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Valorie
Regular Member


Date Joined Nov 2004
Total Posts : 64
   Posted 9/6/2008 6:05 AM (GMT -7)   
Help. I have been fighting dehydration for over 2 wks now.. i hate going to the er- i have been drinking vitamin water and regular water and orange juice. I have had intermittent diarrhea and night fevers and I cant seem to replenish. I tried to workout thursday nite as i thought i was hydrated and i couldnt do it- my heart rate was way up in the danger zone. I have noticed that my thinking and coordination are starting to go over the last 24 hrs and my bp is down while my pulse is up. I usually wait to go to the ER until I cant put sentences together- keep using the wrong words and make no sense whatsoever. When do you know to go? I hate to go and be a baby but just dont know what should be the cutoff point. Any advice?
 
Thanks-
Val

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/6/2008 6:13 AM (GMT -7)   
Try drinking pedialyte. It's a drink formulated for kids containing a lot of electrolytes to retain liquid. And of course force yourself to get water down..I'm still getting rid of my dehydration as well, but I'm really bad about getting the right number of glasses of water down each day.
As for the cutoff point before the ER..you don't sound like you're doing terribly well, but I wouldn't wait until you can't string two words together. If you feel like you need to go then for god's sake GO TO THE ER please :( So many of us question when a good time to go is, and I've come to realize that messing with things like this is just not a good idea. Health is more important than what other people think or trying to be 'tough.'
I hope you get something done soon, and I'm sorry you're feeling this way..I know it's not fun at all.
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


Valorie
Regular Member


Date Joined Nov 2004
Total Posts : 64
   Posted 9/6/2008 6:24 AM (GMT -7)   
thank you.. i think you are right.. I am now running a fever and am so nauseous from all the water.. i am trying very hard not to lose more topside as well as down! I am going to lay down and try not to get sick and then will go. I do usually wait too long and then always say I wont till the next time. It is so hard to say uncle. Thanks again- you helped with just your reply. I guess we all look for validation,,, its so hard with a chronic illness to have to ask for help time and time again.. we all just want to be normal or whatever passes for it!
 
Val

LMills
Veteran Member


Date Joined Apr 2008
Total Posts : 1753
   Posted 9/6/2008 8:45 AM (GMT -7)   
No, no believe me I know..I almost died from being stubborn that way this summer hah. I think too many of us are like that, but it's so hard not to be!!! I hope you feel better soon..
20 years old, Diagnosed with severe Crohn's and colitis in May of 2008.
Currently taking:
Prednisone, pentasa, alinia, bentyl, prilosec, tandem plus, and the occasional ultracet
Surgery for ectopic pregnancy(very possibly due to Crohn's inflammation) in July of 2008.
Due to start Imuran September 17 depending on blood results.


RxCrohnie
Regular Member


Date Joined Sep 2006
Total Posts : 146
   Posted 9/6/2008 6:50 PM (GMT -7)   
I went to ER last weekend for fluids and pain management. My labs showed that I had developed metabolic acidosis due to bad dehydration and I had low potassium. I had been feeling pretty rough with dizzyness and severe fatigue. But the point of this is not to wait to long. I have not been able to eat much for about 2 months now because of the pain, which caused the dehydration. Have any of you had this metabolic acidosis before?
35 yo--Crohns since 2000, Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001.  Dx with Fibromyalgia in 2007 and IC in 2008.  Now receiving Cimzia, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, Fish Oil, and Multivits   
 
RxCrohnie 


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 9/7/2008 12:00 AM (GMT -7)   
2 years ago, I got hit with a stomach bug from hell. I was fine one minute, driving my husband home from his doctors appointment and it hit me in the car about 10 minutes from home. I was going both ways for 4 hours straight. By the time there was a slight break, long enough for me to get to the ER with out ruining the car, maybe 4 and a half hours, I was so dehydrated, they couldn't find any veins to put the IV's into me. THAT is how quickly it became a serious emergency, 4 hours. I ended up haveing to be addmitted and stay for 4 days so that they could build my supplies back up. I knew dehydration signs for kids and infants but I really didn't know that it coudl go so fast with adults.

If you think you are dehydrated, go to the hospital, please. Dehydration is serious business.
Suzanne

CD 19 years offically, 29 unofficially. 3 resections '93, '95 '97
Symptoms constantly but all tests show only minor ulcerations. Currently having multiple episodes of gastritis with no known cause.


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Valorie
Regular Member


Date Joined Nov 2004
Total Posts : 64
   Posted 9/7/2008 9:05 AM (GMT -7)   
Thanks to everyone for your replies-
 
I did go to urgent care this am and they wouldnt give me an infusion. They questioned me very aggressively how I could know I was dehydrated. Apparently my crohns dx and prior hospitalizations and infusions mean nothing. They checked my urine discovered I have a bladder infection and sent me on my way. They said that because I wasnt spilling ketones I couldnt be that bad and that it was the bladder infection making me feel so bad. I dont doubt i have a bladder infection but i also know when i am dehydrated= my brain is foggy, i have no appetite or thirst, little pee etc.. it kills me.. i have been admitted to the hospital before when i wasnt spilling ketones. i can call my gastro and tell him i need an infusion and he trusts me and sets it up.. its not like it is anything i would be scamming to get to do! so i am starting the antibiotics and will see how I feel and then call him tomorrow if need be to get an infusion scheduled..
 
thanks for the support and letting me vent..
Val

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 9/7/2008 9:55 AM (GMT -7)   
I am so sorry Valorie. That was a crappy way to be treated. Please be careful with those vitiman waters some contain stuff that is going to dehydrate you worse. I think the pedialyte recommendation is a good idea.
Forum Co-moderator - Crohn's Disease
We will find a way, or make one.-Hannibal (crossing the Alps in the 15th Century on war elephants) 
Make sure your suffering has meaning...
All suggestions/options/opinions are caveated with please consult with your local health care provider...


Cookie's Wife
Regular Member


Date Joined Aug 2005
Total Posts : 299
   Posted 9/7/2008 10:13 AM (GMT -7)   
Sorry Valorie-I also always wait too long and then I'm sicker then sick. ER's can be so frustrating. I once had a nurse offer me asprin...yes you read it right...asprin when I told her the pain meds weren't working. Even the medical staff who are supposed to be professional sometimes don't get it! It's hard enough to explain to family and friends but you shouldn't have to to people that should already know. Only you know your body. I would definitly call your GI! Good luck!
~april
 

 


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