Humira and Tested Positive for ANA Lupus

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mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 8/21/2008 12:15 PM (GMT -7)   
Well, I got my blood test results today... looks like I have Lupus now.... I've been on Humira for 6 months, and they are thinking that it's the meds. I'm scared now.

For any of you who got drug-induced Lupus... how did you know it was drug induced and not regular Lupus? I'm so confused!!
Crohn's Diagnosed in 1996.
Currently on Humira - One syringe every other week.
Now in remission.
Have tried Prednisone, Pentasa, Flagyl, Cipro, and Imuran in the Past - they aren't effective now.
Hospitalized only once, but that was enough!


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/21/2008 6:12 PM (GMT -7)   
Hi There are some people here who have it and am hoping they will see your post. I think it is supposed to be reversible with the stopping of Rem. but I am not sure . I would feel scared to . What did your Dr. say about it? Does he want you to stop the Hum.? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 8/21/2008 7:35 PM (GMT -7)   
The rheumy wants me off Humira now. I'm just wandering what the GI doc will put me on next. I've been on everything you can think of.
Crohn's Diagnosed in 1996.
Currently on Humira - One syringe every other week.
Now in remission.
Have tried Prednisone, Pentasa, Flagyl, Cipro, and Imuran in the Past - they aren't effective now.
Hospitalized only once, but that was enough!


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 8/21/2008 8:38 PM (GMT -7)   
I developed lupus antibodies while on Remicade and then when I switched to Humira. I had a severe reaction to Humira after only 2.5 months and so stopped it. Usually the lupus antibodies will clear in 6-8 weeks after you stop the medication. My GI said that if a person develops drug induced lupus on one of the anti-TNF meds, then they are likely to on the others. Therefore, careful consideration should be given before you try another such as Remicade.

In my case the antibosies never cleared and I was recently diagnosed with outright lupus. This happens very rarely but does happen. I have no clue what your GI and rheumy will decide to treat you with next.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 8/22/2008 6:06 AM (GMT -7)   
mimik,
 
My heart goes out to you.   Good luck.   Being on Remicade for so long, that is my biggest fear.    Every time i have a sore joint i get paranoid.
 
**hug**  
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 8/22/2008 11:06 AM (GMT -7)   
MMMNavy suggested I get an ANA test because I had such a severe reaction to Remicade last year. I asked why, but I guess she didn't see the post. Can anyone tell me what to look for? I have fibro and so much going on I don't knoww hat to look for as to symptoms. Any help would be a blessing.

Post Edited By Moderator (ivy6) : 8/22/2008 5:27:49 PM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/22/2008 11:47 AM (GMT -7)   
Sorry I did miss it. While anti-TNT's doesn't do this to everyone (most people are fine), but Ides and myself have developed lupus after taking remi. (mine did not clear completely either, but luckly I found MTX shots (Not The Pills) that work pretty decently for both lupus and crohns, and so my ANA is down) So in case you do have a reaction it is something to check for. It is a wee little blood test. But if feels like you got hit (by a bus) and it hurts so much to move. It is hard to make it 5 feet.


Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 8/22/2008 12:50:23 PM (GMT-6)


mimik81
Regular Member


Date Joined Jan 2008
Total Posts : 88
   Posted 8/23/2008 12:42 PM (GMT -7)   
I started feeling extremely tired. Then, I got pleurisy in my chest, followed by constant joint pain, headaches, and anemia. After about 2 months of suffering with these symptoms, they did an ANA test. They found it to be positive, so no more Humira for me.
Crohn's Diagnosed in 1996.
Currently on Humira - One syringe every other week.
Now in remission.
Have tried Prednisone, Pentasa, Flagyl, Cipro, and Imuran in the Past - they aren't effective now.
Hospitalized only once, but that was enough!

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