Crohns Symptoms

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Roxette
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 9/8/2008 5:42 AM (GMT -7)   
Hi guys im calling on you for some info. I was only diagnosed last April and am still learning everyday about this disease.
Since i started pentasa and endcort my "stomach" problems have settled down i.e i have no diherria and very little stomach pain.
This made me think that i was in remission or going into remission??
Anyway the things that havent settled down is the joint pain, fever, fatigue and rash. Do some of  the crohns symptoms stay even when in remission??

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 9/8/2008 6:12 AM (GMT -7)   
Those other things are symptoms of active disease. Just b/c you don't have the bid D doesn't mean you're not flaring.

wibiff
Regular Member


Date Joined Feb 2008
Total Posts : 27
   Posted 9/8/2008 7:32 AM (GMT -7)   
I was also told that the joint pain in particular in kind of a "flare indicator" and that if your joints really start hurting it is your body telling you to watch out. I have been taking glucosamine with chondroiten and MSM for years, and that does seem to help with the joint pain a lot! Tylenol is helpful for the fever, just remember not to take more than 3000mg /day (wgich is six extra strength tylenol). Stay away from ibuprofen and aspirin if you can cause these are hard on your already inflammed, sensitive stomach. As for the fatigue, just try not to overdue it. rest when you get tired if possible, and don't try to tackle more than one major task every couple of days. I haven't figured out how to control the rash, other than when I'm on prednisone, and what with the moon face, buffalo hump and mood swings, I'd rather have the rash! LOL. Hope that answers your question. I am a nurse, so I try to look up all the meds related to crohns if i can. If you have any other questions, let me know

Roxette
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 9/8/2008 8:45 AM (GMT -7)   
Hi thanks guys for you replies. Im still kind of in the dark as to what is going on with my body and i have lots to learn about crohns. Im meeting with my specialist this thursday so hopefully she can fill me in some more.
This site is a godsend to be honest. When i was first diagnosed all my family were telling me how id have to change my diet etc but ive never found that any of the food i eat aggrevates my condition. The medication i was prescribed has defo. helped but thats all my doc seems to do. Throw medication at me and not explain things really.

wibiff
Regular Member


Date Joined Feb 2008
Total Posts : 27
   Posted 9/8/2008 8:52 AM (GMT -7)   
Which meds are you on? I'm sure that if your dr doesn't answer your questions very well, there are people on this site who could at least try to answer from experience. I know I feel better when I ask questions. Any way, hope you get the answers you seek. I would be happy to look up any of the meds or treatments you have questions about.

mom1978
Regular Member


Date Joined Sep 2008
Total Posts : 150
   Posted 9/9/2008 6:30 AM (GMT -7)   
Hi there, i am a 30 year old female, who has had ibs for quite some time, most recently in the last 6 months, i have had non stop diarrhea, and have lost about 35 pounds, every day i notice i lose more and more. I have had a colonoscopy, and a small bowel follow through, although nothing showed up, the doc still says that early stages of crohns can be hard to detect, therefor I will need to have another test in which they shove a tube down my throat under sedation. My symptoms are as follows, diarrhea, loss of weight, 35 pounds, abdominal and pelvic distention, hardly no appetite, becoming very full and distended even when eating a little, always feel nauseous, and am very very sore.
I was also diagnosed with fibromyalgia, having all 18 tender points as well as more degenerative disc disease than i should have at this age, in october of 2006,
I am not trying to diagnose myself, however, i am very sick, and need to know whats going on, i have a five year old girl and cant even look after her hardly, between the headaches, the fibromyalgia and the stomach and instestinal problems. I just would like some answers and some insights.
I do not see my doc again until october 13th, in which he will probably give me that other test where they stick the tube down your throat.
I really really hope that they can find out whats wrong with me, i dont know if im sore in my joints because of the fibromyalgia, or if im sore because of whats happening with my abdomen, ie, cramps, feeling sick, diarrhea, sometimes up to 20 times  a day, and its every day, not always 20 times a day, but there isnt a day goes by that i dont have it atleast once or twice.
regards, and thank you ,
I am also new to the forum, and not sure how to use this lol
kelly
 

aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 9/9/2008 8:05 AM (GMT -7)   
kelly i am sorry to hear that, must be hard with a child that young full of energy. You sound about like me when I first had signs of it, but i'm no doctor. I hope u feel better.
SCD since 01, remission since 01, occasional Arby's breaks :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/9/2008 8:51 AM (GMT -7)   
Kelly I would recommend you start a new topic and post your concerns there. I am afraid it will get lost in this other post.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/9/2008 8:54 AM (GMT -7)   
Roxette I think you will eventually have to adjust your diet. I think you are still able to eat alot of things becuz you are still on the steroids (Entocort). You might notice some difference once you are off them. And although I know you feel the doc is just throwing pills at you, this is something you need to get used to. Having Crohns you are going to need to take some kind of maintenance med to try to help keep your Crohns under control. Remember this is a chronic illness so we have to take care of ourselves everyday. Good luck~
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/9/2008 9:58 AM (GMT -7)   
Joint, eye, skin issues are all extraintestinal manifestations of having IBD, your actual CD symptoms could be in remission but that doesn't mean you won't have lingering issues with eyes, skin, joints, ect.

Even with CD symptoms of D, frequency, urgency, ab pain ect, there are varying degrees of remission...total remission from these symptoms means you experiance none of them, if you experiance some or any of them to a mild degree that wouldn't be considered "full" remission.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 9/9/2008 6:19 PM (GMT -7)   
My joint issues from my illness come & go DESPITE the active/inactive state of the CD. You can get arthritis flares without the big D from Crohn's. In UC they more often indicate activity/progression of a flare. I didn't know this until a Rheumy filled me in..

Matthew

CrankyDurnit
New Member


Date Joined Sep 2008
Total Posts : 8
   Posted 9/9/2008 6:39 PM (GMT -7)   
Severe joint pain can go along with the disease, like others have said. I ended up having Rheumatoid Arthritis along the way, so the Crohn's can be better but the joints might not always improve from what I've been told. Fortunately what I take (Humira) is supposed to treat both Crohn's and Arthritis. I hope you get some relief soon.

Post Edited (CrankyDurnit) : 9/9/2008 7:47:58 PM (GMT-6)


Keeper
Veteran Member


Date Joined Jun 2008
Total Posts : 1058
   Posted 9/9/2008 10:42 PM (GMT -7)   
There is some hope for the RA if some recent research results in a human therapy. They have cured type I diabetes in mice. They also mention unspecified "other auto-immune" diseases. The mechanism seems to be causing type CD8 T cells to die off for immune reactions that inappropriately target host tissue. This means that they may be able to do the same thing for RA. See: http://www.sciencedaily.com/releases/2008/08/080825175001.htm
This article is an update on the original one I saw and mentions phase 1 clinical trials!
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