Thanks to everyone who replied. Is Asacol only used for Crohn's when it is also in the colon? My daughter was told she was months away from probablly having to have surgery, and her disease is just in ileum at this time. The physician said Asacol is not used when just in small intestine. She would consider putting her on an antibiotic like Flagyl for just 2 weeks, but wants her to start on this Imuran at a low dose of 25mg/day. My daughter doesn't know what to do, and I'm feeling like there has to be some other options. I guess because her condition is severe the Dr. doesn't seem to think anything would help except the Imuran. I'm doing some research on the Naltrexone as her Dr explained it to only work on pain and not help put her into remission. Can the MAP bacteria be treated with Flagyl?
a second opinion? Always a good thing... and what about
Pentasa, Asacol's sister drug? I thought when the
location was not right for one, the other was then used. Maybe someone else can chime in on this...
To answer your MAP question, it is treated with a combo of 3 or 4 different antibiotics (used simultaneously) over a 2 to 3 year period, if I remember correctly. If you are thinking of using Flagyl for MAP purposes, I don't think it alone would do the trick--especially not for only two weeks. It's my understanding that not only is MAP extremely difficult to culture, but it's also extremely slow to reproduce and VERY difficult to eradicate--even with this powerful antibiotic combination. Scientists still have a lot to learn about
the best way to treat it, imo.
Though I know some people have not had success with LDN, others have had *great* success. Those who have had success would most likely disagree with your daughter's doctor's opinion of LDN. Ironically, the doctor who pioneered its use now advocates a diet similar to the SCD to rid the body of candida which allows LDN to work more effectively.
Along those lines, many here would recommend the book, "Breaking the Vicious Cycle" by Elaine Gottschall. She was taught the diet that healed her daughter by an elderly doctor in the early 1960s. Elaine then named the diet the Specific Carbohydrate Diet (SCD) and went on to spend the rest of her life studying food and its effects on the intestines at the cellular level (she obtained a degree in microbiology). It's an interesting read, the online resources are extensive, there are cookbooks published to comply with the diet, and doctors won't tell you about
it. As you will read here in another thread, it doesn't work for everyone, but it has worked for MANY.
You mentioned your daughter's condition is considered severe? Another option, though possibly tough to do, is a liquid diet. This is discussed here periodically, is accepted by the medical community, and is considered as effective as prednisone in stopping a flare--if you can tolerate it. You could discuss this with her doc...
I hope she feels better soon!
Mom to 16 year old boy diagnosed in June, 2007.
Omega 3s, digestive enzymes, probiotics, vit. C, calcium w/D3, a good multivitamin and SCD legal yogurt
Started The Maker's Diet in Sept. '07. Gradually learning/using more SCD recipes, too! (cooking challenged)