I totally understand the need for info, no matter HOW much you read up on this stuff.
My Remicade experience:
I went through 5 abscess surgeries, all within a one inch radius of my anus, with skin tags and drains and all that lovely oozy mess... so I understand your pain and your fear of losing it... no matter how mad it is at you!
After the surgeries, they finally figured out that I had crohn's and started me on meds. I had terrible reactions to everything, not to mention the fact that they didn't help (Imuran, 6mp, Purinethol, Prednisone, Asacol... etc.).
I was approved for Remicade and started the middle of December, 2005. By Christmas that year I was eating like a pig and living like I didn't even know what the word "crohn's" meant. I got Remicade every 4 weeks to start, no other meds what-so-ever. I was able to continue that, and even started being able to space my treatments further and further apart. I eventually got to every 16 weeks, believe it or not.. and I was doing great. I had a full-time job again, and life was darn good.
It's been a couple years now, obviously, and I'm just now in the transition to Humira. I did Remicade all the way through April of this year, but the last few infusions didn't seem to be working. I had a bad cold-medicine induced flare last winter, and I don't know that I've ever gotten all the way "back on track". So, after two or three infusions with little relief, I had to start looking for other options. There's a lot of stuff that happened in the mean time, but it doesn't really relate to your Remicade question, so I'll skip it.
The bottom line is - Remicade gave me my life back for over two years. And even now that it's not working for me - I still really don't have anything bad to say about
it. It was amazing, while it lasted. I know some people are lucky enough for it to work even longer than mine did...
I wish you the best of luck... may it bring you the relief that it once brought me. You, and your butt, deserve it!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."