Hi my name is Shelley. I am 34 and was recently diagnosed with crohn's for the second time.
The first time was when I was pregnant with my 4th child. Obviously they could NOT do a scope. Shortly after delivery they did though. I don't think they found anything. BUT...that was after months on Prednisone (40mg) and I couldn't taper or the symptoms returned. I was on Asacol also then. I had so many difficulties with that pregnancy. After them finding nothing, I went to a different doctor and he did another scope (a month after the first). It was actually my 3rd in my life. I have had tummy/gut issues my whole life. He said, "oh you jsut have IBS".
Fast forward 4.5yrs (yes I'm lucky) the blood and mucus started again. I got in to the doc and he ordered a scope (#4). They found lots of inflamation and did biopsies. He found colitis and put me on pentasa. When the biopsies came back he wasn't 100% sure. I guess since Iw as reactign to meds, gave me a crohn's diagnosis. My mom has crohn's. She had a resection RIGHT after she delivered me.
The pentasa seems to work somewhat, but it is starting to come in cycles. Of course it hasnt' been super consistent up until now. It just clicked. A week before my period the pain comes. I ahve endo too, so I don't like to have MORE pain around that time. So for two months it has been worse. I mostly get the PAIN, not the runs. The painis hard to explain, I bet it is different for everyone. Mostly it is in my back and radiates to the front (similar to back labor). The first time I experienced this i was on a birth control pill (NOT AROUND MY PERIOD) the Gastro ordered a cat scan! Found nothing. Blood tests show nothing. I appear FINE.
I am currently on day 10 of the pain and day 6 of my period. This has been the worst pain so far. It has lasted the longest too. I have 5 kids (10-2) and a husband that works long hours. I CAN'T be down like this.
Fortunately or UN, I see the gastro tomorrow. I HATE meds. I am a natural remedy girl and have nothing to help. I can't do pain meds...I need to be awake!