself.
I got the Crohns down I started out with blood clots with no other symptoms then the D started and
bloody D started and someimes I have bouts of all three.
Diagnosed 2004 - Chrohns and UC - Currently on no medication.
Multiple other chronic illnesses and allregic to many things.

Wish upon a Lucky Star!


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 8/20/2008 9:24 PM (GMT -7)   
idea  Ahhh, at best they "ALL" mean well...I chalk it up to someone forgetting to "pay the light bill" if you know what I mean.  smilewinkgrin

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/21/2008 7:40 AM (GMT -7)   
Hi OK here goes !!!! I have lived with IBS for many years and just because I now have Crohn's disease doesn't mean that I didn't have problems and are you all 100% sure that you didn't start out with IBS in the first place ? Have you 100% info stating that it didn't. I appreciate anyone's interest in my disease weather they have a flu ,gramps,IBS Colitis.What I mean here is that not everyone has crohn's there is still alot in life we don't know about . In helping others we help ourselves, threw just taking a moment to talk to others .If you feel like someone is attacking you then your on the offensive >>> relax>> lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/21/2008 8:04 AM (GMT -7)   
Well Gail I for one know for fact I have never had IBS, always has only been Crohns. Was pretty healthy before my diagnosis and my symptoms and diagnosis alone has proved that. But I don't get where you are talking about people getting offensive and all that. No one has been offensive. My post is talking about how no matter how you try to educate people, some people just don't get it. I was just sharing a point I believed many of us could appreciate living as we do with this DD. It is more of a funny than anything.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/21/2008 8:18 AM (GMT -7)   
Hi Nanners I guess what I am talking here is that it is only people's nature to want to comfort. Some people get really offensive when they hear IBS and get uptight .Some peope with IBS will develop crohn's is it not more humane for us to be able to talk about both without getting upset. Your friend is only suggesting and it seemed to me trying to help.Glad you have not taken his comment to a more personal level where you felt on the attack. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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