visual/perception issues due to...humira, bentyl, pred?

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Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 8/25/2008 5:27 PM (GMT -6)   
Okay - I have purchased a pair of OTC reading glasses in the hopes that they will help me through this communication...

It's been a rough month, to say the least. But, my trouble is still very much in the "here and now".
I can't see properly, my vision is often distorted, as is my spacial perception... to put it simply - I feel half-drunk and half-hung over... I'm all wobbly when I walk, and I can't do ANYTHING in a straight line to save my life! My head feels "muddy" or "cloudy" all the time- like I'm congested, but I don't think that I am...

The only rx's that I've been taking are the Prednisone (25mg), the Humira (did the two-shot booster Friday night), and I take a bentyl(anti-spasm) before bed.

Has anyone else had spacial/perception issues on any of these meds? I thought for-sure that it was the muscle relaxer Hycosamine stuff, but it's been a full 5 days since I took any of that stuff, so it CAN't be that...I don't think... Oh heck - I don't know. I feel like I'm stuck in a perpetual "out-of-body" experience and I'm going NUTS!

Oh yeah, and my neck hurts... kinda like it does when you're about to get a cold or something... that stiffness... it never goes away. I felt like I was fighting the flu or something a couple days ago, but that has eased up... I don't feel "flu"ey anymore... just wonky. I'm losing my marbles.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

Veteran Member

Date Joined Mar 2006
Total Posts : 2673
   Posted 8/25/2008 6:06 PM (GMT -6)   
Well I have read that prednisone can make your vision blurry, might want to give the doctor a call and let them know it's going on!
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Just finished tapering off Prednisone *YEAH*, Asacol, Questran, Toprol XL (for high blood pressure).

Regular Member

Date Joined Mar 2006
Total Posts : 111
   Posted 8/25/2008 6:46 PM (GMT -6)   
I had major vision problems with prednisone. I wore otc glasses also. It gradually went away. Everything was blury. I couldn't even see the remote to change channels.
34 year old Female
Diagnosed with CD 1993
Currently taking Asacol, 100mg Immuran, 5 mg prednisone (tapering), Humira injections twice monthly since Feb 08, Fish Oil, Probiotics, Multi Vitamin, B-12 tablet, folic acid

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 8/25/2008 7:56 PM (GMT -6)   
I also take bentyl and prednisone, and my vision is also much, much worse than it was. It makes it difficult to take notes in class..I've heard of other people who had the same problem, but it went away after they tapered down.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 8/25/2008 8:28 PM (GMT -6)   
I'd be willing to bet a million bucks that it's the bentyl. I was on it a few years ago and that stuff is some nasty medicine. It's great for the spasms, but it made me so confused. I was fuzzy-headed, couldn't focus -mentally and visually - I was a mess. When I stopped taking it, my head cleared and so did my vision. Hang in there girl. You are really having a rough time!!!
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