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Roxette
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 9/11/2008 12:10 PM (GMT -7)   
Had my third appointment with doc since i was diagnosed. Turns out my crohns is not as mild as she thought :( i was  disappointed to hear that but thats life i suppose! Ive come of entocort and have been prescribed a course of Prednisolone along with the usual Pentasa.
Does anyone know of any side effects and what i can expect whilst on it? Does it work quickly? And should i be taking supplements? rolleyes

sjkly
Veteran Member


Date Joined Dec 2007
Total Posts : 2113
   Posted 9/11/2008 2:29 PM (GMT -7)   
Prednisolone is an immediate acting corticosteroid it is what prednisone is matabolized into. So the side effects are all the same ones you would see with prednisone. You can find lots of threads listing those effects here. I would take calcium.
Hope you feel better soon
Sj

KEANO
Regular Member


Date Joined Sep 2008
Total Posts : 76
   Posted 9/12/2008 1:05 AM (GMT -7)   
Hi Roxette, Hope your feeling ok. I have never been on prednisolone but have been on entercot. So cant help you regarding side affects. Have you been admitted to hospital at any stage for tests. As I said its trial and error at the beginning until you can get the balance right. Best of luck and keep in touch x

Roxette
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 9/12/2008 1:12 AM (GMT -7)   
Yeah im not feeling too bad at the minute, its the tiredenesss and all the other crap that goes along with crohns gettint me down!
Ive had all the usual tests, endoscopy,colonoscopy and barium meal.
The doc is hoping this round of steriods will knock the flare into kingdom come! im hoping too as im off on holidays to america next month and i dont want to be in the middle of a flare

KEANO
Regular Member


Date Joined Sep 2008
Total Posts : 76
   Posted 9/12/2008 1:53 AM (GMT -7)   
Are you on any Iron. I take Spa Tone and I find it great and it does'nt upset my stomach. Hopefully the steroids will kick in and you will be able to enjoy ur trip to U.S.

Roxette
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 9/12/2008 3:22 AM (GMT -7)   
currently takin galfur iron tabs, monthly b12 injections and calcium supplements - am like a junkie!

KEANO
Regular Member


Date Joined Sep 2008
Total Posts : 76
   Posted 9/12/2008 4:35 AM (GMT -7)   
Ya im also on B12 injections. Are you on the loo a lot cos that can make you very tired and drained.

Roxette
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 9/12/2008 4:46 AM (GMT -7)   
yep keano! its anightmare! Ive had an unbelievable amount of sick leave this year because of it!!
So im taking next week off as holidays to stay home, get some rest and start the new drugs, fingers crossed all goes well!!
Was there a history of crohns in your family? there was none in mine and the diagnosis was quite a shoock! id been going around for since my tennage years thinking it was normal for people to go the loo very often!

KEANO
Regular Member


Date Joined Sep 2008
Total Posts : 76
   Posted 9/12/2008 4:58 AM (GMT -7)   
I am the only one in my family with crohns. My aunt died of bowel cancer so maybe she had it, I don't really know. I have 3 boys and thank god they are healthy. Its a bummer of a disease, especially going to the loo. When I go anywhere I have to make sure I know where the loo is just in case and believe u me I have had many an accident running to the loo. Rest up as much as you can next week and hopefully the drugs will work. Best of luck and let me know how you are doing.

screamingbellyache
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/12/2008 9:19 AM (GMT -7)   
Prednisone and Prednisolone are fantastic drugs that can make you feel SO much better, if used correctly. Please be careful. I am / was (?) steroid dependent for a year after my diagnosis. My doctor, while a fantastic and smart guy, didn't specialize in CD and I guess maybe i slipped under his radar. When I changed doctors (I moved) it was discovered that my body was depending on the drug to get by and getting off of it would be a b*tch. I wanted to get off of it mainly due to the weight gain (especially in my face) and the mood swings, but I NEEDED to because a bone density scan showed that I had osteopenia. Basically my bones were weakening and I had developed the precursor to osteoporosis at age 22! While you are on Prednisone or Prednisolone PLEASE PLEASE take calcium. I had no idea the damage I was doing to my bones for almost a whole year. Do it for me!
22 years old, female, young professional in New York City with Crohn's Disease. Diagnosed September 2007 .. one year anniversary! 3 hospitalizations, many screaming bellyaches, and countless embarrassing bathroom runs since diagnosis. Currently injecting one Humira pen every 2 weeks and tapering off Prednisone (ugh thank goodness, I can be thin again). Until recently, I was classified as "steriod dependent" Have been on Pentasa and hyoscyamine in the past.


Roxette
Regular Member


Date Joined Aug 2008
Total Posts : 63
   Posted 9/12/2008 12:08 PM (GMT -7)   
Hi screamingbelly ive been taking calcium supplements allright, osteoperosis runs in the family!
on a happier note im coming to new york on holidays next month. can you reccommend anything fun to do or any bars to visit? ive done all the usual tourist stuff before
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