Crohn's Dictionary

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LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 9/8/2008 5:54 PM (GMT -7)   
Wouldn't it be great if someone created a dictionary for CD?  I'm not new to this scene, but I was thinking today, how many types of Crohn's are there?  I hear of Fistulizing Crohn's and Crohn's Colitis and don't really know what the differences are between them all.  Also, I was thinking of when I first came onto this site and couldn't understand what hardly anyone was talking about because of all the lingo, CD slang, and abbreviations.  So I thought for the newbies we could compile a list of all the funny (and i guess not so funny) terms we use.
 
I thought of a few obvious ones:
 
CD = Crohn's Disease
UC = Ulcerative Colitis
DD = D**n Disease
Crohnie = all our fun and fabulous friends that we meet here that have Crohn's!
 
I would love to compile a list of definitions and give them to my family!
 
so, post as many as you can think of!
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 9/8/2008 6:27 PM (GMT -7)   
C - constipation
D - diarrhea
MTX - methatrexate
dh - darling husband
LOL - laugh out loud (yes, I had to ask!! blush )
c-scope - colonoscopy
sbft - small bowel follow through

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)

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pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/8/2008 6:48 PM (GMT -7)   
Types Of Crohn's Disease

There are five subtypes of Crohn's disease, distinguished by the gastrointestinal area in which the disease occurs. While Crohn's disease lesions can appear anywhere in the digestive tract, lesions rarely occur in the mouth, esophagus, and stomach unless there are also lesions in the lower parts of the tract (intestines).

Gastroduodenal CD - Gastroduodenal Crohn's disease, which affects the stomach and the duodenum (the highest, or beginning, portion of the small intestine), is often misdiagnosed as ulcer disease. The correct diagnosis frequently is not made until various ulcer treatments have failed, or until Crohn's disease is identified farther down the gastrointestinal tract. Symptoms of gastroduodenal CD include loss of appetite, weight loss, nausea, pain in the upper middle of the abdomen, and vomiting.

Jejunoileitis - Jejunoileitis is Crohn's disease of the jejunum (the longest portion of the small intestine), which is located between the duodenum and the ileum. Symptoms include mild to intense abdominal pain and cramps after meals, diarrhea, and malnutrition caused by malabsorption of nutrients. (The majority of nutrients are absorbed in the jejunum.) Fistulas (abnormal openings in the intestinal tract) may form. These can link a diseased area of the small intestine to another area of the intestine or another organ, such as the bladder. Fistulas may increase the risk of developing infections outside of the GI tract.

Ileitis - Ileitis affects the ileum (the lowest, or last, part of the small intestine). Symptoms include diarrhea and cramping or pain in the right lower quadrant and periumbilical (around the bellybutton) area, especially after meals. Malabsorption of vitamin B12 can lead to tingling in the fingers or toes (peripheral neuropathy). Folate deficiency can hinder the development of red blood cells, putting the patient at higher risk of developing anemia. Fistulas can develop, as can inflammatory masses.

Ileocolitis - Ileocolitis is the most common type of Crohn's disease. It affects the ileum (the lowest part of the small intestine) and the colon (the large intestine). Often, the diseased area of the colon is continuous with the diseased ileum, and therefore involves the ileocecal valve between the ileum and the colon. In some cases, however, areas of the colon not contiguous with the ileum are involved. Symptoms of ileocolitis are essentially the same as those present in ileitis. Weight loss is also common.

Crohn's Colitis (Granulomatous Colitis ) - Crohn's colitis affects the colon. It is distinguished from ulcerative colitis in two ways. First, there are often areas of healthy tissue between areas of diseased tissue; ulcerative colitis is always continuous. Second, while ulcerative colitis always affects the rectum and areas of the colon beyond the rectum, Crohn's colitis can spare the rectum, appearing only in the colon.

Fistulizing crohn's- there are some patients prone to getting fistulas while other crohn's patients may never experiance a fistula their entire lives living with crohn's.

Stricturing crohn's- there are also crohn's patients who might frequently deal with strictures due to their disease while others may never experiance it but are instead prone to inflammatory crohn's instead where they mainly have issues with inflammation and not strictures or fistulas.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 9/8/2008 7:22 PM (GMT -7)   
that was incredibly helpful pb4, i really appreciate it!
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 9/8/2008 7:45 PM (GMT -7)   
I second what Lavenderblue says pb4. Thanks...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/8/2008 9:46 PM (GMT -7)   
You guys are very welcome and I'm glad to be here to help in any way possible, this DD (damed disease) is so overwhelming with all the info out there, so many directions our disease tends to go doesn't help.

Sniper, I especially hope things are going well (or at least better and better each day) for you and your wife, you're both in my thoughts.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 9/9/2008 8:57 AM (GMT -7)   
pb4, thank you so much! I think I know what kind I have, after 30 yrs; Ileocolitis. I appreciate your effort.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/9/2008 9:55 AM (GMT -7)   
smilewinkgrin  You're welcome d2parrotperson!!!  It is sad that doctors don't elabaorate more with their patients since this disease is so complex it would be nice to get detailed info from our docs when it comes to what all is going on with our disease.
 
:)
My bum is broken....there's a big crack down the middle of it! LOL :)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 9/9/2008 10:09 AM (GMT -7)   
Yeah I have ileocolitis myself. But I also have the stricturing type of Crohns. Lucky me.
Been living with Crohn's Disease for 32 years.  Currently on Asacol, Prilosec 60 mg, Estrace, Prinivil, Diltiazem, Percoset prn for pain and Calcium.  Resections in 2002 and 2005.  Recently diagnosed with Fibromyalgia and doing tests to see if I have Inflammatory Arthritis or AS.


mj8dokken
Regular Member


Date Joined Dec 2006
Total Posts : 149
   Posted 9/9/2008 11:58 AM (GMT -7)   
I have Crohn's colitis myself. Do any of you know-once you develop fistulizing crohn's, are you prone to fistulas forever? Or could you develop just one and be done with it? Just wondering smilewinkgrin
Bad flare May '06 resulted in CD diagnosis-symptoms for 10 yrs prior.
Asacol: 2400 mg/day
6mp: 100mg/day
Prednisone: 10 mg/day
Entocort: 9mg/day


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/9/2008 12:23 PM (GMT -7)   
You could likely just develop one and be done but I think the odds are against you even if you only develop one, but of course nothing's really written in stone either, just because you get one doesn't neccessarily mean you'll be prone to getting them often, it just likely increases your risk of it.

BTW, I too have crohn's colitis, when I first got sick CD was affecting my TI, colon, rectom and anus all at the same time for about the first 2 yrs of having CD but since then it's only remained constant in my colon and anus (perianal crohn's skin tags) and comes and goes in my rectom.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


MishBall2
Regular Member


Date Joined Apr 2007
Total Posts : 345
   Posted 9/9/2008 12:49 PM (GMT -7)   
pb4 said...

Crohn's Colitis (Granulomatous Colitis ) - Crohn's colitis affects the colon. It is distinguished from ulcerative colitis in two ways. First, there are often areas of healthy tissue between areas of diseased tissue; ulcerative colitis is always continuous. Second, while ulcerative colitis always affects the rectum and areas of the colon beyond the rectum, Crohn's colitis can spare the rectum, appearing only in the colon.

Thank you, for all the newbies out there.   When my doctor said I had Crohn's Colitis, I thought I had Crohn's AND Colitis.   blush    It wasnt for 6 months that I figured it out.
33 years old. Diagnosed in 2002ish. 
Taking Asacol, Lomotil TID, and on Remicade since 2004. 
Lower Bowel area only, except for the short stint (about 2 weeks) that I had mouth sores.  Also have external/anal fistula and anal/vaginal fistula. 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/9/2008 1:24 PM (GMT -7)   
I here ya MishBall, I think alot of people get confused and think they have both UC and CD, which is possible, it's just very rare (aprox 2%)...so if anyone's doc says "colitis" and does not specify ulcerative colitis, then the doc is simply referring to inflammation in the colon due to your crohn's...col=colon, itis=inflammation.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


LavenderBlue
Regular Member


Date Joined Oct 2005
Total Posts : 168
   Posted 9/9/2008 3:05 PM (GMT -7)   
It looks like I have Ileocolitis with both stricturing and fistulizing Crohn's (yay for me). Has anyone ever heard a doctor tell them that UC is in the large bowel and Crohn's is in the small? I had my first idiot gastro tell me this and say I was an odd case for having it in my large. But according to what you said, pb4, Ileocolitis is the most common, but it occurs in the ileum and colon. So that would be having it in you large bowel is not rare. Did this come out right? :)

cheers
lavender
 
diagnosed: Crohn's Aug 2005
 
other set-backs: Vasculitis Aug 2006, Sub-total Colectomy (10 inches of colon left) Feb 2007, Ogilivie's Syndrome Mar 2007, Pulmonary Embolism Sept 2007, Collapsed lung Oct 2007, Recto/Vaginal fistula Nov 2007
 
drugs: Imuran, Remicade, Prednisone, Fentanyl, Warfarin, Flagyl, Cipro, Celexa, Ferrous Gluconate, Acidopholous


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/9/2008 4:11 PM (GMT -7)   
Only if a person is sick with both diseases can they have CD in their small and UC in their colon...

UC is limited to the colon/rectom, CD can affect the entire GI tract from the mouth to the anus.

Generally it's more common for CD to start in the small but it's not written in stone, my CD started on my anus (outside) and moved up from there all the way to my small (the lower part of the small).

Apparently because it's more common for CD to start in the small, it's considered more rare for it to affect the colon (large bowel), however researchers have discovered a cluster of 9 different genes that play a role in severity and behavior of CD so that's why some are affected in particular areas more so than others.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 9/9/2008 4:14 PM (GMT -7)   
One other thing that many are not aware of is CD generally looks different than UC when veiwing via colonoscopy...CD can affect the many layers of the intestinal lining (which is often what leads to a fistula) and with UC only the surface of the lining is affected which is why fistulas do not go hand in hand with UC...

The other difference between the 2 is with crohn's there are skipped patterns of inflammation (healthy tissue in between inflammed) with UC the entire area will be inflammed with no healthy tissue in between.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


FallColors
Veteran Member


Date Joined May 2007
Total Posts : 1220
   Posted 9/9/2008 5:30 PM (GMT -7)   

And then there are those of us who only have fistulizing CD in the rectum.  Oh joy.  shakehead    Not sure is it fits into one of your categories or if we are a breed unto ourselves.


Diagnosed early 2007 with rectal Crohn's.  Several peri-rectal abscesses and two fistulas with setons.  Allergic to Remicade and Humira.  Currently on 6MP.


d2parrotperson
Regular Member


Date Joined Aug 2008
Total Posts : 320
   Posted 9/10/2008 8:50 AM (GMT -7)   
I also have a stricture. Mine is from scar tissue and deep inflammation, so I'm not sure I'd classify as having stricturing CD.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
 
Stephanie
When I am weak, then am I strong

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