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sooper
Veteran Member


Date Joined May 2003
Total Posts : 815
   Posted 8/28/2008 4:39 PM (GMT -7)   
Wow. My butt just wont stop... it is a very bad scene at the end of the tunnel. I finally have gotten my doctor to "Sign me up" for this treatment, remicade (he will get it covered, I never asked how). I'm in Canada...

Im really hoping this works. I have a lot of scar tissue and my rear end she been flaring for the last 3 years. I get kind of scared, cause im on Imuran as well, and well cancers and stuff... crap son. I just dont care anymore, I dont want to lose my anus. I had an ileostomy or whatever back in 2003-2004. I will snap if I have to lose my anus.

I guess I have gotten side tracked here... All I meant to ask is please post your POSITIVE experiences with remicade...What else do you take? how long have you taken it... I dont want to get my hopes up but I also dont wanna feel like nothing will ever work. . . .

Also, I always like to include this link

www.askapatient.com

great site to read up on different meds and what other had to say about them.....


Online we have a Canadian Drug Data Base for any adverse drug related reactions documented. Overall It looks fairly "safe" to take these medications. There are adverse reactions listed, including death. I cant find the link at the moment but will post it later for fellow Canadians...

Wow.. Thanks for reading : )
im a professional... on an amateur level !


LuckyStar01
Regular Member


Date Joined Mar 2008
Total Posts : 54
   Posted 8/28/2008 4:48 PM (GMT -7)   
Positive things about Remicade - OK here it goes:

Everybody I know who took Remicade went into remission. How is that? Many people I know that stopped taking Remicade
stayed and are staying in remission.

I think there are some posts a week or two back with a lot of good news.

What I liked about it is that you only had to go in every 8 weeks - It was a nice 5 hour rest - I met a lot of nice nurses that really got to know me
No more pills.

Good Luck - I wish I could take it still. I am looking at Humira
Diagnosed 2004 - Chrohns and UC - Currently on no medication.
Multiple other chronic illnesses and allregic to many things.

Wish upon a Lucky Star!


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 8/28/2008 7:01 PM (GMT -7)   
Check out the new meds thread. You can find it on p2 of this forum (maybe p3 by the time you see this) or under the "resources" thread a the top of the forum.
Co-Moderator Crohn's Forum.


patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 8/28/2008 7:16 PM (GMT -7)   
I totally understand the need for info, no matter HOW much you read up on this stuff.

My Remicade experience:
I went through 5 abscess surgeries, all within a one inch radius of my anus, with skin tags and drains and all that lovely oozy mess... so I understand your pain and your fear of losing it... no matter how mad it is at you!

After the surgeries, they finally figured out that I had crohn's and started me on meds. I had terrible reactions to everything, not to mention the fact that they didn't help (Imuran, 6mp, Purinethol, Prednisone, Asacol... etc.).

I was approved for Remicade and started the middle of December, 2005. By Christmas that year I was eating like a pig and living like I didn't even know what the word "crohn's" meant. I got Remicade every 4 weeks to start, no other meds what-so-ever. I was able to continue that, and even started being able to space my treatments further and further apart. I eventually got to every 16 weeks, believe it or not.. and I was doing great. I had a full-time job again, and life was darn good.

It's been a couple years now, obviously, and I'm just now in the transition to Humira. I did Remicade all the way through April of this year, but the last few infusions didn't seem to be working. I had a bad cold-medicine induced flare last winter, and I don't know that I've ever gotten all the way "back on track". So, after two or three infusions with little relief, I had to start looking for other options. There's a lot of stuff that happened in the mean time, but it doesn't really relate to your Remicade question, so I'll skip it.

The bottom line is - Remicade gave me my life back for over two years. And even now that it's not working for me - I still really don't have anything bad to say about it. It was amazing, while it lasted. I know some people are lucky enough for it to work even longer than mine did...

I wish you the best of luck... may it bring you the relief that it once brought me. You, and your butt, deserve it! turn
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

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