Hey Everyone! I hope some of you are feeling okay or even better GOOD today!
Last week, I remember someone posting a thread to me about the Stem Cell Research (I do not know the proper name) out of the Seattle Gastro and I wanted some more information on that as I think that is my next step. I live in Seattle and have talked to the lady in charge of it and she seems Fabulous. I am currently waiting to hear back from her and curious as to learning more about the Study.... Something new is always " good " in my eyes.
I was going to go on CIMZIA but when the new black box warning came out on it, I decided I really shouldn't. I have gotten bad infections (and a blood clot but don't think it was related to Humira @ all) on both Remicade and Humira and really don't think it is worth the risk. Especially since they didn't work for me anyways. I am sure if those 2 drugs did work for me, I would definitely be willing to possibly take the risk. Make Sense?!
I would love to know all about your experience and stuff so far!
Thanks soooooooooooo much,
I have had Crohn's since I was 21 years old and I am now almost 28....
I am currently on Prednisone and have tired literally every drug available.
Unfortunately, nothing has worked for me. But I will keep on going and trying everything possible!
Also recovering from a blood clot in my lung and of course the blood thinners really messed up my bleeding from my Crohn's....