My heart just goes out to you both. I know the pain she is in, I lived with strictures several times while waiting for surgeries to be scheduled. Nanners is right about keeping foods very soft, but if even that is too much she can go to "full" liquids. Basically custards and puddings, milkshakes and so forth. Creamed or pureed soup. You really can get a lot of nutrition into yourself with liquids, try adding a jar of baby turkey, chicken or beef to soup, it bumps up the protien.
As far as the insurance, have you spoken to the school nurse? It seems to me there should be some form of insurance for minors available. Also, most of the major drugs available have some assistance programs. What about going to a major hospital for some trials? Or the CCFA. Just throwing things out there, but you've probably already run them all down already.