Planning for the worst........

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redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 8/26/2008 11:39 AM (GMT -7)   
Well Since my CD is not getting better, Im thinking I should get some type of disibility paperwork started in the event I get alot worse. The obstructions are becomming more and more frequent. Im only 6 months out of 63cm resection. From what I understand the SSI can take years. Is this so?
 
I have to leave work frequently and am in constant pain. I can deal with it right now but what about in a year or two? 1 month after starting Humira I developed Strep Throat that is NOT responding to antibiotics. I guess the the combo of Pred and Humira has really knocked my system out. I have an appointment with my GP and GI tomorrow.
 
Any recommendations on starting the process? How Do I know if this will be enough income to sustain me and my family? smhair
 
 
 
 
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/26/2008 12:02 PM (GMT -7)   
Never done it but had a question of my own to tack on to yours. Can you still work while you are in the application process or will they use that as evidence that you are not disabled? I just don't understand how you live if you can't work while you are applying.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


redspot321
Regular Member


Date Joined Jan 2006
Total Posts : 303
   Posted 8/26/2008 12:11 PM (GMT -7)   
Also does an MD have to write a letter to get the process started?
29 YO Male
 
-CD diagnosed in 2005 illieum
-63cm bowel resection in Feb 08
-Steroid dependant following surgery
Humira Start date 8/1/08


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/26/2008 1:13 PM (GMT -7)   
Well I do know that the SS money is not alot. I believe its based on how much you have contributed to social security. If you do decide to go that route, I can tell you from what I have read here, its best to have a attorney to help you, and its very common to be rejected the first time.

Redspot321, have you modified your diet at all since your surgery? The reason I ask is since my resections (last one in 2005) I no longer tolerate alot of foods. I live on a low residue diet all the time now. I found for example that red meat was causing me to have alot obstructive episodes. And many other foods just make me really sick or caused me pain. Since I really modified my diet and have paid attention to how certain foods affect me etc, I am doing much better. Just a thought!! I hope you get feeling better soon.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 8/26/2008 8:22 PM (GMT -7)   
red, i can tell you that it is not enough money to support your family. i payed in at maximum nearly my whole working life and it no where near what you would need. now i understand the amounts are differant for each situation, but i beleive the average is around 1600 a month. maybe less. im sure we will get some other opinions soon. maybe that would work if you lived in mississippi or some other low cost area, but not in the average area.
randynoguts 



     http://www.geocities.com/randynogutsweb/


Beachie
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 8/26/2008 8:57 PM (GMT -7)   
I too have been considering applying for disability. Got some some very helpful advise a few weeks ago from the folks here at HW reference disabily and applying. I too was very confused about the whole process in its self. Got on the SSA website and found a very brief booklet of what info you need to have before you apply. Also they have calculators to help you see what you could possibly receive. Having your GI on board was recommended by those who responded to my questions here and also by my GP. Have that meeting with GI Doc in a few weeks. We'll see. I had resection May 07 and boom May 08 CD back in full force. So now that feeling of what if. I worry bout it every day.

Hope you do get to feeling better really soon and Good Luck.

tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 8/27/2008 12:33 AM (GMT -7)   
I am on SSDI for Crohn's and have been on it for a few months now. Originally, I was on long term disability through my employer, but my employers' third party insurance company paid for a law firm to get me on federal disability. It is not an easy process and I strongly recommend getting a lawyer that is well versed in the SSDI process to handle your case. Be patient and honest throughout the whole process and realize that most people get turned down multiple times before they are approved. I was the first one that my lawyer had helped, that was accepted on the second application. Pretty much everyone is turned down the first time in order to weed out those that are trying to work the system. I was told that I would probably be turned down 3 times and then have a live hearing with a judge to discuss my case. You can probably imagine my surprise when I was only turned down once and approved on the second try.
Before you start the process, make sure that all of your doctors are on board with you. Their forms that they have to fill out really can make or break a case. Be honest about how good or bad you are. There are a ton of questions on the applications that will probably surprise you, but be open and honest and you will not have any problems. Make sure to make copies of all of the forms that you fill out and document all calls, letters, emails, and correspondence that you have with the government and your doctors. They will send you multiple forms that ask many of the same questions in different ways, and it is important that all of your answers are the same and accurate with the other forms. Plan on the process to take anywhere from 1-2 years. My process only took about 3-4 months, but that was hugely out of the norm. If you plan on it taking longer, then it will be nice if your case takes a surprising turn and is approved quickly.
Realize that many of the people that review these forms do not view Crohn's disease as a disability. Due to the lack of public awareness, we really have to make a good case of what this disease does to our bodies. Many people confuse Crohn's with I.B.S., which may be a life effecting condition, but not really comparable to Crohn's and the effects that it has on each and every day of our lives. Do not be afraid to list what your still can do, such as hobbies, because if they ever come and check up on you, you will not have to worry. I even included that I still like to camp, hunt, and fish, but have had to change the way the I do it. Good luck with it and feel free to ask any questions.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/27/2008 3:03 AM (GMT -7)   
Wow 1600 a month is alot more then average around here. It is about 650 a month here. Guess it also depends on where you are and also how long you have worked.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 8/27/2008 11:10 AM (GMT -7)   
yeah...some of the averages in this area are also very tight in the 600 area
SCD since 01, remission since 01, occasional Arby's breaks :)

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