new grossest thing I ever did because of CD

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Veteran Member

Date Joined Jan 2006
Total Posts : 3129
   Posted 9/4/2008 9:01 AM (GMT -6)   
OK I know you guys can take the gross things.....I spit on toilet paper before I wiped with it.  I felt like a gross animal!  But hey it was camping, the toilet paper was rock hard, I quickly ran out of baby wipes (someone used them instead of showering!) and after three days the tushy said NO MORE!
OK confession done  cool
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 9/4/2008 9:13 AM (GMT -6)   
You do what you have to do. Spit can't be any worse than poo, so if you have to save your bum, then you save your bum. Oh the things we do.....

Veteran Member

Date Joined Jan 2005
Total Posts : 1709
   Posted 9/4/2008 9:47 AM (GMT -6)   
You weren't being were being resourceful!

Regular Member

Date Joined Feb 2008
Total Posts : 298
   Posted 9/4/2008 12:36 PM (GMT -6)   
I would have done the same thing! That is a GREAT idea!!!

When I ride my bike in the middle of nowhere I look for great places to poo, just in case it ever happens. It never has, but if it ever does, I want to be hidden behind the best weed or cactus there is!!

Elite Member

Date Joined Feb 2004
Total Posts : 20552
   Posted 9/4/2008 2:02 PM (GMT -6)   
LOL, we get the best "crappy" ideas here don't we!

My bum is broken....there's a big crack down the middle of it! LOL :)

Veteran Member

Date Joined Jul 2005
Total Posts : 733
   Posted 9/4/2008 2:25 PM (GMT -6)   
I agree - that's being resourceful!

My husband has a story about a friend of his growing up that would go hunting for the day and always came back with only one sock. The guy's wife thought he was being unfaithful and just losing his sock at the unknown mistress' house. Turns out he just liked to poop in the woods while he was hunting and his preferred method of wiping was his fancy long and soft tube sock!

I've always kept that in mind in case of emergencies. :-) But I certainly don't see anything wrong with adding your own "moist" for a "moist towelett"! You gotta do what ya gotta do!
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 9/4/2008 5:21 PM (GMT -6)   

Haha, I do something similar but I use water from the sink....cold water =)

I also have baby wipes right next to the toilet, but even those sometimes irrate me.

Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:1 Bowel Resection, Gallbladder Removed. Another Resection Scheduled for September.
Current Meds: Humira (weekly), 75mg Pred (tapering down 20mg a week to prepare for surgery, not looking forward to the flare that I know will come at 40mg lol) , Levbid, Nexium.

Veteran Member

Date Joined Apr 2006
Total Posts : 1665
   Posted 9/4/2008 8:58 PM (GMT -6)   
I am impressed! yp
49 y/o woman.  Diagnosed 4/06 after colonscopy, SBFT, CT-scan all showed crohns. 3 months later, after pred and remicade, all tests showed no crohns. December '06 had adhesions cut through a laparoscopy. Now taking Glycolax, Ultra Fiber Plus, Florastor, and DHEA. Have become gluten-free diet per naturopath's tests.

Regular Member

Date Joined Feb 2005
Total Posts : 455
   Posted 9/4/2008 9:51 PM (GMT -6)   
ahh man that's nothing...not even close to some of the things i have done when I realized the stall was out of TP lol. The sad part is I am sure most of us can guess what it was.
SCD since 01, remission since 01, occasional Arby's breaks :)

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 9/5/2008 10:42 AM (GMT -6)   

I think you were very resourceful... and it was not that gross.

I like the story of the sock too. that is a good idea. When I am bike riding with the family I might have to remmeber that for emergencies.

I am sure all of us have done something gross due to CD. The whole disease is gross anyway.




Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam 


New Member

Date Joined Aug 2008
Total Posts : 4
   Posted 9/5/2008 9:31 PM (GMT -6)   
Amen to all of our survival techniques, that would be a great book for CCFA to publish, everyone send in their most memorable, yet horrible experience and also their most embarrassing moment with this shi**y disease. OMG the flash backs I'm having after 35 years of dealing with toilet issues.

Veteran Member

Date Joined Jan 2007
Total Posts : 656
   Posted 9/6/2008 6:26 PM (GMT -6)   

This is the story of the day I somehow didn't die.

It's a month after Hurricane Katrina. My daughter's apartment sat under six feet of toxic sludge for several weeks, which has now drained off. I've volunteered to help her go back into her apartment to try to find something--anything--salvageable, since she's lost absolutely everything she owns. When you go into one of these post-Katrina wrecks, you have to wear full protective gear: respirator, gloves, heavy boots--and you don't take anything that may get contaminated (no cell phone, no wallet, nothing). So my daughter and I go to her apartment. She drops me off, but has to go and pick up a marooned friend twenty minutes away. She wants to take me with her, but I'm feeling fine--and I convince her to leave me there to go through her soggy possessions.

There's nothing open for ten miles in any direction. No restaurants. No private homes. No water service, anywhere. No electricity. The front and rear doors of each apartment have been taken off, and each apartment is covered with toxic black mold; anything left inside is still damp, smells awful, and is full of mold, mildew, and stains from the toxic chemicals in the water. There are a few other residents, all male, wandering around, trying to pick up the pieces of their lives.

And then the Crohn's attack comes, with its usual urgency. And I'm totally stuck. What am I supposed to do? I'm sure as heck not sitting on the disgusting, moldy toilet. I don't know how I'm going to run outside and do anything in the parking lot, with the guys hanging around. I have nowhere to run to and nobody to call. I can't strip off my pants, because I'll get contaminated if I have to take off the boots (covered by impermeable booties). I am seriously stuck.

Oh yeah--and I'm on immunosuppressant drugs. Even better.

Finally I grab a moldy shoebox. hide behind an interior door, lower my jeans and do my thing in the box. But now I have an even worse problem: what am I going to wipe with? I keep toilet paper in my purse, but you can't bring a purse into such a contaminated, dangerous environment. I realize I'm standing next to my daughter's dresser, whose drawers have swelled and exploded, spilling her soggy clothes onto the muddy floor. At the top of the pile is a white t-shirt: damp and smelly, but not stained with mold. Regretfully, I use it to wipe with, feeling as if I'm signing my death warrant. (I've heard about people who have handled moldy family photos and gotten ill and died within 48 hours.) I put the dirty t-shirt into the box and take the whole thing outside into the parking lot, where I leave it in a pile of debris that smells even worse.

And then I go home and wait to see if I die. And I don't.

And I never tell anybody this story . . . until now.

This is without a doubt the worst Crohn's experience I've ever had. The others have just been mortally embarrassing; this one could have been fatal. I'm really really glad that it wasn't and that I'm still here (to enjoy 2008's hurricanes, I guess).


Regular Member

Date Joined Jul 2007
Total Posts : 53
   Posted 9/6/2008 7:06 PM (GMT -6)   
nawlinscate, I think what comes out of our butts could kill almost anything-you are living proof!
Dx'd 5/07, azasan, florastor, fish oil, B12

Veteran Member

Date Joined Mar 2007
Total Posts : 900
   Posted 9/7/2008 2:11 AM (GMT -6)   
Nawlinscate.... that is the funniest story I've ever read... full of "keep you on the edge of your seat" moments. I never laughed so hard.
I love the sock story too....
I guess they are only funny to crohnies because I read them to my 19 year old daughter who said." I see no humor in this whatsoever!" which made me howl even louder. !
Thanks for the laugh guys. JUst what I needed .
51 yr.old retired RN,Crohn's D for last35 yrs..severe esophagitis, migraines,strictures,urethral stricture,depression,probable MS.,RLS, arthritis, PTSD ,general anxiety disorder.

Veteran Member

Date Joined Mar 2007
Total Posts : 1642
   Posted 9/13/2008 9:48 AM (GMT -6)   
nawlinscate, that must have been awful... I am glad you survived and did not get sick.


Karen (Karendee)

Diagnosed w/ Crohn’s Disease  March 2007 Started Humira June 2008 (have been on other cd meds)

Diagnosed w/  Fibromyalgia May 2007 on Soma and Lyrica

Diagnosed w/ General Anxiety Disorder in 2005- Effexor and Clonazepam 


Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 9/13/2008 9:18 PM (GMT -6)   
ok-- this is the perfect thread to finally reveal the funniest (embarrasing) thing that has happened to me...years ago we were camping in Sedona, AZ.  I woke up right after sunrise and had to go!  I walked pretty far away from camp, dropped my pants and squatted.  Nothing but pristine nature around me...A few minutes later a Pink Jeep Tour appears literally 8-9 feet away from me!!  hahaha...They were sightseeing and were crusing around a bend on an unpaved road.  I bet that wasn't the sightseeing they had been planning on.  What did I do...why I smiled and waved of course!  What else!  :-)

Regular Member

Date Joined Sep 2007
Total Posts : 246
   Posted 9/14/2008 2:35 AM (GMT -6)   
LOL man this is so cool lol :) sadly i have no embrassing stories yet mostly just hafing the entire contents of my illesostomy bag going all over me and the floor and bed at hospital,i was like to the nurse 'im sorry i shat every where" but i wasnt really embrassed so it dsnt count lol
dx 17 aug 2007
21 yrs old
23 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed 
150mg azamun
3000mg pentasa

Veteran Member

Date Joined Sep 2007
Total Posts : 565
   Posted 9/14/2008 7:32 AM (GMT -6)   
habs, anytime i feel overly embarrassed about something i mutter "eh, it happens". :D i am sure your butt thanked you for your heroic act!

since we are on embarrassing stories, here's one from my new job where i am sure they have secretly dubbed me stink girl. we have a bathroom with 2 stalls (god i hate that). we have a drain in the floor which i have heard people complain about garbage smells coming up from the floor. i noticed it once or twice that yeah, there is kind of an odor on some days. apparently they treat this with pouring bleach down the drain. anyways, i am in the 2nd stall, doing my thing, praying that no one comes in and of course, here come someone. one thing i have grown to hate is talking over the stalls. maybe cause i feel guilty about stinking the place up or i am just concentrating on not releasing any fowl sounds. i don't know! anyways, my co worker goes in the 1st stall and says "pewww! that drain is just awful today!", and all i can squeak out is an "oh, yeah i know, huh?". i think she figured out i was doing some serious business after she came and went and i didn't emerge from the toilet. i think i died a little in that stall that day. and then a few days ago, someone brought in bathroom spray! oh the humility!
.: stephanie :.
33 y/o female diagnosed 8/8/7 with crohn's of the terminal ileum w/ stricture/scarring
meddies: 6mp, percocet, trazodone, ativan, iron, calcium, folic acid & some other vits

Veteran Member

Date Joined May 2007
Total Posts : 1488
   Posted 9/14/2008 9:33 PM (GMT -6)   
All I'll add to this tread is use extreme caution under the following circumstances...

1. Never try to save the upohlstry in your car with a McDonald's cup (not even the super size)!

2. Never have a butt spaz moment while standing on a rain soaked clay hill in boots with 2.5" heels. Standing up after 20 minutes and not falling face forward could prove challenging!

3. And last but not least...never get into a stand off with a toddler on who "really" needs to go potty!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.

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