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mom2carrington
Regular Member


Date Joined Sep 2005
Total Posts : 69
   Posted 9/7/2008 5:15 PM (GMT -7)   
Just wondering if anyone else can run?  I noticed last year after jogging through my neighborhood, I began to flair the very next day! I really thought nothing of it until I went to the gym and ran on the treadmill a month or so later and again, a flair two days later!  Every time I run it seems to jostle my intestines enough to cause inflamation and alot of pain a day or so later lasting sometimes up to a week as I have a stricture and when it gets inflamed, it causes a blockage!  I do miss running!!!  My husband, 7 yr. old son and I went to our favorite lake several weeks ago for some boating and jet skiing. (yes I also have to be careful not to hit big waves on the jet ski or I could flair!) Anyway, I caught myself running up the dock with our son to help my husband take the boat out. I stopped as soon as I realized I probably shouldn't be running. That evening, I fet the cramps and bloating start to come on. I told my husband (who by the way happens to be a Dr.) and he gave me some celebrex (for inflamation) right away. By bedtime, I was pain free but I believe it was because I didn't run very hard and we caught it early. Anyone else not able to run or be jostled around?

~Never officially diagnosed~
Appendectomy in 2001. Appendix perforated & gangrenous. Had pain off and on for 3 years prior. This is where all my trouble started.
Hospitalized in August 2005 with a bowel obstruction.
Colonoscopy showed definite colitis, SBFT showed narrowing of the Ileum and a possible fistula.
Both tests came back as consistent with CD.
2nd bowel obstruction February 2008. Got through it at home.
Currently not on CD meds. Following a low~residue diet and taking fish oil daily and Align probiotics daily.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/7/2008 5:58 PM (GMT -7)   
Ya, I can run like I'm being chased by death....when I have to go to the can that is.
 
Seriously though, there's a thing called joggers diareah, so running/jogging can upset the gut for sure.

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 9/7/2008 7:01 PM (GMT -7)   
I can't even walk too much without my knee protesting-then my rhuemy tells me if I keep doing that she is going to make me take Enbrel.

FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/7/2008 7:51 PM (GMT -7)   
Yes! I miss running dearly but anything that involves pushing my body to the limits brings on a flare. My hubby recently developed knee problems and is going to try to get us a swimming membership somewhere. I'll let you know how that goes instead.

I did find one program though that hasn't made me flare. It is called couch to 5k and you can google it. Anyway, you start out with a 5 minute walk than a 90 second run than a 120 second walk and repeat for 20 minutes. It eases you into running so you aren't pushing your body. Every could weeks the amount of running increases but the amount of walking in between sets increases too. Ive stayed at the beginner level and can do that so far without flaring.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 9/7/2008 10:46 PM (GMT -7)   
Everytime I try to run my whole system cramps up and I feel sick. I had most of my large bowel removed last year and i have always wondered if when i run my gut is jumbling around in all that extra space!

Cheers
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 9/8/2008 5:48 AM (GMT -7)   
Oops - when I said yes I meant yes Crohns has stopped me from running, not yes I can run. Sorry for any confusion.
26 Year old married female law student (last year!!). Diagnosed w/ CD 4 years ago, IBS for over 10 years before that, which was probably the CD. I am sort of lactose intollerant too but can handle anything cultured and do well w/ lactose pills and lactaid. For crohns I am currently on Pentasa 4 pills/4x day and hysociamine prn. I also have bad acid reflux and have been on PPI's since age 13. I have been through prilosec, prevacid, and nexium. Currently I am on Protonix in the morning and Zantac at night. I also take a birth control pill to allow some fun in my life.


Gracie Girl
New Member


Date Joined Jun 2008
Total Posts : 16
   Posted 9/8/2008 6:13 AM (GMT -7)   
A few years before I was diagnosed I was running up to 10 miles 4 days/week, along with weight training and mountian biking.  Slowly but surely I had to decrease my mileage and activity level. Like clock work about a mile into my run I would have to use the bathroom.  So I thought well let me buy a treadmill and then I could use the bathroom as much as I need.  Well that was not a successful solution either as my joints have increasingly become more of a problem.  I, like Fitzy, miss running dearly.  Running to me was like what prozac and ativan is to others.  I guess what is most frustating is that I have a mild case of crohn's but yet it has impacted my ability to engage in vigerous physical activity.  So I have decided to take a belly dancing class.  I figure it is low impact and hopefully it will make me more appreciative of the body I have and what it can do for me. 

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 9/8/2008 7:13 AM (GMT -7)   
I can run if I want to poop myself. lol.

Squattie
Veteran Member


Date Joined Jul 2005
Total Posts : 669
   Posted 9/8/2008 7:15 AM (GMT -7)   
Heck, I'm lucky if I can even walk! I find that if I have an active day...working, shopping, basic mobility....I seem to be wiped out the next day and crampy. So, I can pretty much count on one good day, one bad day, one good day, one bad day. Not bad enough to render me useless, but I do feel it.
.....Squattie


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 9/8/2008 7:21 AM (GMT -7)   
I think with CD we always have to start with the premise that everyone is affected differently...so just because you can't run without a problem certainly doesn't mean the same is true for others....and the opposite is true...just because someone can run without issues doesn't mean you or others can...
 
I think I said that right...
 
i was never much of a runner, just a fast pace on the treadmill before doing my weights...I also did a lot of kick boxing ....once the CD kicked in I had to give up all of it....I didn't have the energy for the weights...and the kick boxing, fast treadmill walking, and stationary biking caused me some major issues.
one real and not so humorous issue (I know some will smile at this) was when I would bench or curl some heavy weights...the strain on my body, especially my lower abdomen would/could result in an immediate need to find a toilet...my biggest fear was that I would just let loose with a load of weights over my head.
 
it has never been a problem dealing with the pain and mess of this disease...but the things we have to give up can at times prove to be too much.
dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
52 yrs old


Linjade7
New Member


Date Joined Sep 2008
Total Posts : 11
   Posted 9/8/2008 7:44 AM (GMT -7)   
I work at a resturant and do alot of walking, and that seems to be okay. If I work out, I get on a treadmill, jack the speed up to where I am speed walking and increase the incline. This allows me to still work up a sweat without killing my joints.
Diagnosed with Crohns May of 2008. Still in the experimental stage of drugs. Currently on Lialda and hopefull.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/8/2008 8:56 AM (GMT -7)   
Yeah I have no problem walking most of the time, but sometimes when my trolley was coming and I ran to catch it I would get really bad spasms in my low back. So I try not to run anymore becuz everytime I do I get the same reaction.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 9/8/2008 3:33 PM (GMT -7)   
I had to give up running as well, plus most other physical activities. Any time I did something strenuous, I had a small accident! Exercise was one of the most important things I did every day, and I've been a little lost since. I have been trying some vigorous walking, just a little at first (twenty minutes). I'm working my way up (thirty minutes now, whoo-hoo!), but as soon as I begin to feel I'm pushing it, I back off.
Brandon
 
36 y.o. male
Diagnosed w/ moderate UC in May '06 - currently flaring
Asacol, Florastor, VSL#3, Wellbutrin XL, Prozac, multi-vitamin, Allegra, Lialda


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 9/8/2008 5:36 PM (GMT -7)   
i gave up running (and long hikes and tennis and soccer and anything cardio in that nature) years ago. my legs/knees cant take it. perhaps from the prednisone causing osteoporosis??? i was fine before that med and played a lot of soccer and tennis and my highschool gym teacher tried to recruit me to do cross country cos i could do a 6 min mile without pushing myself to my limit (and he could see that). nowadays my knee(s) will hurt for days on end where i cant walk. it sucks. however i am fine on the exercise bike. go figure. but then anaerobic exercise is better anyway.
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/8/2008 5:36 PM (GMT -7)   

 

 

      Yeah. I can, but its pretty hard with the Osteo plus the CD. However, as soon as the weather becomes relatively cool & reasonable, I'll be restarting my program. When it hit the low 100's this summer, I gave up jogging. No sense stressing this old body past its limits!     turn

 

     Matthew


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 9/8/2008 8:19 PM (GMT -7)   
I can run sometimes, but I have to really make sure I am ok to go out or I risk an "accident." Nothing worse than having a "mess" and nowhere to clean up! Yikes! When I do run I tend to find a forest trail to run on, just in case I need to duck behind a bush!
--40 year old female, dx as UC in '04 (1st symptoms in '03), switched to Crohn's in '05, 1 fistula, crohn's colitis, limited to large intestine
--rejected (reaction/didn't work): Asacol, AZA, 6-MP, MTX, Remicade, Humira, prednisone
--methylpred - finally off 6/15/08, tried Prochymal in Phase III study (can't wait til it's approved!)
--started Tysabri 3/21/08
--single mom to 10-yr-old girl


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 9/9/2008 6:13 AM (GMT -7)   
I opted for walking and a stationary bike. I only walk on "safe" days and NEVER eat before taking walks!!!
Can I run? Yeah, all the way back to the house in nano-second speed if I eat prior to the walk!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


78SilvAnniv
Regular Member


Date Joined Apr 2008
Total Posts : 289
   Posted 9/9/2008 8:06 AM (GMT -7)   
I noticed shortly after I began suffering from symptoms that I couldn't jostle my insides or it would give me trouble. No running, jumping, leaning forward, bending at the waist and if I ate/drank anything, it seemed the peristalsis of the stomach and/or the different temperature of the food in my stomach, would 'activate' my guts. And for God's sake, don't poke or tickle me!
I've had/ridden horses all my life and in the past 5yrs I've switched to riding smooth-gaited horses. There is no way I could do a trot, nowadays. I do enough 'trotting' myself! ;-)
I have the ability of single-minded determination and accurate project focu....Hey, look, a cat!
 
Crohn's and UC are pretty darn crappy, but if you can't laugh at yourself, you'll cry. 
I'd much rather laugh.
2001 Dx'd with UC.  No remission.  5/2008 surgery, removal of 6" of left side colon.  Dx changed to Crohn's.  Remission for 8-9wks after surgery, symptoms returning after resuming 6MP.


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 9/9/2008 8:12 AM (GMT -7)   
thats so weird, i am total opposite...i can ride a bike or run all day and be perfect but the minute I lay down I feel the movement lol
SCD since 01, remission since 01, occasional Arby's breaks :)


hspenser
Veteran Member


Date Joined Dec 2005
Total Posts : 544
   Posted 9/9/2008 8:13 AM (GMT -7)   
take it a step further...if I lay on my left side then almost immediately I have gas pressure and have to use the john.  Even if i have just gone...then within 10 to 15 minutes I will have tons of pressure and have to get up.  Sleep on my right side no problems

dx IBS 1999   UC 2000   CD 2001
Tested BIOGEN TYSABRI (gave me 2 years of remission)
tried Naltrexone Jan. 19, 2007 Stopped the Naltrexone July 28th...started Humira Aug 31st, 2007...current dose two shots every other week.
Crohns is currently active and has been since April of 2005
52 yrs old


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 9/9/2008 8:20 AM (GMT -7)   
yep exactly..it is a good way however to clean yourself out on demand
SCD since 01, remission since 01, occasional Arby's breaks :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/9/2008 8:32 AM (GMT -7)   
Hspenser I have the same problem as you but on the other side. I can sleep on my left side no problem but can't on the right. Weird huh??
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/9/2008 6:23 PM (GMT -7)   
Gail, I get Reflux issues lying down on the right side..
As for running & the big D, well I had issues with that before the Crohn's! <wink>

Matthew

CrankyDurnit
New Member


Date Joined Sep 2008
Total Posts : 8
   Posted 9/9/2008 7:02 PM (GMT -7)   
I can't run. Exercising alone hurts, but running kills me.

eva124
Regular Member


Date Joined Sep 2007
Total Posts : 246
   Posted 9/10/2008 5:28 AM (GMT -7)   
i just dont exercise,i use to walk to and from work most days but as i got sicker i use to use my car just in case i needed to get home in a hurry,but i hafnt found physical activity to affect my crohns mostly just emotions which sounds weird,but if i get nervous,anxious or even excited i have to go to the loo any1 else gets this?
dx 17 aug 2007
20 yrs old
23 dec 2007 resection/temp illeostomy 14 feb 2008 temp illeostomy reversed  100mg azamun

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