This site amazes me with the quick responses and hooking up with people who can help.
Heidi-Would like to hear more about you since we seem to have some things in common. I have a stricture in my sigmoid colon and if methotrexate is not successful I am looking at having 6" of my sigmoid colon removed (have already seen a colorectal surgeon who did a sigmoidoscopy). What was your situation before you had your surgery? Did you have a stricture or fistulating Crohn's? This is all fairly new to me. What medications have you tried? I went back to your recent posts and found out you ride horses. That is what we do a lot. My husband cattle pens (just had our CATPA Finals) this past weekend and we ride in the mountains a lot. Crohn's had not affected my ability to ride, golf or curl yet!!
MMMNAVY-Thanks for the info. What is melt away Zofran? Really like my GI but here are things they don't think of telling you.
I have also read the first few injections might be worse. Do you two give yourself the injections? Where?
Wow, to go into surgery thinking you are having a colectomy and come out without is incredible in itself. My insides have been scoped from both ends numerous times this past year and have been looked at by a physician, 3 GI's, general surgeon and colorectal surgeon (at first look, thought it was probably colon cancer) so they know what they are dealing with before I would have surgery. I have 2 inches of colon which is significantly narrowed and inflammed and otherwise things look good.
I am 2 hours away from my GI and one-half hour away from local clinic. They can teach you to give the injection yourself but first one will be done at the clinic. Have read others inject themselves and some do it at night so that if they have side effects, they may sleep through the worst. My pharmacist is a good friend and she says not many that she knows have nausea but in one case a woman just persevered and they got better with each injection.
I am babysitting my grandson (first time at the farm) this weekend, otherwise would have started sooner. I think the waiting is the worst once I made up my mind to try methotrexate.
Yes that is Cattle Penning and Central Alberta Team Penning Assoication. Nationals (Canadian) are in October. I have tried 2-Man cattle sorting but prefer a slower pace, like trail riding.
I gained 20 pounds in three months on Prednisone but worked very hard to lose it the next three months.
Heidi, can I ask what your symptoms are? You say very little D but tried a lot of medications? I was also given the choice of Remicade but do not want to go there at this time. With stricture, I go 6-7 times a day but very little at a time and no urgency so I do not conisder this a problem. And if I am away from home for the day I do not need to go without any discomfort. The only symptom I have is a feeling on the left side of the abdomen which I attribute to things backing up at the stricture site?
MMMNAVY - I was started on 2 mg. folic acid. How do you know that 1 MG was soooo not enough? How do you feel? How do you know it's a shortage of folic acid?