Husband dignosed w/ Ulcerative Colitis 5 yrs ago, but wife insists its Chrone's!

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MrsBlevins
New Member


Date Joined Aug 2008
Total Posts : 1
   Posted 8/27/2008 2:05 PM (GMT -7)   
My husband is 30, he has suffered from severe abdominal pain, weight loss (he looks like a male anorexic), bloody stool, blood even without stool so rectal bleeding, poor appetite, and he even is spitting or throwing up blood now. The pain in his intestinal area is so severe that he crawls into a ball and crys at nighttime when he has his usual flare-ups, all I can do it rub his back and try to ease his pain... I used to give him glasses of milk when we would have an episode and now e have figured out that, that only makes it worse. We were told by his gastrointerologist that he needed to be on a high fiber diet, there was never any medication discussed or treatment. After a few years of it seeming to go into remission it has been back full forrce these last 2 years and worseing by the day! I finally made him an appointment with a colon & retal Dr. to see about pain management, but I think my husband was misdignosied, I truly believe that he has all if not more symptoms of Chrone's than of ulcerative colitis.
 
He has always had stomach issues and as a child was told he had ulcers, later on he was told bleeding ulcers than internal hemmhroids, I am at my wits end and can't take seeing my husband in such tremedous amounts of pain.
 
Please if anyone knows of any other symptoms or has had the same as my husband please speak up and let me know. I never knew this disease could effect the younger generation, but did do research and found out that it can also be a hereditery disease! Which my husband has stomach cancer in his family! I pray that it dosen't turn into that!
 
His UC or Chrone's also effects his fertility, we have been married 10 years and never have been able to concieve a child! Yet another tragic symptom of this horrible disease.
 
Alicia

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/27/2008 2:29 PM (GMT -7)   
Hi MrsBlevens I would certainly be concerned about the vommitting of blood as it could be a ulcer that could need tending right away. We have had a fellow crohn's man here recently that had a bleeder lasered. There are test to determine if he has crohn's . I was having bad pains too and went to emerg. as I was having blockages. I am glad you are getting him to a specialist. It can be hard for those who love us to see us in pain but with proper care our lives improve. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/27/2008 4:31 PM (GMT -7)   
The symptoms of CD and UC can be extremely similar. The best way to tell is your hubby has one or the other is to do and "upper GI small bowel follow through" barium xray AND a colonoscopy to the "terminal ileum" which is where many of us crohnies have CD. Not all crohnies have CD in the TI, but it is the usual place.
 
If your hubby is losing a lot of blood it could be dangerous. He needs to be seen by a doctor soon. His iron/B12 and blood count levels should be checked too.
 
If it's been all these years, perhaps it's also time to look into other treatment in addition to his regular treatment. There are a couple of diets worth looking into that have helped many people with UC and CD. The Maker's Diet and the Specific Carbohydrate Diet.
Also, probiotics and digestive enzymes may help restore his natural intestinal balance and help him to digest food better and with less pain.
 
I have had CD with ulcers in my stomach area before and eating was excruciating. I wish I'd had known years ago about the diets, probiotics and digestive enzymes. They've helped with my diarrhea and pain after eating.
 
 

lilturbo
Regular Member


Date Joined Feb 2008
Total Posts : 298
   Posted 8/27/2008 8:37 PM (GMT -7)   
Alicia,

I was originally misdiagnosed with Ulcerative Colitis when my doc did my first colonoscopy (I had the same symptoms as your hubby minus vomiting blood). A was still in and out of remission after the first year so my doc scoped again. This time he found me suspect for Crohn's so he ordered a barium xray and capsule endoscopy. The barium xray is the "old school" method and DID NOT detect my Crohn's. The capsule endoscopy, however, did. The capsule endoscopy confirmed that I did indeed have Crohn's disease. I think your hubby should get both a colonoscopy and capsule endoscopy so you can know once and for all what he has =( I'm sorry he's in so much pain. I know he appreciates your support. Please keep us updated!

-Emma
turboemma.blogspot.com/


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/27/2008 8:59 PM (GMT -7)   
If I understood you properly, your husband is not on any medication? If so, you need to feed him only chicken or beef broth for a couple of days with boiled skinless chicken or eggs - but if he is nauseated, possibly just the broth. This is from the Specific Carbohydrate diet and it is something that you can do until he gets in to see the doctor. He needs something to settle his system down before any healing can happen and the broth is at least not irritating. I usually recommend probiotic supplements, but in your husband's case, he needs to be a bit healthier before trying that. Coconut oil is another possibility. It is anti-inflammatory and may help his problems. Bee propolis is another good option. His problems can't be just left to work themselves out.

d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 8/28/2008 9:45 AM (GMT -7)   
This is to say the least, frightening. He should not be let to go like this. If my symptoms ever got this bad, I would go to an ER immediately! Don't wait on this, please.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 8/28/2008 4:45 PM (GMT -7)   
Actually, if I was vomiting blood, I'd go ER too.

gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/29/2008 1:14 PM (GMT -7)   
bump!
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail

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