how do you know if you have a fistula??????

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nrthngrl
Regular Member


Date Joined Jun 2008
Total Posts : 56
   Posted 9/7/2008 8:04 PM (GMT -7)   
I am just wondering how do you know when you have a fistula??? Is it very obvious or painful???? 
IBD(undetermined) 04-'07....Gastritis 04-'08....Fibro & CFS dx 06-'08....
 Asacol & Buscopan-IBDPantoloc-Gastritis, Nortriptyline-Fibro/CFS, Pramipexole-Fibro,  
Diazepam, demerol, codiene for pain
b12 inj, fish oil, folic acid, acidophilus. 


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 9/7/2008 8:24 PM (GMT -7)   
Good question. Unfortunately there is not a concrete answer. You usually learn you have a fistula b/c you find an opening somewhere on your skin (peri anal, peri vaginal, even tummy) that begins to drain or becomes an abcess. However, you could have one inside from an area of intestine to another OR--more seriously--from intestine to organ. These are usually diagnosed with some sort of xray or MRI, ect. Unfortunately, they don't always show up. Recto-vaginal fistulas make themselves known by discharge and/or gas from the vagina---then, unfortunately, one can have stool pass too.

Pain? Well, that's another question not so easy to answer. I believe that I had strange shooting pains in my lower abdomen when my fistulas were forming but there was no way to really prove this.

If you think you have a fistula, you should mention to your doc as this might change your treatment. GOOD LUCK.
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18193
   Posted 9/7/2008 8:47 PM (GMT -7)   
You could also google fistulas to find typicaly symptoms and more detailed info on them since everyone who has/had fistuals experiances likely differ in some ways from person to person, probably even from fistula to fistula.

I sure hope you don't have one.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 9/8/2008 8:05 AM (GMT -7)   
my peri-anal fistula seemed like a very large pimple/cyst that wouldnt go away. Finally it "popped" and just continued to drain.


33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


nrthngrl
Regular Member


Date Joined Jun 2008
Total Posts : 56
   Posted 9/8/2008 12:45 PM (GMT -7)   
Thanks you guys, it just gives me abit of insite on what to look out for.
IBD(undetermined) 04-'07....Gastritis 04-'08....Fibro & CFS dx 06-'08....
 Asacol & Buscopan-IBDPantoloc-Gastritis, Nortriptyline-Fibro/CFS, Pramipexole-Fibro,  
Diazepam, demerol, codiene for pain
b12 inj, fish oil, folic acid, acidophilus. 


MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 9/8/2008 2:03 PM (GMT -7)   
I actually have the same question kinda. Ive noticed since dropping down from the prednisone I have a weird discharge from inside my vaginal area, its like a redish yellow color, and has a sour smell (sorry if thats too much info lol) I dont have any pain from that area, I asked my GI about it and he said it might just be a side effect from tapering the prednisone, but I just find it really odd. Has anyone else had this happen?

Dianogsed with Crohns at 16, 21 yrs old now.
Surgeries:1 Bowel Resection, Gallbladder Removed. Another Resection Scheduled for September.
Current Meds: Humira (weekly), 65mg Pred, Levbid, Nexium.


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 9/8/2008 2:57 PM (GMT -7)   
MAG--sounds like you should see your gyn. S/he can see if there's a fistula opening in the vagina. Unfortunately, I wasn't seeing a gyn at the time mine was forming and my GI thought the discharge wasn't a fistula either. Good luck. Hope it's NOT a fistula!!
23 years with moderate Crohn's/colitis; fistulizing crohn's; pentasa, just started humira


nrthngrl
Regular Member


Date Joined Jun 2008
Total Posts : 56
   Posted 9/8/2008 3:31 PM (GMT -7)   
Yikes, MAG, I think you should go in and get that checked out.

I am wondering also can fistulas heal on there own????
IBD(undetermined) 04-'07....Gastritis 04-'08....Fibro & CFS dx 06-'08....
 Asacol & Buscopan-IBDPantoloc-Gastritis, Nortriptyline-Fibro/CFS, Pramipexole-Fibro,  
Diazepam, demerol, codiene for pain
b12 inj, fish oil, folic acid, acidophilus. 


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 9/8/2008 3:52 PM (GMT -7)   
With meds they can heal...although some require a little help from surgery.

Jen77
Veteran Member


Date Joined Mar 2006
Total Posts : 2204
   Posted 9/14/2008 2:47 PM (GMT -7)   
Mine started as an abcess, which burst in about a week. Very painful. Then the small hole would never heal up, and would continue to drain. The hole wasn't exactly painful, but would burn sometimes.

I wasn't aware of having Crohn's at the time. So they did a fistulotomy to repair it. It took a year to heal up!
~Jennifer
 
Diagnosed with Crohn's Disease 2/06 after sever GI bleed. Has been suffering since 1998. History of rectal fistula and gallbladder removal. Just finished tapering off Prednisone *YEAH*, Asacol, Questran, Toprol XL (for high blood pressure).


broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 9/14/2008 7:44 PM (GMT -7)   
This is a topic that set me off tonight. I was checking out another health info site and some info that was presented to doctors for diagnosis. Upon viewing the pictures, I realized that I had a condition referred to as HS which often appears in CD'ers and can be a pre-existing condition or marker of sorts of an impending exterior skin lesion or abcess. The picture showed what I would describe as a "boil like" area or nodule under the skin with a "pimple like" surface. I had noticed two of these on my body during my earlier treatments with remicade when I first was diagnosed. One was vaginal and the other one was on my shoulder where I had some compromised tissue from an injury. The remicade must have done it's job and cleared these up. I do remember they hung around for several months and nothing topical I applied made them go away. Heat compresses did help them drain. I was a little upset with my doctors upon this realization because my PCP, GI and GYN "ALL" knew about them and never said a word. I am not an unusually anxious person but I would have at least like the respect from my medical team to present possible occuring symptoms and effective treatment options. Isn't this WHAT WE PAY THEM FOR! I agree with PB4...google and learn all you can because YOU are your best advocate! Mag...please go get checked out by your GYN!
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.

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