Not doing too well...ovarian cyst pain/not getting good care

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Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 8/30/2008 4:45 PM (GMT -7)   
Man, I've had an awful time with these ovarian masses... pain... puking... feel so tired (dunno if its from that or the medicine that's suppose to help me stop puking...)... My OBGYN... the one I had such a hard time finding in the first place is retiring... I thought he had scheduled surgery for me at a hospital for September 26th... but as it turns out that's just another appointment with an OBGYN... So I'm going to have to suffer... cry

Then, I went to my rheumatologist, says she might be close to figuring out what's going on with my joints... She was really worried about my current state of health, though... weak, dehydrated, tired, pained... So she sent me to the hospital next door...

I spent more than 8 hours in the waiting room... then when they saw me... they said my records they got from another hospital didn't show ovarian masses on my right ovary... it showed a left ovarian cyst... I insisted on otherwise.... because why would the other hospital tell me wrong? They gave me some anti-nausea and some pain medicine through an IV... which was nice.... drank some CT juice... And lo and behold!

I have ovarian masses on my right ovary! What a surprise!! mad

And what happens next?

'Okay, we're going to send you home, now.'


The hospital doesn't have an OBGYN department... they refuse to transfer me to a facility that does... I beg, I plead... they call security... *I wasn't being violent, just stubborn... I wanted something done about those masses so badly* I don't get home until 10:00 the next morning because I can't drive and have no transportation or money...

//-_-\\'... I got to say it was one of the worst days in my life and it made me rather depressed... I had also requested a Ca 125... a blood check for ovarian cancer... because that's what my old OBGYN wanted to check me for... But they didn't do that, either...

And apparently... ovarian cancer runs in my family... Luckily, though, it usually only happens in older women... so there's a pretty good chance I don't have it...
___________________________________________________________________________

Just took out the stuff about self injurious behavior. ((((Celery)))) No personal offense intended.

You know we care and we want to help you.
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

Post Edited (Celey) : 8/31/2008 2:11:55 PM (GMT-6)


Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 8/30/2008 4:51 PM (GMT -7)   

Celey-Sorry you're going through such a hard time.  sad

Isn't frustrating when you know what you need...tests, medicine, etc... and NOBODY listens!

I will keep you in my thoughts! (((hugs)))


~april
 

 



gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 8/30/2008 5:28 PM (GMT -7)   
Hi Celey hang in there you can make it . Goodness it sure does sound like you been run threw the mill hope things get going better soon. lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 8/30/2008 5:30 PM (GMT -7)   
Wow, September 26 is sooo far away when you are in pain. Then they'll make you wait even longer for surgery.

It's so hard to change gyns, it can take forever to get in to see a new one. Is the appointment on 9/26 with the OBGYN that will be operating on you? If so, try calling and explaining that your rheumy just referred you to the hospital because she is so concerned about your health. Maybe they can get you in earlier. Maybe your rheumy will call and can get you in quicker. Have your newest CT results sent to your PCP, old OBGYN and new OBGYN.

I personally would skip the ca125 test. If you score high, you'll be terrified while waiting for surgery. The test can give false high readings for many other ovarian conditions such as endometriosis. Since they will be operating on you anyway, that's the way to get the best information. Ask and see if a high score would get you into the OBGYN sooner, then it may be worth it.

I know they take their time with cysts but I would have thought a mass would get the system moving faster.

Take it one day at a time. You'll make it through this. If depression continues, talk to your PCP. Some antidepressents also help with pain and sleep.
I've been there with the ovary stuff so you have my sympathy.

And see if you can get someone else to do your laundry for a while!!! ;)

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/30/2008 6:53 PM (GMT -7)   
But I think getting the ca-125 done might move the process forward faster. Just know that it can give false readings.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 8/30/2008 9:11 PM (GMT -7)   
Um, I would find a different doctor and/or different hospital. That shouldn't have happened to you and something should be done to treat you now. Period.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


Julie1014
Veteran Member


Date Joined Oct 2005
Total Posts : 1245
   Posted 8/31/2008 2:08 AM (GMT -7)   
(((Celey))) Sending big hugs and prayers your way. I'm so sorry you are suffering so badly right now. Blessings, Julie
Diagnosed with Crohn's March 2006
Asacol 3 times a day, Remicade 10mg/kg every 4 weeks, Prednisone 11mg/day, Imuran 50mg, Miralax as needed, Prevacid 30mg, Vit B12
Paxil 40mg daily (for Panic disorder)
Xanax .5mg as needed (for anxiety attacks)
 
 
 
 
 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 8/31/2008 5:14 AM (GMT -7)   
Celery,
I hope your stress level has gone down some. I do think you need to get a second opinion, is there a student health center where you are?  Just fyi some hospitals have taxi vouchers, so you can ride for free.  Personally, I had to wait until one of my ovarian cyst burst, to get surgery for it, because with crohns it is a risky, and I wonder if that is why your obgyn is waiting. 
Please take care!
Navy


Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...

Post Edited (MMMNAVY) : 8/31/2008 7:21:46 AM (GMT-6)


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 8/31/2008 5:51 AM (GMT -7)   
More hugs being sent your way!!! You said the hospital sent you home b/c they didn't have a gyno dept. What if you tried an ER at a hospital that did have one. This is way more than you should have to handle. I would also call your retiring gyno and read him the riot act. Such as - if you were not retiring you would think my case was an emergency. Can you please put some pressure on another doctor to see me pronto. Last piece of advice: call the new doctors office yourself. I had a dermatologist appt set up by my PCP and I was going to have to wait months to get in. I called them to reschedule my appt because it was the same time as a class. They were like "there is no reason we can't get you in sooner." And I got an appointment in 1 month instead of 3. I was under the false impression that you always get in quicker when the doctors set up the appointment for you. The desk dragons might not have been aware of how serious your case is.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 8/31/2008 1:08 PM (GMT -7)   
All that calling... :(... Man... *I don't have very many minutes left on my cell phone because of all the calling I've already done* Someone else around here suggested that I should try a different ER, too... but my advisor and my counselor are afraid I'll get the same result... and my advisor doesn't want me to miss anymore class... *As it is I've been dropped down to a part-time student due to my ill health.... I'm only taking two classes now... It sucks, but I know I can't handle more than that at this moment. Not when I'm throwing up everything I eat all the time*

When my counselor (because of my minutes situation) called my old OBGYN, he told me that he had tried to get me in as quick as he could... We tried calling the hospital where the new OBGYN works... but we didn't make any headway there, either...

I still do have to call my rheumatologist... to set up another appointment with her and tell her how everything went at the hospital... maybe she could help me...

I dunno how much good calling my PCP will do.... but... maybe he can help... and if he can... I won't switch doctors... (Because I've been having a dislike for my current PCP...)
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.

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