What happens when you eat a food that doesn't agree with you?

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Aerosmithkat
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 9/1/2008 9:16 PM (GMT -7)   
So i'm still learning what works for me and what doesn't as far as diet goes. I've been getting all sorts of varying reactions.. most being minimal discomfort. I have noticed some foods cause looser stools and increase my stomach pains for a day or two after i eat them i.e. corn on the cob, milk products. I presume the stomach pains are in increase in inflammation? It does seem to go away after a few days of going back to foods i know agree with me. Just curious how everyone else learned what did and didn't work for them and how they felt afterwards.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/1/2008 9:24 PM (GMT -7)   
I'd really like to ask the same. I wish I could help you, but so far there is no consistency. I will lose bowls of blood for a few hours, then have a solid and liquid stool in the same BM, feel fine one minute and then rather uncomfortable the next. All this within the span of a few hours and no change in diet. IF there is a change then it doesn't stay consistent with the ingredients. I tried dairy the other night and felt fine. I tried it later and did not feel fine. It's all rather irritating if you ask me..I have no idea how to tell at this point :(
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


CrohnnieMan
Regular Member


Date Joined Aug 2008
Total Posts : 190
   Posted 9/1/2008 9:29 PM (GMT -7)   
I am the same way. There have been a few times that right after I ate I knew it wasn't going to agree with me. I know to stay away from spicy stuff, but it is very hard for me to do so. One day I will cheat and be fine and before you know it I had eaten a bunch of spicy and wish I never did....

Aerosmithkat
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 9/1/2008 9:30 PM (GMT -7)   
yeah the whole just-try-it-and-see-what-happens mentality is very annoying LOL. I get concerned i'm doing damage but i'm not sure what else to do. I've been on a prednisone taper and i'm down to the last few weeks, so last thing i want is to try foods and have it throw me back in a full flare. I am on Asacol as well so hopefully, that will keep me from having any major issues as long as i'm careful with what i try.

Aerosmithkat
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 9/1/2008 9:31 PM (GMT -7)   
ChronnieMan said...
I am the same way. There have been a few times that right after I ate I knew it wasn't going to agree with me. I know to stay away from spicy stuff, but it is very hard for me to do so. One day I will cheat and be fine and before you know it I had eaten a bunch of spicy and wish I never did....
I hear ya LOL I LOVE spicy food.. like it so hot i can't taste it but i wouldn't dream of eating it the way i used to. I did try some very mild thai rice this weekend and i think that might be why i feel yucky today :/

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/1/2008 9:32 PM (GMT -7)   
I'm also on a prednisone taper so I wonder really what is having a truly negative effect? I suppose the easy way would be to continually stick with one food and try it for a few days. Although that's rather difficult sometimes I think. Especially when you're on a drug like prednisone. I swear this appetite...
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2688
   Posted 9/1/2008 9:34 PM (GMT -7)   
My "no no" foods can cause cramping, gas, and D. Sometimes I'll just get one of those, or sometimes I'll get them all. Depending on how bad it hits me. Unfortunately most foods are hit and miss for me. Sometimes I can eat them and be fine, the next sick as a dog! Don't get that one!

But honestly, I've never had a food cause a full blown flare. That's always been the inflammation levels in my body. Food can just aggravate what's going on in there already.


~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Just finished tapering off Prednisone *YEAH*, Asacol, Questran, Toprol XL (for high blood pressure).


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/1/2008 9:37 PM (GMT -7)   
You may find keeping a food journal handy, so it's more easily recognizable as to which foods/beverages don't agree with you...research has shown that there are definitely things that can exacerbate symptoms of IBD, trying to cut all of them out completely and going from there may be beneficial in finding what other things (if any) also don't agree or will exacerbate...things like; caffeine, animal fats, processed foods/beverages, fast-foods and for many even alcohol (it's hard on the colon) and sugar as well as sugar substitutes/artificial sweetners, especially sugar alcohols which are anything ending in "tol" xylitol, sorbitol malitol, ect.

It's not impossible to substitue many things, like instead of butter use extra virgine olive oil (soooo healthy and beneficial), I also find using honey or Stevia as a sweetner healthy and beneficial as well...

Infact you may find that once you've altered your diet in the way of avoiding the things mentioned above, not only might you notice extream improvements with your crohn's but you'll more that likely notice more energy and altertness....there's nothing but benefits to eating/drinking all healthy from the inside out, mentally, emotionally and even the appearance of your skin improves...don't think of it like you're "giving up guilty pleasures" either because believe it or not your entire body adjusts to these changes and your taste buds are included.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Aerosmithkat
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 9/1/2008 9:43 PM (GMT -7)   
LMills said...
I'm also on a prednisone taper so I wonder really what is having a truly negative effect? I suppose the easy way would be to continually stick with one food and try it for a few days. Although that's rather difficult sometimes I think. Especially when you're on a drug like prednisone. I swear this appetite...
I wonder the same thing. I noticed a lot of my indigestion issues seem to be getting better as i'm on less prednisone. I started at 50mg and i'm down to 15mg.. going to 10mg on Wed. I'm not as bloated or as hungry as i was before. What type of taper are you on? I know when i was at 50 mg, i could eat 5 regular meals a day easy along with snacks LOL It was wild!

Aerosmithkat
Regular Member


Date Joined Aug 2008
Total Posts : 21
   Posted 9/1/2008 9:46 PM (GMT -7)   
pb4 said...
You may find keeping a food journal handy, so it's more easily recognizable as to which foods/beverages don't agree with you...research has shown that there are definitely things that can exacerbate symptoms of IBD, trying to cut all of them out completely and going from there may be beneficial in finding what other things (if any) also don't agree or will exacerbate...things like; caffeine, animal fats, processed foods/beverages, fast-foods and for many even alcohol (it's hard on the colon) and sugar as well as sugar substitutes/artificial sweetners, especially sugar alcohols which are anything ending in "tol" xylitol, sorbitol malitol, ect.

It's not impossible to substitue many things, like instead of butter use extra virgine olive oil (soooo healthy and beneficial), I also find using honey or Stevia as a sweetner healthy and beneficial as well...

Infact you may find that once you've altered your diet in the way of avoiding the things mentioned above, not only might you notice extream improvements with your crohn's but you'll more that likely notice more energy and altertness....there's nothing but benefits to eating/drinking all healthy from the inside out, mentally, emotionally and even the appearance of your skin improves...don't think of it like you're "giving up guilty pleasures" either because believe it or not your entire body adjusts to these changes and your taste buds are included.

:)
Thanks for the input, pb4! I did start a food journal when i left the hospital but got out of the habit, i must admit. I should probably pick it back up again and stick with it. I stay away from the obvious offenders for the most part. It's so hard sometimes finding out how my "new" gut responds to things now. The stuff i consumed before would scare the hell out of me now (Thai style fried rice extra hot, couple brews with friends, chicken fingers, etc)

kiansmum
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/2/2008 2:18 AM (GMT -7)   
i know everyones diffrent with the foods they can and cant eat,i keep away from spicey foods,eggs,high fibred foods,microwave meals,onions,peppers,tomatoes etc.
these all seem to have a bad reaction with me,i eat small amounts of veggies at a time cause i find if i eat too much im straight up to the loo with cramps,wind and lack of energy.

the expression "trial and error" seems to pop up all the time grrr.

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/2/2008 5:40 AM (GMT -7)   
I started on 40 mg the first time and went down 10 mg a week, but that just made me flare up again. I did eat a LOT on that one though seriously. I hear you about the five meals a day and snacks. God that was wonderful. After it stopped working though I stayed on 40 mg a good part of the summer just to be able to stay awake more than 4 hours a day and now I'm tapering down from 40 mg again. Currently on 25 mg going down 5 mg every Saturday. I'm a little afraid to see what happens this time eh. How is your taper now though? Hopefully it's not taking away the good effects???

When you guys eat something to find out if it doesn't agree with you how long do you wait until you know? I was wondering because sometimes I will eat something and then feel sick afterward, but I think it's barely been enough time for that food to have been registered by my stomach..OR it will be say that I eat the usual bland crackers or something along that line, 5 minutes later have diarrhea, then eat something not so good like chicken alfredo and an hour later go with semi-formed stools and no cramping. There is no consistency :(
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/2/2008 8:39 AM (GMT -7)   
PB4 has the best idea, and that is a food diary. Maybe some foods don't bother you right after you eat them, but could affect you the next day. You really need to keep track and stay away from the danger foods. You will find you will cheat occasionally but it won"t be long before you know you won't do that again. Dairy is really hard on most Crohnies systems.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/2/2008 11:43 AM (GMT -7)   
The food is only a part of the equation. The larger part is the state of your gut. If permeability is high, all kinds of problems follow. If permeability is low, food does not matter so much. Following is a quote from a paper titled "Mucosal antibodies in inflammatory bowel disease are directed against intestinal bacteria."

We have previously shown that during
relapse of CD intestinal permeability is
increased3-5 allowing access of luminal constituents
to the mucosa. The acute inflammatory
response is, however, quantitatively an
order of magnitude greater than in other
conditions with similarly increased intestinal
permeability.5 This is probably caused by
increased intestinal immune responsiveness
caused by the underlying disease. The importance
of the interaction between luminal
antigens and the mucosal immune system as
the mechanism of relapse in inflammatory
bowel disease (IBD) is suggested by the following
findings.
(1) Known causes of relapse (intestinal
infections, non-steroidal anti-inflammatory
drugs, and stress) all increase permeability
across the epithelial cell layer or have the
potential to do so.5 6 Moreover, normal intestinal
permeability in patients with CD predicts
a long remission, whereas increased permeability
heralds relapse.4 7

It gets a bit technical after that, but you can see the importance of maintaining low gut permeability. Another paper - "Inflammation rather than nutritional depletion determines glutamine concentrations and intestinal permeability" states:

Results: The presence of inflammatory activity had significant negative effects on glutamine concentrations in contrast to the presence or absence of nutritional depletion. Similarly, intestinal permeability increased during active inflammation but not in depleted patients. FFMI but not inflammation was related to villus height.

So people who have inflammation have increased gut permeability - adding fuel to the fire in your gut. Getting the inflammation under control, keeping nutritional levels high and using a glutamine supplement all help to lower gut permeability. How to control inflammation is the tough question.

Post Edited (Keeper) : 9/2/2008 12:54:56 PM (GMT-6)


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 9/2/2008 11:53 AM (GMT -7)   
I get excruciating pain, lots of gurgling (followed by pain), extra D. I swell up like I'm pregnant. It's not good.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/2/2008 12:00 PM (GMT -7)   
BTW, I strictly control my diet because if there is any increased gut permeability, foods that you react to make the problem worse by causing an allergic inflammatory response.

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 9/2/2008 2:42 PM (GMT -7)   

Yes everyone reacts differently to different foods, but there seem to be two pretty constant themes I have heard over the years:

1. If it feels hot on your tongue, it will likely feel hot to your gut. Since Crohns is an inflammatory disease, foods like spices that increase inflammation make little sense.

2. If you have any level of obstructive disease, stay away from foods that are more likely to get stuck -- nuts, corn, etc.

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