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LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/28/2008 1:55 AM (GMT -7)   
Am I in remission? My GI liks e-mail updates and I am about to let him know with the following text. I have been on steroids for 2 weeks of 4 before I taper down, and on Pentasa 2000gm x 2 for 2 weeks.
 
1. I think the blood is from piles. I wiped halfway through a bowel movement - no blood - I wiped at the end and there was bright red blood on the tissue. I didn't strain this morning and there was no blood at all on both occasions. All blood is on the tissue, outside of the stools or sometimes drips into the pan - bright red.
 
2. I am concerned about my stools though, they are still not that big but come out in well formed smaller stools. I have about 2-3 bowel movements a day without much urgency usually in the mornings. I genuinely think my stools are being effected by the Pentasa, it has never agreed with me like Asacol did. I also suffer from IBS.
 
3. I often get wind and I don't know why - it makes me go to the toilet and sometimes just wind comes out!
 
4. I still have no pain, no extra fatigue, but often feel mild soreness down there after a bowel movement.
 
Have I got into remission?
 
Thanks ya'all.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 8/28/2008 5:20 AM (GMT -7)   
2-3 bm..sounds good to me
SCD since 01, remission since 01, occasional Arby's breaks :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 8/28/2008 6:20 AM (GMT -7)   
The size of your stool is the same as mine. I always call them comma poops or pudding poops. I don't think this is anything to be concerned about. The blood I still say is hemi's. As for remission, when you are off Pred and still feel like you do now, I would say that is remission. But I would not call it remission yet, as you are still on the Pred and that keeps things quiet.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/29/2008 12:34 AM (GMT -7)   
Thank's for replying Nanners.

I have never been on suppositories for the piles - I am now taking Rutin to try and sort out the blood vessels. The clipper steroid is taken for a month and then tapered down over two weeks, it's only 5mg so not a huge loss to the body so God willing I should recover. I guess the small stools are down to IBS and stress.

The situation for me is that my mental illness (severre anxiety) is what is making things worse. Last night I had a BM and I saw streaks of old and new blood on the stools. Now the old blood could have been pooled up hemmie blood but it still freaked me out so I texted (by phone) my GI at near midnight! This morning I have had two solid BM's already - normally it would be one BM for this but my anxiety makes me go to the toilet and sit there wanting to see if I bleed! Anyway, there was minor blood early morning, and no blood on stool the 2nd time - although really minor spotting on the tissue.

The intermittent bleeding with no pain my GI says suggests piles but I just keep going round and round in circles. If it was piles then why am I undergoing so many tests and so many medication when I have no other symptoms that I care of? The reason I went to them was due to the blood. He said the more doctors look the more they find and often treat things that otherwise would go unnoticed, sometimes never flair up and sometimes fabulous when caught early. It's one of those things. He thinks I have yet to have a real flair up, and what I am seeing is IBS and Piles. He says the inflammation for me is sometimes there and sometimes totally gone and may be related to an infection, the bowel prep (I have had sigmoidoscopies without prep and there was no inflammation, but on colonscopy with a prep there has been inflammation), medication or to IBD - but with no major effect on my histology.

ie - he doesn't know what's going on, which brings me back my anxiety - these are the two of the best and most recommended GI's in London.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/29/2008 4:58 AM (GMT -7)   
I wouldn't call it remission either but maybe well on your way. It sounds like you're in pretty good shape.
As for the smaller formed stools, I get those as well. I wonder if this is common with this disease...I don't think it's something for you to worry so much about though. Better that than just Diarrhea or the other.

Sorry to hear about your anxiety..it sounds like a rather large contributing factor in the problems that you do still have. Is it possible that there is any correlation between it and the bleeding? My grandfather suffered from something similar and this greatly affected his digestive system. I started losing blood myself at an extremely stressful period in my life(no food, no money, no place to stay, no one to ask, and plenty of obligations to fulfill like getting to school, staying in school, and bills).
Anyway, best of luck with your progress. It sounds like you're getting much better..I hope you can get more answer from your doctors :)
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/29/2008 10:29 AM (GMT -7)   
I think I will ask about the rectal meds next time I see him, it should sort out the piles and the inflammation. That's probably the best way forward. The blood is so bright and red that's most definitely close to the anal area. He keeps saying if it was inflammation it would more of than not hurt, and be mixed in with stool virtually every time.

Each time I have bled it has been after stressful incidents which effects my bowel movements and the cycle begins. I guess though my problems are silly compared to some of the suffering some of our fellow brothers and sisters are facing on here. Sorry to be so petty all.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/29/2008 11:11 AM (GMT -7)   
Do you have internal piles or external piles?

The reason I ask is if you can see them (external) yourself and a doc has seen them did they confirm it was piles?

I was told I had piles too but infact what I had (have) is perianal crohn's skin tags (related to CD only) and they did an emergency hemhorroid ectomy on them (because I was in doubled-over excrucitating pain from them) but they turned out to be these perianal crohn's skin tags, infact for me, that's where my CD started, my anus and spread into my rectom, colon and samll intestines for my first 2 yrs of being sick...it has remained in my colon (crohn's colitis), comes and goes in my rectom (proctitis) and remains forever on my anus due to the un-necessary surgery they did on my tags....

Here's a link that shows both hemmies and perianal crohn's skin tags (aka; elephant ears)...
 
 
:)


My bum is broken....there's a big crack down the middle of it! LOL :)


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/29/2008 11:25 AM (GMT -7)   
Four different GI's have confirmed I have small internal piles. I have even seem a picture of them and I have no pain. What puzzles me is whether the blood is from them or inflammation. I also didn't realise small piles could bleed everyday.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 8/29/2008 12:24 PM (GMT -7)   
remission is such a touchy word. i dont like it. if these are your symptoms/complaints you are fine imho. a normal person should have 2-3 bm's per day. you should go about a half an hour after every meal. no pain = fantastic! i see some blood once in a while too, but that is from a perianal abscess that will not fully heal and once in a while it breaks or gets exacerbated from things like mud butt or hot humid weather. gas is from your diet most likely. abstain from grains, dairy, and leafy greens for at least 1 week and see what happens. then begin to slowly work one of them back in and see what happens. this should allow you to pinpoint your trigger food, assuming it is from food.

anyhoo, sounds like good news to me.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/29/2008 1:04 PM (GMT -7)   
Thanks Harry - if someone could tell me 100% it is piles that make me bleed - I'd stop medication and carry on with my life - I have IBS and the bleeding is the only IBD symptom I have.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/29/2008 1:20 PM (GMT -7)   
1. You have said that you show internal piles, so the color of the blood should tell you if it is from them (fresh bright red) or further up (darker, almost burgundy to black in color). There is a herbal suppository called Fissure Heal that is supposed to heal those piles or hemorrhoids. You can find a link at the bottom of http://www.jinipatelthompson.com/

2. No idea about this.

3. The wind indicates two possibilities - first, you may be not digesting some foods which the bacteria in the gut then consume. A number of them produce gas from fermenting food. Second, you may have some gut bacteria that are thriving on the non-digestible food fibers in your diet. This suggests that you should try the probiotic supplement and digestive enzymes route. The probiotics will competitively displace some of the less friendly bacteria and the enzymes will avoid feeding them unnecessarily.

4. The mild soreness after a BM indicates scarring or restriction in that area. You may get some relief from the suppositories mentioned in 1.

LondonRed
Veteran Member


Date Joined Oct 2007
Total Posts : 1184
   Posted 8/29/2008 2:13 PM (GMT -7)   
Thanks ya all for these suggestions. The IBS is kicking almost causing flatulence when I pass wind. It sucks.

Diagnosis Oct 07 and then Aug 08: 2 Patches of Mild Chrohn's Colitis (unconfirmed)
Medication: 4000mg Pentasa a day, 5mg Clipper Steroid (Beclometasone dipropionate)

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