Humira and Hair Loss??

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Metallichic
Regular Member


Date Joined Oct 2007
Total Posts : 76
   Posted 8/23/2008 11:45 AM (GMT -7)   
Hello all,


I have been losing my hair since starting steroids 5 years ago, and it got worse for the 2 weeks after my Remicade infusions, but now that I'm on Humira, it's falling out constantly, in very large amounts. I have very little left to even make a full ponytail, and in pictures, I can see how much of my scalp is visible, it's very disheartening, especially for a former hairdresser! Is this something others have experienced with Humira, and if so, is there anything your doctors have told you could help? Thanks!

Post Edited By Moderator (ivy6) : 8/23/2008 5:28:36 PM (GMT-6)


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 8/23/2008 1:57 PM (GMT -7)   
Looking at your medication list, you are taking several medications that can cause hair loss. Prednisone, Plaquinil, Asacol, and the anti-THFs [Remicade and Humira] all can cause hair loss. How much folic acid are you getting each day? How much B12?
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 8/23/2008 2:09 PM (GMT -7)   
I'm on Humira and Asacol and haven't lost as nearly as much hair (hardly noticiable) as when on Prednisone.
~april
 

 



LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 8/23/2008 6:12 PM (GMT -7)   

I am so sorry to hear of your hairloss and boy can I relate!

I have been on and off steriods for almost 8 years and have taken every Crohn's med known to man. I really started losing clumps of hair while I was on 6-MP and Remicade. I have been off Remicade and 6-MP for almost 3 years and have been on Humira for almost 2 years. When I stopped the 6-MP, the hair loss really slowed down, but I didn't seem to be getting any regrowth. My hair also looked horribly fried and damaged. I asked many doctors for suggestions....they just didn't seem to think that my hair issue was of great importance and told me to stop being so vain! :(

Last January I was so depressed over my hair, that I resorted to hair extenstions and I started taking Biosil drops and Biotin. Wow! My hair is growing back (along with my nails) and looking so healthy and much thicker. Every time I take the extensions out and put in new ones, I can really see a difference.

I wish you the best!

 


Metallichic
Regular Member


Date Joined Oct 2007
Total Posts : 76
   Posted 8/24/2008 10:29 AM (GMT -7)   
Ides, I'm taking 1000mcg of B12 and 800mcg of folic acid....2 a piece per day, she never really gave me an exact amount to take, just said, read these and take this please lol.

I've been on Asacol for almost 6 years now, Entocort almost as long, and prednisone for about 5 years, and I've had some hair loss with those. Moreso with Remicade, of course, but NEVER like this. At this rate I will have no hair in a year.

Lisa, I wish I could do hair extensions! My husband and I were just talking about this last night. The worst 2 bald spots are right smack dab in the front of my head and right on the side, both very visible, where I don't really know if I can put anything in there. I can't afford really quality extensions, I was thinking like the Jessica Simpson ones in Sally Beauty Suppy lolol. It's sad! I'm glad you are having luck though! My hair also looks fried and frizzy, it was always very silky and shiny.....it's terrible. I will look into those Biosil drops and Biotin though, thanks!
Shannon
Crohn's Disease/Colitis (diagnosed 12/02), Diverticulitis (diagnosed 6/07)
Positive blood test for wheat allergy, (11/07); Positive capsule endocopy showing Celiac disease (6/30/08), also allergic to egg white protien.
Taking Asacol, Prednisone, Humira, NuLev, HCTZ, Lisinopril, Cymbalta, Prevacid, Zantac, Ambien, Lomotil, Soma, Plaquinil, Frova, Premarin, Entocort, Xifaxan, Creon, Ultracet, Vicodin, Questran powder/Carafate suspension, and LOTS OF VITAMINS AND SUPPLEMENTS!


LisaLee37
Regular Member


Date Joined Apr 2005
Total Posts : 384
   Posted 8/24/2008 1:05 PM (GMT -7)   
Before I started the Biosil and Biotin drops I also had bald spots and couldn't have hair extensions without them showing. I acutally found a reasonable wig shop and found a nice wig for about $45.00 that I wore when I went out in public.

After about a month of using the Biosil and Biotin, the bald spots filled in and I was able to switch to the hair extensions. The first one I bought was Jessica Simpson :).....the hair wasn't bad....just a pain to put on. I now have permanent ones that are a little pricey! Since my hair started falling out I stopped getting haircuts and weaves, that is how I jusfiy the extenison. What I would pay in one year of color and cut covers the cost of my extensions for the year.

By any chance are you blonde? I have a really nice clip in piece that I have only used once. I would be happy to send it to you if you are interested! :) Let me know.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 8/24/2008 1:41 PM (GMT -7)   
Hair loss is listed as a side effect of Humira. I suggest that you talk to your prescribing physician since this became significantly worse since you started the Humira. I'm not sure if there is anything to counteract the problem.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, and a host of other medical problems.
 


Metallichic
Regular Member


Date Joined Oct 2007
Total Posts : 76
   Posted 8/24/2008 1:41 PM (GMT -7)   
Thank you so much! My hair is black, but thanks for the offer! I will definitely look those products up NOW then, and maybe I can start them and be able to do something with this hair, or lackthereof! I've seriously thought about ust shaving it off and buying a wig, Britney did it, why can't I?? :P
Shannon
Crohn's Disease/Colitis (diagnosed 12/02), Diverticulitis (diagnosed 6/07)
Positive blood test for wheat allergy, (11/07); Positive capsule endocopy showing Celiac disease (6/30/08), also allergic to egg white protien.
Taking Asacol, Prednisone, Humira, NuLev, HCTZ, Lisinopril, Cymbalta, Prevacid, Zantac, Ambien, Lomotil, Soma, Plaquinil, Frova, Premarin, Entocort, Xifaxan, Creon, Ultracet, Vicodin, Questran powder/Carafate suspension, and LOTS OF VITAMINS AND SUPPLEMENTS!


staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 8/24/2008 5:50 PM (GMT -7)   
Okay, I'm scared now. I have been losing my hair but I thought it was from tapering of prednisone. I started Humira Feb 4, 2008 and I didn't start losing my hair til July after I decreased my pred dose to 5 mg. I told my Dr. and he seemed to think it was from the pred. also. I am taking Biotin also and usin Nioxin hair products.
34 year old Female
Diagnosed with CD 1993
Currently taking Asacol, 100mg Immuran, 5 mg prednisone (tapering), Humira injections twice monthly since Feb 08, Fish Oil, Probiotics, Multi Vitamin, B-12 tablet, folic acid


sarahall
New Member


Date Joined Sep 2010
Total Posts : 1
   Posted 9/12/2010 10:07 AM (GMT -7)   
I have just come across this group as I was searching for hair loss & Humira and have been reading the posts. I have noticed a lot of thinning since starting Humira about 3 years ago. I saw that Biotin and Biosil have worked for one person and wondered how much of each of these supplements I should take. I have been taking Biotin 2mg twice a day for over a year but haven't really noticed a difference so maybe it is not enough or perhaps the Biosil would be more effective.
My second questions is hair loss/thinning a side effect of all anti-THFs or just Humira? I gave Simponi a try earlier this year but it wasn't as effective as Humira for my psoriatic arthritis. I also have a host of digestive issues but have never seen anything before this that suggests it might be related to psoriatic arthritis.

Lori M
Regular Member


Date Joined Aug 2010
Total Posts : 65
   Posted 9/12/2010 6:31 PM (GMT -7)   
My hair is falling out by the handfulls as well.  I get so depressed every morning after my shower when I pick up all the hair that has accumulated in the drain.  Does it stop as your body gets used to the meds or does it just continue until you're bald??  It really has me worried.  Hubby kind of laughs and points to his bald head and says he'll love me whether I'm bald or not.  That's sweet, but it doesn't help.  I'm taking 800 mg of folic acid and lots of vitamin D but it doesn't seem to be slowing down.  I'm definitely going to look into the Biosil and Biotin!
46 years old. Diagnosed with Crohn's August 3, 2010

Well the first round of drugs didn't work. Back up to 40 mg of pred, 150 mg of Aza and 3600 mg Asacol per day. Hoping this is the combo that works!

Started prednisone on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week) Asacol 1200 mg 3 times a day

Lots O D3, Calcium, Probiotic, Folic Acid

mlatida
Regular Member


Date Joined Aug 2010
Total Posts : 129
   Posted 9/12/2010 10:07 PM (GMT -7)   
Make sure to take chewable vitamins or liquid supplements. You might not be absorbing vitamin pills well. There are also hair conditioners that have nutrients in them. You could slather some into your scalp to try to absorb some nutrients into your roots. I just checked online, and it could also be due to protein or iron deficiency. What does your doctor have to say about it? Good luck! It's really sweet that your husband is really understanding.
26 years old. Diagnosed with Crohn's disease March 2008. Battled a C. diff infection from Summer 2009-Spring 2010. Have been dealing with a severe flare for the past several weeks.

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 9/13/2010 10:28 AM (GMT -7)   
My GI doc had mentioned to me to take zinc as well...I had had thick hair and had lost more than 3/4 of it...and if I had had had thinner hair, I WOULD have been bald...but when I don't take my zinc for a few days the hair will start falling out...

SaraOnThisSite
Regular Member


Date Joined Feb 2006
Total Posts : 211
   Posted 9/13/2010 11:39 AM (GMT -7)   
My hair has been falling out lately...I never knew Humira was a cause of that, I just assumed it was falling out because I'm so sick/lack of nutrients/etc.

I too have thick hair so luckily I haven't noticed bald spots yet...I'm really hoping it doesn't come to that. It's really embarrassing when clumps fall out in places other than my own home, like at work. Ick.
25 year old female, diagnosed in Aug '02 after being misdiagnosed with Lyme Disease for a year.

Have been on Prednisone, Asacol, Entocort, Remicade, antibiotics (cipro, flagyl, avalox, etc), and Mercaptopurine (even the lowest dosage was messing up my liver, argh) in the past.

Currently on Humira but isn't working, trying to figure out what to do next.

Ashyla03
Regular Member


Date Joined Oct 2009
Total Posts : 41
   Posted 9/15/2010 7:29 PM (GMT -7)   
I have hair loss with my humira too plus other side effects, but please report your side effects to the fda so the docs will listen to us. I am sick of being sick & having horable side effects with the drugs that are suppose to make us well. The drug companys need to know what we are going through. I think the side effects of humira are worse than what its doing to help me. ugh Plus I have mood swings like crazy

vls
Regular Member


Date Joined May 2005
Total Posts : 166
   Posted 9/19/2010 6:15 AM (GMT -7)   
I'm on cimzia now for 16 mos and my hair is fried.  I too thought it was from lack of absorption but now reading these posts, I'm blaming the Cimzia.  I've tried all the supplements too in every form and my hair is soo thin it's embarrassing. 

Carebear252
New Member


Date Joined Mar 2015
Total Posts : 1
   Posted 3/21/2015 8:58 AM (GMT -7)   
I have crohn's and was on Remicade until I had to go off of it for surgery to remove an mass in my small intestine that was causing all my troubles...

I went back on it after surgery and had an allergic reaction to it, now I am on Humira -started it in or around Oct - Nov. 2014 and am now suffering from hair loss due to using humira.. waiting to see a dermatologist but the waiting list is long... I have bald patches on my head where the hair has fallen out... it is itchy and a general pain in the ass. when I get an answer from dermatology I will update

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 3/21/2015 6:17 PM (GMT -7)   
I've been on Humira for 13 months, no more hair loss than usual...I'm wondering how long people have been on it (and other biologics) before they started having some hair loss issues (especially the bald patches yikes!)

The only side effect I get so far is terrible headaches but I'm also on weekly not biweekly shots.
DX with Crohn's Disease in 1991 shortly after becoming ill. CD was affecting small and large bowel & anus (perianal crohn's skin tags) & rectum for first 2 yrs of becoming sick, CD remained constant in colon (Crohn's colitis) & anus with anal tags, intolerant to oral meds. Currently on Humira (Feb 2014) once a week and B12, Vitamin A and Omega's daily. In remission but trying to combat IBS D/C.

Duffle
Regular Member


Date Joined Jun 2014
Total Posts : 302
   Posted 3/22/2015 2:22 AM (GMT -7)   
In all the rubbish we have to endure with this, hair loss just seems like the lowest kick in the teeth. Yep for anyone reading who thinks 'it's only hair get over it' ... Yes it is only hair and we are all well aware that in health terms is pretty minor. But psychologically it's a big thing... Gets me down out of proportion with what it actually is.

Alot of my hair and I departed company within a few weeks of stating Remi (infliximab) ... So I had it all cropped to an inch in length and died purple. Determined that if it was going it was on my terms. When I moved onto Humira it grew back ... But what I have is sadly frazzled and horrible. But I was relieved something came back.

Then I got new Osteoporosis drugs and off it went again ... This time I took the possibly stupid approach ... Hair over drugs.

Glad and sad to hear that I'm not alone with hair issues!

Dingleeire
Regular Member


Date Joined Feb 2012
Total Posts : 188
   Posted 3/22/2015 4:49 PM (GMT -7)   
Hi,

My son takes Humira, Methotrexate and Folic acid since November of 2014. Prior to that he had been taking Asacol and 6mp. Since he started in November he has grown back a full head of wavy hair, his hair was in very poor condition with many bald patches while he was on 6mp and Asacol. Needless to say he is delighted every time he passes the mirror he is fixing it.
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