well, I'm back up to 24 on the prednisone.. I was down to 4mg for a little bit.. that was exciting and my face was getting back to normal and I was losing the weight! I'm so angry.
My doctor thinks that I may possibly have a fistula. So, he kick up my steroids and threw my on a round of antibiotics-- whit out even checking. I don't think that my symptoms really match those of a fistula. I think one day last week, I had a low grade fever, there's no foul drainage although, for one day I just bled and bled. My bottom was so irritated that it would bleed when I wiped.. I think the only symptom that I really have that would indicate a fistula is right before I have to go to the bathroom there's this severs pain right around my anus.
I suppose he's assuming the worst and just treating as such. Which isn't such a bad idea.
He's already sent my file over to Seattle's Virgina Mason hospital where I would have the opportunity to meet with a specialist. I'm really excited about
that. I've been on the steroids for almost a full year now.. Hopefully I can get some answers there.
26 years old
Diagnosed 9/06 with Pancolitis. The diagnosis was changed 9/20/07 to Crohn's disease.
I've had flares in my mouth, stomach, large intestine, and the duodenum.
I currently take Humira 40mg bi-weekly, prdnisone 8mg (oh so close!!), methotrexate as a weekly shot, prevacid, celebrex, foilica acid, and.. I think that's it. myspace.com/kandice789