Hello! This is my first time posting on here so forgive me if I ramble.
I am currently taking entocort and LOVE it. I have not experienced any side effects. I've never felt better! I was diagnosed in 2007 and after a round of Prenisone my doctor put me on Entocort (3 pills a day.) I eventually got myself down to one pill a day with wonderful results.
My problem now is they want to get me off that one pill and nothing seems to be working. I tried 6-MP and ended up in the hospital and I just tried Pentasa and that sent me into a flare. I just don't know what to do! My doctor said it wouldnt be the end of the world to stay on one a day but he preferred a non-steroid drug for my maintenance therapy. I feel like such a failure because I can't handle any other medicine besides the Entocort. My next resort are the infusions of remicade, humara etc...I just don't even want to go there.
Has anyone been on Entocort for long periods of time with success? I want to stay on it forever!
Beth--- Florida, Diagnosed with Crohns April 19, 2007
On 1 (3mg) Entocort a day - trying other medicines with no success
Should really start taking vitamins.