a better year??

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redrose
Regular Member


Date Joined Feb 2007
Total Posts : 138
   Posted 9/8/2008 10:06 AM (GMT -6)   
Last year was a total bust. I had a small bowel resection in Jan. and in June had a total hip replacement due in part to steroid use for the Crohn's. I lost my job due to so much time spent in the hospital. Well, a year has gone by and I thought it was safe to leave my house again. I have been in remission for an entire year. Got a job in July. Two weeks later I got a letter in the mail from my orthopedic surgeon. My hip has been recalled by the manufacturer and likely will have to be replaced again. I went in and had X-rays and some physical tests and sure enough - I'm one of the lucky 25% who need a new replacement. Enter a terrible flair. I have been on Pentasa, imuran and many supplements. Now I have been on pred for 2 weeks with no improvement. I'm really feeling low and desperate and not real sure which direction to turn. I have decided to just ignore the hip for now - I just can't face more surgery. But I'm really concerned that the Crohn's is not responding at all. Just wanted to vent a bit. Things have to get better - right?
Redrose

Undiagnosed symptoms for many years. Dx w/ Crohn's in 12/06. Sm. Bowel resection (60cm.) 1/07
current meds: Imuran, pred., pentasa, kristalose, probiotics, omega 3, temazipam, oxycodone for continuing pain

Count your blessings - not your problems


gachrons
Veteran Member


Date Joined Mar 2007
Total Posts : 4527
   Posted 9/8/2008 1:08 PM (GMT -6)   
Hi Redrose Sorry you have to have a repeat surgery .Your right things gotta get better. I am just hoping that they get it right the next time and did your Dr. give you a time frame for your next replacement? Hope the pred. kicks in soon. What doseage are you on now? By the way what country are you in that you are having to have it replaced is it a world wide thing? Hoping that talking about it will help you .lol gail
Hallarious woman over 50 ,CD ,IBS 27 years--resection,fistula's,obstructions,and still alive.lol gail


redrose
Regular Member


Date Joined Feb 2007
Total Posts : 138
   Posted 9/9/2008 6:40 AM (GMT -6)   
I am in the US - Ohio. I'm on 40 mg. of pred now for a week, then 30 for a week, etc. I think I'm going to wait about 6 mo. on the hip so I have at least a little time on the new job before taking a month off.
Redrose

Undiagnosed symptoms for many years. Dx w/ Crohn's in 12/06. Sm. Bowel resection (60cm.) 1/07
current meds: Imuran, pred., pentasa, kristalose, probiotics, omega 3, temazipam, oxycodone for continuing pain

Count your blessings - not your problems

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