Distended - Hard stomach.

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spiceman
Regular Member


Date Joined Aug 2008
Total Posts : 51
   Posted 8/22/2008 9:02 AM (GMT -6)   
Hello everybody.
 
I have a few questions regarding my Crohns which I've been living with for the last 18 years. Hopefully some of you maybe able to help.
 
Now for the last 5 months ive been having a very uncomfortable feeling in my stomach which dosent seem to be getting any better. It feels like my stomach is very bloated - very hard and sometimes very noisy. I've had 2 colonoscopy done in the past with the most recent being last October. The results showed that I have a stricture located in my ileum. In the past ive had blockages which have left me in agony for around 5-8 hours until the food passes. The last blockage I had was in March and ever since then I've been dealing with this distended-hard feeling. Saw my GI last week and all he could recommed was for me to chew my food again and again. He also said to avoid Nuts, skins, stalks, fruit and raw veg. However the pain is still here with me everyday.
 
Do any of you people have the same or similar symptoms. The GI has always said to me that he wants to avoid resection of the illeum because of the recurrence problem.
 
I'm at the point now where I dont know what to do, I've followed everything he has said and aslo stuck to a low residue- low fibre diet. The medication im on is 6 pentasa, 150mg AZA and slowly been tapering of prednisolone.
 
Is there anybody on this forum with good results regarding resections. Its seems I read so many post of people having nurmerous resections once the first is performed. Im just sick of having this pain all the time.
 
Thanks for reading.

CDin MN
New Member


Date Joined Aug 2008
Total Posts : 1
   Posted 8/22/2008 11:44 AM (GMT -6)   
Hi Spiceman.
 I have had Crohn's for 30 years and have had your symtoms on occassion. What works best for me is Beano (it's natural) and Zantac. I think sometimes people over pathologize because they have CD and don't realize they might be experiencing, dare I say it, symptoms similar to constipation (which by the way is a symptom of the same animal we all have). I also suggest laying off of all cheap cheeses (pizza, etc.). Aged cheese is fine because it contains no lactase. Yogurt is great because of acidophilus (good for the gut). No fried anything. No alcohol. No cigarettes (believe it or not it loosens the bowels). Carbonated beverages have been known to cause havoc for many (even that fizzy water stuff).
In my experience, it may be good to keep nagging your doc until you feel better....or find a new doc. Recently, I've started to think that vitamin D deficiency is a culprit for many of us and while supplements are convienent, maybe being outside, even in the shade, is a better source. I get
accupuncture from my chiropractor because then my insurance pays for it and it helps with my whole body which I am convinced is connected to my overall good health.
I hope something I said is of use to you. Peace out.
 
DX Crohn's Disease 30+ years ago; re-diagnosed with Microscopic Colinitis when scan was clear (so ridiculous) Take 3-6mg of Endocort. Have taken predisone, sufa drugs and asacol in the past. One doctor had me on Perigoric (an opiate. Didn't help the CD, but I didn't care). Present doc told me to start smoking marijuana...I don't because I don't like it, but there is research confirming results.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/22/2008 1:07 PM (GMT -6)   
Hi I have had a sucessful resection and I was having the same as you waiting hours to have the pain subside .Finally no matter what I did I kept obstructing. My resection was in the TI and some fistula's were removed in that .A second opinion doesn't hurt if you feel you need one. How long has these painful episodes been going on? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


spiceman
Regular Member


Date Joined Aug 2008
Total Posts : 51
   Posted 8/22/2008 1:49 PM (GMT -6)   
My stricture is also in the TI and I also have fistulas. With my condition I have had many blockages since being diagnosed, maybe 20 times or so. But once the blockage passes I feel fine. But what is strange this time is since i had the last blockage in march my belly has never felt normal - Just feels so hard, bloated and noisey and uncomfortable. Gail the blockages have been going on for the 15 years I suppose but like I said something feels different this time.

Gail, when and where did you have your resection done?

Thanks

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/22/2008 3:54 PM (GMT -6)   
The rigidity is a worry. You may have pancreatitis or possibly an enlarged liver. Take this one to your doctor.

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/22/2008 5:06 PM (GMT -6)   
Why are you only on 6 Pentasa? I take 16 of the 250's which would be 8 of the 500's.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


spiceman
Regular Member


Date Joined Aug 2008
Total Posts : 51
   Posted 8/22/2008 5:42 PM (GMT -6)   

Hi fitzy.

I take 6 500mg pentasa and 150mg imuran. Im now worried I have pancreatitis!!! What's going on....???.

 


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/22/2008 7:30 PM (GMT -6)   
Hi My resection was in Jan. of this year I had some of my TI removed and I had a fistula going from large to small bowel. Another fistula that had healed to abdomen. They resected in 2 places and put a few stiches in one place,15 years is a long time for you to go on like that. I know I got bloated and it stayed that way the meds weren't helping. I also had alot of gurgling that got worse as the day went on and it was starting to frighten me. At night I would have a little D in my sleep and had to get up this went on most of the day. I was getting hardly able to look after myself. My small intestine had become very enlarged. Something I didn't know would happen. If you are concerned go to emerg. I had been going off and on for a year .Hope this helps you and ask questions if you need more help, I couldn't have gone on any more like that. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


becellea74
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 8/24/2008 7:04 AM (GMT -6)   
I myself am exsperienceing the same thing i have allready had 2 surg on sml b and my illium removed to as soon as i eat it starts mainly at night and in the morning after a bm it hurts for abit iam on 10m pred 50 imuran and mezasal also been taking tramadol for the pain and now worried i wont get of them..
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