Humira vs Remicade

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MKrahulec
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 9/4/2008 9:50 AM (GMT -7)   
I am a 24 year old female who has had Crohn's Disease for 10 years now. Although I have been on what feels like every drug known to man to , I have not been able to find one that works for me. My doctor has now advised that I should try either Remicade or Humira. I have been reading on-line about both drugs but really don’t know which one to go with.
With my insurance the cost will be about the same so that is not a factor. My biggest concern at this point is that my husband and I are wanting to start trying to have a child and I am concerned about the side effects of each drug to my baby. Any insight anyone can give is greatly appreciated. I would love to hear from any woman who have gotten pregnant while on either Remicade or Humira.
I look forward to any feedback anyone may have regarding Remicade vs Humira! PLEASE HELP! I am so confused and just want to get started on what I am hoping is the road to recovery!
Michelle

patientspiders
Veteran Member


Date Joined Jul 2005
Total Posts : 733
   Posted 9/4/2008 1:58 PM (GMT -7)   
First of all, Welcome - I'm glad you found us! And there are a couple of women on here that I'm sure will chime in later this evening with their experiences, but in the mean time to tide you over...

Most people seem to try Remicade first (myself included). It was a wonder drug for me for a little over two years. I found enough women on this site, and through my research, that I was completely prepared and comfortable getting Remicade through any potential pregnancy. There are suggestions as far as time windows (i.e. try to plan to get pregnant immediately after an infusion, and make it as far through the first trimester as you can before your next infusion, etc.) but I'll let Stef17 or someone that's been through it lay all that out for ya. Bottom line is - there are lots of "Remicade Babies" out there and they are doing JUST FINE. :-) Humira hasn't been around as long, so it's harder to find people who have had "Humira babies", but there is a Pregnancy Registry for Humira and they are really trying to get a handle on how things go with that... might just be a little harder to find hard data on that one.

The first two years on Remicade were amazing for me, and had I been with my (now) husband and in the right "place" - that would have been the ideal time for ME to get pregnant. Fate didn't really work out that way, but I'm crossing my fingers for another "window" of feeling-good-oportunity. :-)

(oh, and just in case you see my signature about the miscarriage and think I'm full of hooey... the Remicade stopped working for me before several months before I got preggo - and then I flared during the pregnancy/miscarriage because I didn't see much point in continuing it if it wasn't working anymore, etc. I'm on Humira now, and hoping that it works so hubby and I can try again before too terribly much longer... I'm giving it a good six months of "YES I FEEL GOOD" before I get preggo again!)
26f, dx'd CD July '05 after 6 fistula/abscess surgeries
Currently running on Humira and Hope.
(miscarried at 13 weeks, now waiting to heal before trying again)

"Our greatest fear is not that we are inadequate, but that we are powerful beyond measure."

~Marianne Williamson


teddybearweiser
Veteran Member


Date Joined Oct 2004
Total Posts : 3042
   Posted 9/4/2008 2:16 PM (GMT -7)   
Hi and Welcome to Healingwell, I have been on remicade for 5 years now its been a wonderful drug for me. There are women on here whom have had babies while on remicade.
teddybear
Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital

in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.

My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
Also diagnosed with Osteoarthritis and Rheumatoid Arthritis


MKrahulec
New Member


Date Joined Sep 2008
Total Posts : 4
   Posted 9/4/2008 2:22 PM (GMT -7)   
Thanks so much! I am so glad that I found this website as well. Crazy to think that when I was first diagnosed I had never even heard of Crohn's Disease, now very rarely do I meet someone who doesn't know what it is or someone close to them who has it. Sure does make you wonder what is causing the increase in Crohn's Disease in our population?!?!?!

Anywhoo, it really helps to hear from others who are going through or have gone through the pregnancy while on Remicade/Humira.

Please keep the info coming!

Thanks!

UKpup
Regular Member


Date Joined May 2005
Total Posts : 213
   Posted 9/5/2008 7:35 AM (GMT -7)   
Although not a woman, I've been on both. Remicade was a wonder drug for me too, until I had to stop taking it. I was in the Humria trial after the remicade. I didn't respond to it while I was on it, but after getting off it I went into remission for about 9 months (very weird I know). Since last November I've been in an awful flare and was put back on Humira. I'm now off it again because I didn't respond to it. Next week I get my first Cimzia injection - maybe it will work better for me.
The funny story of my first abscess


******************************************
"I've got a fever and the only prescription is more
cowbell." --Christopher Walken
******************************************


Chasity102304
Regular Member


Date Joined Nov 2007
Total Posts : 165
   Posted 9/5/2008 11:54 AM (GMT -7)   
You can read a more in depth version of my story if you click on my name and check out the 2 posts about pregnancy and remicade if you want more info.. In short, I am 38wk/+5 today with my second child and have been on remicade the entire time. It was the only drug that worked for me and if I had not been able to stay on it (from the advice of my GI) then having another baby would have been out of the question for my husband and I. I had my daughter in 2005 and at 13 weeks started to flare pretty severely. At that time I was undiagnosed as Crohn's and there were not alot of tests being done to find out what was wrong with me. I was in the hospital 6 or 7 times for a total of over 30 some days throughtout the pregnancy. I lost 27lbs and thought I would literally die more times than I care to remember. This pregnancy has been wonderful!!! NO signs or symptoms of crohn's really to speak about. I always have "d" and it has continued with the exceptions of solid formed stools here and there which is RARE for me!! I also had some abdominal pains after eating here and there but when I talked with my GI and OB they both said they felt it could have been something "normal" pregnant women experience and there was no way to tell.
The last 2 weeks have been rough because my OB and GI disagree on when I should have my next treatment. It is supposed to be on 9/9 (8 weeks) but I have pushed it back to 9/11 and don't plan to have it until after the baby is born. I am 2cm right now and hoping to deliver ANYTIME and I mean that literally!! ;) There is also new info out about the baby not having live vaccinations within the first 6 months of life if you have a treatment in the 3rd trimester. I had a treatment at 31 wks but after talking to a midwife at my dr office yesterday, found out that there are no "live" vaccinations given within the first 6 months so I don't have to worry about that.
I would totally recommend taking remicade or humira if YOU and YOUR significant other are ok with it. Ultimately the choice is one you have to live with. It's so much better to be healthy when pregnant than to risk a flare. There are lots of others on here that can help you with info as well.. it has been very reassuring to me!!

GOODLUCK!!
Fibromyalgia DX March 2003
Crohn's DX Jan 2006 (Symptoms since 96-Misdiagnosed as "female" problems-Major flare during pregnancy in 05 which lead to DX)
1st resection July 2007
Currently on Remicade/8 weeks

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