Don't have the uncontrollable gas yet, but I'm sure it is coming. My dr. did make a similiar comment to me about my latest rectal fistula. He basically told me that I was a man and to deal with it. I had never wished this disease on my worst enemy, but last week I came close. I have had several fistula's in the past, but this one is making my life miserable.. It is to the point where I have to lay on my side or tummy if i want to rest.. I can't stand for a long period of time because of my leg problems and I can't sit because of the you know what.... so I'm kinda screwed until well it seems like forever. Long story short.. My current gi is completely lost with my case so he is referring me to another gi.. only problem is I can't see that gi until sept 25. I normally get the french tube to drain the rectal fistula's, but they come back as fast as the drain. So they won't drain it and they won't give me another dose of humira till the other gi sees me. September 25 seems like 100 years away right now! I did go to my family doctor yesterday though and she has IBS and she perscribed me something called Analpram. It helps numb the pain for a short while, but it has some steroidal ingredients in it... so beware if you use. Also I have been having another problem that I wonder if you or anyone else has. Sometimes I will have the urge to go potty[ sorry about the lingo... have a toddler in training] and I will go and nothing but gas comes out.. no movement just gas. it has been happening alot lately too. Sorry that I havn't been much help though. I will also be prayin for ya and hope you find relief very very soon!
Drs can be so insensitive. I'm sure if he had prostate and had to have his testes removed, he wouldn't appreciate it if you told him to be a man and to deal with it. Also people (my parents included) seem to confuse fissures with fistulas until you have to SPELL out exactly what it is.
Yeah, passing gas only can be an issue. You start to think you've had a ghost poo! (oh my how we discuss these topics that we wouldn't in a face to face social setting!!! LOL)
I hope you don't start the gas side of things. Having a fistula is bad enough, being socially embarrassed by noisy or smelly gas when it's unexpected can be mortifying.