Crohn's in China

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teezy369
New Member


Date Joined Aug 2008
Total Posts : 17
   Posted 8/28/2008 12:42 PM (GMT -7)   
Does anyone else live and work over here? What is your strategy for maintaining your health? I am particularly interested in those who use diet as a large part of maintaining health.

My History if you are interested:

Christmas 2005 -
Emergency TI resection for a blockage. After some terrible confusion, diagnosed with Crohns. Put on Asacol for maintenance. (Although should have been pentasa since the inflammation was not focused in the large intestine) Went into a temporary post surgery remission.

April 2007 -
First serious recurrence of disease. Comes as an acute bleed from ulceration in the neo-TI and probably past where the scopes can see. Required hospitalization and a blood transfusion. Anemia and low hematocrit levels have been leading up to this. Afterwards, I am put on prednisone and entocort as I taper off of prednisone. Also, iron supplements. Doctors tell me that I must go onto 6mp or immuran after i get off the steriods.

Summer 2007 -
The steroids have been making me feel worse and much sicker than ever before. My bowels are not improving either. I was still losing weight. Steroid acne all over my body. I couldnt go on with it anymore. So I quit everything (i rapidly tapered over a week and a half) not totally abrupt.

After doing a lot of reading and thinking about my crohns, I decided that destroying my immune system and body with drugs and all the side effects was not the answer. I started out with a 4 day fast drinking only water. Then I added some vegetable juices and salad. Then rice and small amounts of meat (mostly fish).

Since then I have been controlling my Crohns through diet and natural medications. Basically what a lot of other posters here have been doing. Crazyharry is a similar example. I do go to the doctor for blood checks to make sure things arent going crazy in there, but ever since I went cold turkey on the heavy duty drugs, I have felt healthier and healthier, better and better. I think the short fast I did was also beneficial in inducing my remission. I am going to try a longer one later this year.

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/28/2008 12:52 PM (GMT -7)   
Extended fasting is not advisable. Cases where parenteral nutrition (nothing to digest - just pre-digested food components) has been used over extended periods result in thinning of the gut's mucous membrane. Since this is the main barrier between your gut bacteria and your immune system, it has to be maintained in the best shape possible. Short fasts are beneficial because they allow the inflammation to subside and that permits your mucosa to heal. If you don't have inflammation, I don't know if it is necessary.

teezy369
New Member


Date Joined Aug 2008
Total Posts : 17
   Posted 8/28/2008 1:00 PM (GMT -7)   
what is defined as extended or short. i am planning to go 7 days (if i can make it).

i certainly still have inflammation (although c-reactive test has consistently said none detected). My absorption is definitely not normal yet. that is one of the main results i would be looking to get from the fast. improved absorption as well as detoxifying the remnants of last summers steroids from my system and whatever else has built up over the years.

Post Edited (teezy369) : 8/28/2008 2:08:19 PM (GMT-6)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 8/28/2008 2:30 PM (GMT -7)   
You'll more than likely start to get headaches after not eating for about a day and a half...I wouldn't go 7 days on your own of just liquids only. Do a little food at least.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


teezy369
New Member


Date Joined Aug 2008
Total Posts : 17
   Posted 8/28/2008 2:46 PM (GMT -7)   
^ i found for myself that the headaches were gone by the end of day 2. i have heard that the headache is a natural part of the detoxification process. did you try fasting?

any other China chronies out there?
---

American expat living and working in China and loving it

Crohn's since 2005

Abandoned the Rx drug approach

Taking a natural approach to maintaining my health.


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/28/2008 5:15 PM (GMT -7)   
I go on liquid diets when I am ill and I find them beneficial. But I use smoothies, jello, broths, and yogurts too so I am still getting protein and sugar in my body.

My husband grew up in an American expat family living in Singapore. I hear their medical care is top notch so if you ever need surgery or anything it might be worth the short flight.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


LuckyStar01
Regular Member


Date Joined Mar 2008
Total Posts : 54
   Posted 8/28/2008 5:16 PM (GMT -7)   
Hi

I think you have something there but be careful. Before when I was misdiagnosed I found myself taking up to 21 pills a day. I ended up with
acute panchreatitis. It was like I could tell my system was giving up. I stopped taking all medication except Crohns medication. It really helped.

Recently I have been on Remicade and I built up such and intolerance that I felt the same way I did when I was taking 21 pills a day.

I said thats enough - I pulled myself off of everything and thought what is missing?

Now I am taking Fish Oil Pills, vitamin supplements and making sure I am on a good diet of fresh food and making sure the quantities
are small sized, Lots of water no pop. I feel 100 times better.

I don't know if I could take the fasting because I dehydrate but I am making great progress with what I am doing.

The saying goes if you sit atrophe sets in. I am also working on movement, toning and excercise.

Sorry not in China but I am very interested in what you are doing. I do think that the body needs to learn to work on its own as
much as possible.
Diagnosed 2004 - Chrohns and UC - Currently on no medication.
Multiple other chronic illnesses and allregic to many things.

Wish upon a Lucky Star!


BeijingBelle
Regular Member


Date Joined Aug 2008
Total Posts : 20
   Posted 8/28/2008 8:30 PM (GMT -7)   
Hi Teezy

Wrote a post for you on UC site, too.

I have only suffered with UC since relocating from Tokyo to Beijing - less than a year. I am not using any traditional meds and am managing pretty well - I thought I was really suffering until I found this site and realized that I have a mild case.

I will look for an e-mail from you.
Belle

Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 8/28/2008 10:29 PM (GMT -7)   
I don't think that 7 days is enough to cause problems. TPN diets can be administered for that long (I am assuming that the doctors know about the problems - not always a good assumption). Still, you should take some liquid source of electrolytes - fruit juice or vegetable juice would be better than water. You might also see if you can find any acupuncturists there who are familiar with food allergy treatment. There is a system that has been developed in the US that involves invoking muscle weakness by having the patient hold an allergenic food in the hand and then diagnosing the meridian involved and needling the appropriate points until the imbalance has been corrected. It's called BioSET. I have not tried it because there are no registered acupuncturists with that training anywhere near here. There is one listed in Singapore, but that is hardly next door.

If that does not work, there are a couple of possible things to try: avoiding gluten (wheat, rye, barley, oats) helps some people. One member strongly recommends bee propolis capsules. Another possibility is turmeric capsules. I don't know if these would work with the TCM remedies that you are using currently.

nickysam
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/25/2008 3:09 AM (GMT -7)   
Crohn's disease and ulcerative colitis, collectively called inflammatory bowel disease, are chronic disorders that cause abdominal pain, diarrhea and gastrointestinal bleeding and affect over one million Americans. This may attack anywhere from the mouth to the anus, while ulcerative colitis inflames only the large intestine.
--------------------
Nickysam

Post Edited By Moderator (ivy6) : 9/25/2008 6:30:25 PM (GMT-6)


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 9/25/2008 1:34 PM (GMT -7)   
spam above
SCD since 01, remission since 01, occasional Arby's breaks :)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 9/25/2008 5:31 PM (GMT -7)   
Thanks, aoccc. The mods appreciate the help - there are times when we're not able to read every post.

:-)

Ivy.
Co-Moderator Crohn's Forum.


Kaycie
Regular Member


Date Joined Jan 2006
Total Posts : 449
   Posted 9/25/2008 6:33 PM (GMT -7)   
During my last hospital stay, I was told that I could not go longer then 5 days on a clear liquid diet. If they didn't introduce full liquids by day 5, we'd discuss TPN. I got released to full liquids the NIGHT before day 5!

I was hooked up to electrolytes with extra potassium....2 1/2 bags a day...
Kaycie - Age: 26
Crohn's - Dx Nov 05
Failed Remicade, moving onto a Clinical Trial called ABT-874 - Tentative start date - 10/2/08 - 10/16/08  - Infusion, every 4 weeks.
IVF #1 (In-Vitro Fertilization) - Failed
IVF #2 - IVIg, Heparin, Baby Aspirin - TWIN GIRLS!!!
Reagan Dawn - 8/2/07 - Lived 1 hour 27 minutes due to Cloaca, NOT affiliated with my Crohn's
Addison Maria - 8/2/07 - 13 months old

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