Thanks for your concern.
Some days it seems the more I read the more confused I get. I am begining to think he has UC not CD!?
Maybe someone out there can give us some ideas as he goes to a new DR on the 10th and they will refer him to a new specialist...may take months as it's the VA.
His last Dr did 2 colonoscopies in '06 within 2 months and this flare did a CT scan. Other than that it's literally been "try this med. if it works it was this DX" So he has been DX on symptoms alone. And they treat both so simularly.
He said a flare doesn't start with food...which I read somewhere today they don't anyway. He said he will be straining and it causes some blood and then after a few weeks of that it turns into a big flare. I told him we should take him to have a colonoscopy done during those "few weeks". When he had the last colonoscopy done they said "it looks like hamburger meat", but that was during a pretty bad time. All the biopsies were "inconclusive".
I am going to take your advice and work on the diary for him (secretary, SMILE). I'm not sure what we will have to do to get the tests run for Celiac and wheat intolerance, but I know that removing milk has helped.
We are switching to SCD gradual instead of jumping into it. Partly because of cost and partly because he likes food! If I took all his likes he would probably go into depression or knock my head off - because of the prednisone (JK). He HATES yogurt...this is the fun one. I have to figure how to doctor it so he will eat it =O) without sugar! (He may die without Double Stuff Oreos!)
It's a challenge, but HE'S WORTH IT! and it gives me something to do.
I spent all day yesterday making natural chicken broth and canning it, and canning carrots from our garden - for him. I think I'm kinda attached after 21 years with him. He just decided to test the "in sickness and in health" over the past 5 years - it was cancer before this.
BTW, patientspiders, I also "miscarried" - at 14 weeks (in 1992)...if you want to email me I have a beautiful testimony, if you want to hear it. We currently have four "little ones", two before and two after. But they are all big now - 20, 18, 14, and 12 ...
Husband Diagnosed CD '06:
secretary, cook, researcher, housekeeper, wife, nurse, comforter, etc.
and loving every minute of it!