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Regular Member

Date Joined May 2007
Total Posts : 87
   Posted 8/20/2008 1:15 PM (GMT -6)   
Sometimes I get pains in random places. Like the other week for a couple of hours I had this pain in my neck, it wasnt horrible or anything. But it was on the right side a couple inches under my ear. And i've had other strange pains, is this all part of Crohn's or i've also suspected I may have fibromyalga... what do you guys think? & what exactly is Fibromyalga?
thank~Jill turn
*21 year old female
*Diagnosted with Crohn's Disease May 22nd,2007
*8 inches of small,3of large intestens & apendex taken out 5/22/07
*Another surgery to have infection/absess drained 6/13/07
*Hospitalized a total of 16 days withen one month

Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 8/20/2008 2:21 PM (GMT -6)   
I have Fibro. Fibro is an all body ache, frankly. You feel much like when you have the flu and your whole body aches. You feel like all the joints are inflamed. Muscles, joints, bones, soft tissue, tendons. Everything hurts all the time. Insomnia goes with it too, and terrible headaches.

What you describe sounds pretty much like typical Crohn's. Remember, your antibodies are fighting all the time to get rid of, well, your body! Crohn's causes your white blood cells to think your body is a vrus, so your body fights your body.
150mg Azathioprine
Nexium 2/day
Fentanyl patch
Crohn's, Fibromyalgia, Several bad discs, bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Stricture
2 resections
When I am weak, then am I strong

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/20/2008 2:28 PM (GMT -6)   
I agree it does sound more like the Crohns pains. It moves around all the time. One day your knee will hurt, the next your wrist, the next day your hips etc.

I too have Fibro, and that pain to me is like a burning pain. You usually have some trigger points like in the wrists, neck, shoulders, elbows, even your feet. At least that is how my Rheumy diagnosed me. I also have Osteoarthritis and I can always tell when its the arthritis pain vs the Fibro pain because the arthritis it just aches really bad and the Fibro is a burning pain. At least it is for me.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.

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