Ok..so for me CD has always been more pain and sickness...lots of big D...no surgeries.
Lots of weight loss..then big gains when in remission...
I can eat anything I want without any problems if something does cause a problem...then the next time I try it ...no porblem....there is is no constant to what may or may not affect me.
The last year I have been on Humira and holding my own...up to about 185 or 190 from 175. Maybe three very good days a week...lots of energy...no D (actually no bathroom trips at all except to pee) then by the fourth day I am so backed up that I am very uncomfortable that I feel real tired and bloated...followed by three or four days of evacuation that usually means 15 trips or more per day.
I throw several blood clots every week or two. Stool is somewhat formed but certainly not solid. Mild cramps 1/2 the time when I go. Next to no nausea.
NOW THE NEW EVENTS.....last weekend we had plans to have dinner with our sons in-laws...great people...felt fine all day Saturday...didn't really eat anything out of the ordinary or even eat a lot. I had not been passing much in the way of solid waste so I knew I was backing up just a bit (all normal stuff)...by the time we left on Sunday at noon I was starting to feel a bit bound up...by the time we got there (1 hour away) I was worse. I tried to eat a bite or two of dinner and was putting on a big front so as to not ruin things for everyone else. By 4 I was feeling so bad I told my wife we had to leave...we basically fled out of there...the entire way hope I fought off an overwhelming feeling of nausea.
Get home and have to go to the bathroom, pass some stool but then I start dry heaving....pass more stool and then I start projectile vomiting....cramps are so bad I can't stand straight...take meds for cramps, and nausea...very little help...then I take 2 gas-x and things let up a bit. I go the bathroom 4 or 5 more times and throw-up twice more. Finally get to sleep and wake up inthe morning tired but feeling fine. The week progresses as normal...good days...big D days.
Then this Saturday (day before yesterday) everything is fine...Great actually...lots of energy...getting chores done....eat a light breakfast....eat a nice light lunch...lots of liquids (water and gatorade)...then we go out to dinner. a very nice place...very relaxing....not a heavy dinner, but very good food...1 mixed drink.....start home and BINGO...same as the week before only the cramps are worse and I dry heave for several hours before anything comes up...and when does come up...it all comes up. Then I sleep and wake up yesterday tired but hungry...some soup and rice for lunch and dinner and all is fine again.
Nothing from either day as far as what I ate is consistent...pasta and sauce one day....broiled seafood the next week. No drinks the first time....one drink the next. Bread both days....but I eat bread two or three time a week.
Any thoughts? Anyone else ever have this happen?
dx IBS 1999 UC 2000 CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
currently on Low Dose Netroxene (started Jan. 19, 2007)...against Dr's wishes, he was pushing for Remicade. Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
51 yrs old