Has anyone ever had their Remicade dosage/frequency LOWERED?

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Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 8/21/2008 5:56 PM (GMT -7)   
It seems as if I may be developing Remicade antibodies after 2 years.  My GI is ordering testing to see.  In the meantime, he is LOWERING my dosage/frequency from 10mg/kg every 4 weeks to 8mg/kg every 6 weeks to see if I feel any better.  It's not the bowels so much that is giving me a problem (I'm more constipated.)  It's joint pain, sinus infections, nausea, chills, sweating, etc.  He is thinking that by trying a lower dose less frequently, I might feel better.  We're going to give it a try.  Anyone else ever try this?
 
Thanks in advance for your time.  Blessings, Julie :-)
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 8/22/2008 6:08 AM (GMT -7)   
Keep us updated. I've stopped/started Rem twice in the past couple of years (insurance issues). I've never been lowered, only increased (because my weight increased 65lbs).
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 8/22/2008 12:20 PM (GMT -7)   
I'll let you know how things go......
Diagnosed with Ulcerative Colitis (Pancolitis) 10/25/05
New Diagnosis of Crohn's March 2006
Asacol 3 pills three times a day
Remicade 10mg/kg every 4 weeks
Prednisone 12mg a day
Imuran 75mg
Miralax as needed, Cortisone enemas as needed
Prevacid 30mg
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 

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