My Mayo update...

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Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 8/26/2008 12:40 AM (GMT -7)   
Hey buds, haven't posted in a while. Long story short, I'm still in Mayo lala land but they have confirmed that I at least have gastroparesis (symptoms of which include nausea, vomiting, and constipation - NONE of which I have - but also malabsorption and weight loss, which I have had). No lactose intolerance, no small intestinal bacterial overgrowth. Infectious disease doc wants to wait until my gastro tests have been completed before doing anything but said chronic malaria infection is a distinct possibility causing the high fevers and to go to their ER next time the big 104 hits (best chance to catch the darn parasites on a PCR test). GI will probably double-scope again sometime in September. Ickity ick ick.

Their clinical research team asked me to participate in a study. They are using a new diagnostic tool, sort of like the PillCam but actually a Pill "sensor" that detects the pH, temperature, and other factors as it travels through your digestive system. Of course I will do anything I can in the name of advancing science so will hopefully be able to participate. I think it's called the Smart Pill? Will tell more as I find out more about it.

School starts again in one week!
Co-moderator - IBS Forum

Please always remember to consult your medical professional regarding your medical questions; this forum is intended to provide patient-to-patient support. Although some of us have healthcare backgrounds, we cannot diagnose or treat patients on the board.


randynoguts
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Date Joined Jan 2003
Total Posts : 6049
   Posted 8/26/2008 12:42 AM (GMT -7)   
good luck, hey, where could you have picked up malaria? travel much?
randynoguts 



     http://www.geocities.com/randynogutsweb/


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/26/2008 2:18 PM (GMT -7)   
Hi Glad you checked in and at least you have some sort of plan. Hope your doing better.lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 8/26/2008 4:58 PM (GMT -7)   
hmmm...if it is malaria-Plaquenil is likely to help you in so many ways...

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 8/26/2008 5:02 PM (GMT -7)   

Yo, Sarita! I just got "the" call from Mayo (MN) today. *sigh*  Appointment w/gyn/onco I like, the gastro & a colorectal 20 Oct and 24-31 Oct the in-house Smoking Cessation program and the surgeries the following week. IF I don't chicken out!!!!

Your mention of this clinical trial for the "smart pill" sounds quite fascinating. Do you know is this expected to be really beneficial for Crohn's disease or for unknown intestinal disorders or for a myriad of disorders? I'll have to remember to ask about it when I get to Mayo.

Are you at the Mayo in MN or one of the other two?


Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/27/2008 5:02 AM (GMT -7)   
Hey Sarita,
I was dx with gastroparisis about a year before my dx of crohns so hopefully it will move you forward...lol Unfortunately chronic fevers are a symtom of cd as well (at least for me), but I hope they figure out what is going on with you.
Navy
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


love_angels
Regular Member


Date Joined Oct 2006
Total Posts : 46
   Posted 8/27/2008 9:25 AM (GMT -7)   
I'm from Minnesota too, have been to the Mayo, and am also curious about this "Smart Pill". If you post more info. sometime that would be great.

LuckyStar01
Regular Member


Date Joined Mar 2008
Total Posts : 54
   Posted 8/27/2008 8:48 PM (GMT -7)   
Smart Pill - Cool : > I want to go back to the Mayo! I'm in MN too.

Good Luck.
Diagnosed 2004 - Chrohns and UC - Currently on no medication.
Multiple other chronic illnesses and allregic to many things.

Wish upon a Lucky Star!

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