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New Member

Date Joined May 2006
Total Posts : 15
   Posted 9/5/2008 6:25 AM (GMT -6)   
It's been a long time since I have been on this forum.....since I was last sick (2 years ago).  I have been recently getting back on because to seek information.
I see a lot of the same people posting.  I think it is great to have such caring people in the world who dedicated themselves to talking and sharing information with strangers.
Here is some information on me:
I was diagnosed with crohn's in 2003, at the age of 23.  I have had stints of Prednisone, Pentasa, and Remicade.  I also had surgery in 2005. 
My GI is Dr. Ashkar at the Cleveland Clinic - I am blessed that it is an hour away and that I receive some of the best care available.
Currently, I am having a horrendous flare-up. I am on Endocort.  I had a CT scan last week and the results showed active crohn's.  I had a colonoscopy Wed.....but I had narrowing so bad they could go that far.
I sense another surgery.  But I have to wait for the biopsies to come back.  Dr. Ashkar is going to put me on Humira when theings start to get under control.  Who know's when that will be.
If anyone has any comments, suggestions, or information.....please pass them on to me.
Thanks!  Hope everyone else is feeling great today!!

Veteran Member

Date Joined Apr 2008
Total Posts : 1753
   Posted 9/5/2008 7:39 AM (GMT -6)   
All I can say is probably most you already know to do: Rest, eat lightly, and don't let anything make you think you can overxert yourself right now. I'm sorry you're in a's amazing how difficult they can be.
If it gets really bad i.e. blood loss, excessive diarrhea, inability to function because of the aforementioned two and their resulting fatigue and/other debilitating properties, I would go in to an ER and see if they can hook you up to some IV's to calm things down before you begin other medication. I spent a week taking steroids and fluids via IV to "jumpstart" things as my doctor called it and then was able to better tolerate new treatment. Before that I believe I had some sort of blockage, but they were able to kind of calm things down and open them up so I could actually eat(I hadn't been able to for about two weeks before I finally went in to the hospital).

Anyway, good luck with everything. I really hope you feel better soon :)
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.

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