Ok, so I just found out today that my Medicare "coverage" disqualifies me for Humira Patient Assistance and leaves me with a $4000+ deductable which I cannot even REMOTELY cover. So, yeah. No more Humira for me.
I'm freaking out because:
#1 I was given the loading doses in the hospital last month, and sent home with the booster pack which I administered two weeks later. Does this mean that I am going to have to pay out of pocket for those doses since my insurance doesn't cover this? OHMIGOD. I'm NOT looking forward to getting THAT hospital bill.
#2 I've started the Humira. I don't even know if it's working, or if the Prednisone is just skillfully hiding symptoms. What would be the side effects, if any, of starting this drug and barely even getting my foot in the door - so to speak - before stopping it?
#3 My doc and I felt that the Remicade wasn't working, but I didn't have any "bad" or "adverse" reactions to it. Would it be safe, do you think, to maybe try the Remicade one more time and just hope and pray that I haven't developed antibodies? My last infusion of Remicade was on April 2nd of this year. My last Humira shots were on August 22nd. Should I give the Humira time to get OUT of my system before I try to put the Remicade back IN?
Does anyone have any experiences that might help me here? I'm grasping at straws.
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)
"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."