Getting much worse on Humira. Please Advise.

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 8/24/2008 7:02 PM (GMT -7)   
I just finished my CD starter pack. Day1 ( 4injections) - Day 15 (2 injections) - Day 30 (1 injection).
 
I started the first injection on  30mg of prednisone with little complications.; IM NOW UP TO 70mg of pred and have a complete obstruction!! Im in the worst pain ever and my large bowel is empty. Belly is hard and sore to the touch.
 
I know most of this was brought on by stress listen to this
1. Traveled to Spain with two kids ( flight anxiety)
2. got word my neighborhood was flooded due to TS Fay while overseas
3. Whitnessed a plane crash at Madrid airport while boarding my plane back to the states
4. Car broke down from water electrical problems upon arrival home
5. Cought strep throat on the plane.
6. Small bowel Obstruction now.
 
I know it takes at least 4 weeks to see results from Humira, but whats the longest it should take? This disease is ruining my life, I have to have relief soon.. smhair
 
 
 
 
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 8/24/2008 8:31 PM (GMT -7)   
=( I'm so sorry.

For me, I am in terrible shape anytime I'm overstressed, even with great medications. Obviously you have a lot to be stressed about! Once I get my stress down, it seems like the meds can take over...

I saw results from Humira within a few weeks but I didn't have the enormous amt of stress to deal with at that time that you have. You're working closely with your GI, right? And he/she knows where you're at right now?

staci100
Regular Member


Date Joined Mar 2006
Total Posts : 111
   Posted 8/25/2008 4:56 PM (GMT -7)   
It took me a full 6 weeks. At the six week mark my BM started changing for the good. I tried not to worry because the Humira people and my GI said it could take up to 12 weeks.
34 year old Female
Diagnosed with CD 1993
Currently taking Asacol, 100mg Immuran, 5 mg prednisone (tapering), Humira injections twice monthly since Feb 08, Fish Oil, Probiotics, Multi Vitamin, B-12 tablet, folic acid


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/25/2008 5:25 PM (GMT -7)   
Hi Just was wandering why you aren't in the hospital if your completely obstructed. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 8/25/2008 5:30 PM (GMT -7)   
Hallarious woman over 50
 
Why? I can starve myself for 3 days and take 120mg of pred at home. It always resolves in 3-4 days. My wife is a nurse. I can always have her throw in an IV if need be.
 
Ive been through it enough times, I primarly have obstructive CD.
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 8/25/2008 9:35 PM (GMT -7)   
redspot321 said...
Hallarious woman over 50
 
Why? I can starve myself for 3 days and take 120mg of pred at home. It always resolves in 3-4 days. My wife is a nurse. I can always have her throw in an IV if need be.
 
Ive been through it enough times, I primarly have obstructive CD.

You are stronger and braver than I! I have had what my GI referred to as acute blockages; aka, things that got stuck and after a few hours of cramping, crying, pain, and puking, they moved on out. I've never had a full obstruction that required surgery. I even had an acute blockage while in the hospital and they just gave me more morphine and cleaned up the puke. Lovely...

redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 8/26/2008 11:30 AM (GMT -7)   
Yep, its plesant. Nothing like vomiting things you ate....yesterday for breakfast!! It does make you feel alot better though.

I just sip water from a teaspoon, and treat the symptoms the best I can for a few days. If I ever run a temp or think I may have a perf or abcess I would go in a hurry.

I get Obstructions 6-8 times a year.
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/27/2008 5:54 PM (GMT -7)   
Hi Good your wife is a nurse just hope she can perform surgery if necessary. What is causing your blockages and where? You get an obstruction that many times in a year? ouch .Feeling any better yet? lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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